I am getting scans this afternoon and my thoughts are with all you others who have scans this week or coming up soon. So Kenny, Beth, soworried, Michelle, and all the others I don't know about, I am with ya! This is my first scan in about 10 months since I started treatments. Preparing for my takedown surgery and port removal next Friday, 11/11/11 at 11:00am. I asked my surgeon, "Why not schedule for 11:11 while we are at it?"
I stopped the oxaliplatin after treatment number 9, when my toes were mildly tingly/numb. Continued on through treatment 12 with the 5FU pump. So glad I did and that my excellent doctor was concerned enough to advise me to stop the oxi so that my quality of life wouldn't suffer too greatly. But the neuropathy has gotten worse and worse since I stopped the oxi 9 weeks ago. Bummer that I am in the percentage who have it get worse before it gets better. I hold out hope that I am not in the eleven percent who have it permanently. Perhaps the cold weather will prevent it from getting any better before spring, do you think?
My radial nerve that goes to my fingers and palms and some nerve in my neck that goes down to the arches of my feet twang (very technical, I know, but it is like a bolt of electricity sent to the extremities) whenever I am in a specific position. Did anyone else have this happen? When will it go away? Will playing sports do further nerve damage? My pinkies are the only fingers not affected on my hands. I might have to start typing with my them
Thanks for the support. See you on the other side of the scan.
12/22/10- Diagnosed at 30 yo
Rectal Stage IIIB, T3N1M0
1/11/11- 25 doses radiation w/ 24/7 5FU pump
4/8/11- LAR-Complete Response to Therapy!
5/13/11- 12 treatments of FOLFOX started
11/11- ilestomy reversed, port-a-cath removed
Mother of 3 beautiful little girls