mum

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mum
Posts: 37
Joined: Sun Aug 14, 2011 12:04 am
Location: Christchurch New Zealand

mum

Postby mum » Mon Aug 22, 2011 12:08 am

My daughter Rachael and I did all we could to address her early symptoms and the Medical personal failed in their duty of care and resposibiltiy to perform the necessary tests to diagnose he under lying problem.
Its heart breaking to have to see Rachael go through all of the emotional and physical traumas of this dreadful disease.The Specialists informed her that if she had have had early intervention her cancer could have been cureable.I informed them that she took the responsibility on board and did seek help from the very people who could have helped her.They failed in their duty put her sympoms down too grief through the loss of her youger brother and depression.I did not give up could see it in her eyes that she was very sick.
No support for her at that time.It was so frustrating.
Now all we get is very sorry we missed the cancer didnt expect the bowel cancer with liver massts in souch a young lady.
The early symtoms of C A are all the same wether the person is a baby or inbetween or elderly.
Dont take no for an answer.If you know in your heart that there could be a problem, dont give up make someone in the medical field listen and do the tests.
This is a terrible price to pay for negligence.We have a no faults policy in N Z just we are sorry is as good as it gets.
Sorry Im venting this but Im Rachaels mum and after lossing Andrew my only son at 25 years of age I had so hoped that my only lovely daughter could have a life of quality in the face of adversity.
Guess I must count my blessings for what I have had. I have my daughter.Just want to have a wake up call sent out there for the medical people to do their part when they should.
These people have given my daughter and her mum and dad a lifes sentence through their delayed lack of action and care.
I hope you all are living each moment of every day with love and strength to get you through.My caring thoughts are with you.

janks23
Posts: 21
Joined: Wed Aug 17, 2011 1:56 am
Facebook Username: bianca.embleton
Location: Victoria , Australia

Re: mum

Postby janks23 » Mon Aug 22, 2011 5:18 am

I'm sorry you have to watch your daughter go through this. As a Mum also I could not think of anything worse than watching your child go through so much pain. My heart goes out to you and your beautiful daughter.



Hugs for you and your family xoxox

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: mum

Postby NWgirl » Mon Aug 22, 2011 11:08 am

I'm so sorry to hear about your daughter. It's not just New Zealand where there are doctors who miss the signs of cancer - it happens here in the US as well. Not all doctors fail in this regard, but sadly some do. In the 2012 Colondar (coming out in September) there are two women there who were diagnosed @ 20 and 21 respectively with stage 3 cancer. Way too young. All I can say is to tell your daughters story to as many people as will listen - we can all work together to get the word out that colo-rectal can and does happen to young people too - not just those over 50.

I've always said the only worse thing than going through this myself would be to have one of my children go through it. I can't even imagine how painful this is for you. I'm so sorry - I wish words could do more.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: mum

Postby Terry » Mon Aug 22, 2011 1:41 pm

Your right, I use to be one of them (RN) and some times medical professionals blow off patients that don't fit the norm for a certain disease. They'll label some one a hypochondriac and say other things to each other. The medical community really does need to start taking the youth serious with this disease. I know it's only a small percentage of young people that get this. It looks like it's large from this board but the fact is it's probably less than 10% of patients that get colon or rectal cancer are younger than 50. THAT is to many to go undiagnosed until it's caught at stage IV. It's easier to test someone with a colonoscopy and catch it early than to treat someone with chemo, surgery, etc. I've heard there's a new noninvasive test that's in trials and that would really help.

I'm really sorry that your family is going through this, you've already had to much to deal with.

Your in my prayers.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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mum
Posts: 37
Joined: Sun Aug 14, 2011 12:04 am
Location: Christchurch New Zealand

Re: mum

Postby mum » Sat Sep 03, 2011 8:34 am

Thankyou for your support Terry,I never thought when I nursed for 34years caring for so many cancer patients and their relaliitives that one day I would have to face this disease full in the face with my beautiful daughter.
There comes a time in each of our lives when someone close to us needs our care and support.
After losing my precious son I knew that my daughter was underlyingly sick.
Now all that I can do is to be right beside her every rotten step of the way and concentrate on getting her through her treatment as best as I can with all of my love and support.
I cherish every special moment spent with her and stay in the now time.I try to keep everything centered and dont let anything steal the quality of life that we share.Its too precious to waste.
We sometimes drive each other potty as mums and daughters do at times. yes there are differences of personalities and stressful events that we all can relate to.
I just love her to bits and we find the middle ground. Lots of funny things to laugh about to lighten the load.Would not get far without a sense of humour even at the worst events.
So thankful that I have this forum with you dear folks, to share our lives with.Go well my friends find a little event to laugh about every day.Love to you Mum


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