folfox

[joy]

Just had my second round of folfox and experience the following side effects --

1) came home with the infusion attached and started to run a raging temp 38.8 and it stayed that way all night. 'phoned local hospital and told don't worry much too early to be a white cell problem.
2) next day my face and chest stayed a bright red - looks like I have a sun burn. It is predominately on my cheek bones etc.
3) sick as a dog - immediately on arriving home - manageable.

The red face is slowly coming back to normal

Anyone else experienced this with this chemo

[Guest]

I haven't experienced the exact same symptoms as you have on the Folfox regimen. Below are the allergic reactions I once experienced on Folfox; nausea and slight feverishness is continual for me when I am on the it, despite having Aloxi and steroids administered prior to treatment.

I have experienced these symptoms once:

1. burning on the palms of hands, which was alleviated by an ice bag

2. redness and a burning sensation around the rims of my eyes

3. flushing in the face with burning

4. feeling "itchy" and hot

These symptoms occurred when I was at the hospital receiving treatment, and they were were able to stop the reaction by administering benedryl, temporarily stopping the infusion for 15 minutes, and decreasing the dosage-everyone is different. I hope things work out for you.

Rochelle

[joy]

Rochelle:

I really think I had an allergic reaction.

The burning sensation around the eyes is just as you described - I thought it felt like spending a very hot dry day with a wind in my face - my eye sockets looked white and my eye bone area was red.

My whole body was incredibly hot and dry and blotchy.

I'm off Oxy for 5 weeks (radiation +5FU) - so I will be sure to mention to my Oncologist that I have heard of someone having a simiular reaction and please have the benedryl ready.

thanks for your info...... much appreciated

[Holly]

Joy,

As a stage Iv survivor, I had 8 cycles of oxi and did not experience such side affects. My primary were fatigue and neuropathies. Warm snuggly socks and mittens are priceless! With the redness and heat, I would tend to agree that you may have had an allergic reaction to the platinum base of Oxi. I would definitely encourage you to be proactive and discuss with your provider. Please be well and know that you are in my thoughts and prayers!

Hugs!

Holly

[Guest]

thanks Holly: to-day is one of my "down" days, very tired
I'm so thankful for the people at the Colon Club they are so great!!!

[sue]

Joy,
I have experienced a flush almost everytime I have my treatmments, mostly on my face. (I am on my 8th folfox6 treatment) Once I had it on my thighs too. It is weird, I have it more on one side of my face than the other.

My eyes actually hurt sometimes (if I am in the cold, or if I cry) I am sure this is from the Oxiliplaten. It goes away later in the week.

My Dr. gives me Benadryl every time. I thought that was standard practice. It is good that you are on top of this now. Keep them all on their toes and good luck with your treatments

Sue

[joy]

Sue:

Thank goodness for the Colon Club it has saved my sanity.
I'm of Scottish background and tend to be too darned "tight lipped" - when it comes to health issues. When a doc asks me how I feel I always seems to say "FINE NO PROBLEM". Now I'm learning to be more pro-active and to admit if I'm having problems i.e. I threw up like a dog, I had a raging temp, I left as though I was burning up.

I'm beginning to learn that the Doc can't fix what she doesn't know about.

I'll make sure and mention benedryl