Wow...lots of strong insight and great advice. However, I can appreciate why someone may be a bit apprehensive about self dc of pump. To all those non medical persons and non rocket scientists out there...a personal scenerio to hopeful reframe this posters concerns: 4 weeks post dx and you learn your port has become infectected, must be removed, and replaced. Alrighty, port #2...you as the patient dx with stage 4 cc now is at home no one getting near port #2 and you have TPN to feed you, supplement for tpn, also in the refrigerator you have bags of flagyl, vancomycin to be titrated, you have syringes filled with zofran, benedryl, supplemental morphine, heprin and normal.saline just to name a few. Now were do you start? Do not forget morphine and heparin are not friends.
I offer this to those who are quick to write "its not a rocket science." While, it may be easy for some, I do not believe it would be unreasonable to to unreasonable to want a professional to assist. There are always exceptions, nothing is absolute in this context. Perhaps you could ask your husbands doctor to recode the medical nessessity of the need for home health.
I will keep you in my thoughts and prayers! All things are possible if you believe. By the way, welcome to to the club. My name is Holly, I am an eight year stage 4 cc survivor NED.