) which confirmed signs of activity in the lung spot they had been watching for 4 years now.It has been pretty devastating as I really did believe I was on the home straight but then cancer never does play by the rules.I am off to see a cardio thoracic surgeon - by the end of this, i don't think there will be a hospital department that doesn't know my name !!!big bums the beast returns
big bums the beast returns
No offence intended but I really didn't want to be in the lung thang gang but it seems I am to be a fully paid up member....I had my PET scan (I stuck my finger up to the machine as you recommended Bev and it lifted my spirits no end ) which confirmed signs of activity in the lung spot they had been watching for 4 years now.It has been pretty devastating as I really did believe I was on the home straight but then cancer never does play by the rules.I am off to see a cardio thoracic surgeon - by the end of this, i don't think there will be a hospital department that doesn't know my name !!!
) which confirmed signs of activity in the lung spot they had been watching for 4 years now.It has been pretty devastating as I really did believe I was on the home straight but then cancer never does play by the rules.I am off to see a cardio thoracic surgeon - by the end of this, i don't think there will be a hospital department that doesn't know my name !!!Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
-
Surroundedbylove
- Posts: 3126
- Joined: Tue Dec 16, 2008 6:43 am
- Location: Seattle
Re: big bums the beast returns
So sorry to hear the news. One step and a time as they say so I hope the surgeon says you are a resection candidate.
If they have been watching this for years do they think it is slow growing? Kind of sounds that way which would be good.
Keep us posted - we're thinking about you.
SBL
If they have been watching this for years do they think it is slow growing? Kind of sounds that way which would be good.
Keep us posted - we're thinking about you.
SBL
Surroundedbylove
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019
Re: big bums the beast returns
You know my first reaction to any bad news is always denial. Only biopsy can confirm the beast. I vote for some weird inflammation. Are they planning a biopsy? I will be praying for something benign.
(((hug)))
(((hug)))
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
-
NWgirl
- Posts: 6659
- Joined: Sat Feb 02, 2008 3:24 am
- Facebook Username: Belle Piazza
- Location: Battle Ground, Washington
Re: big bums the beast returns
Benign is always a possibility, so I'm hoping for that. On the other hand, if this thing has just been hanging out for 4 years and hasn't done a lot, that seems to be a good sign as well. If it is cancer, it must be very slow growing. Did anything else light up? I see in your signature your cancer first up in 2006 - correct? If this is all that has shown up - and its been there for awhile; that is amazing and wonderful!
I say cut the little monster out and live on!
I say cut the little monster out and live on!
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model
-
tammylayne
- Posts: 2177
- Joined: Fri Jul 16, 2010 9:24 am
Re: big bums the beast returns
Sorry to hear this news...but sounds like you have a plan...and that is a GOOD thing!!!!
...Tammylayne
...Tammylayne
51 F
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
'06 Stage 1 CC,
'10 Stage 3 Rectal
"You never know how strong you are until you have to become your own hero."
Re: big bums the beast returns
you guys are so great - I will sleep tonight dreaming that it is benign. The thing is is that it has doubled in size to 1.2 cm in the last year so the feeling is is that it should be taken out.I will see what Mr Lung Man says tomorrow.
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
-
vancouver eve
- Posts: 1507
- Joined: Fri Jan 18, 2008 3:04 pm
- Location: Vancouver
Re: big bums the beast returns
Sorry to hear your news. I am sitting in the same position. I have two nodules that have not changed in several years. My Onc. informed me I have a lazy cancer. I do hope mine don't double over the next while. If they do I was told I will have sterotactic radiation. I did see my Thor. Surgeon who did vats surgery two years ago on one, but he is of the opinion that if I have these two nodules there probably is more he can't see. Needless to say I would need to see another Tho. Surgeon.
Re: big bums the beast returns
Not the news you wanted, I'm sure, but there's still a lot of hope that this is highly treatable and very slow-growing. There are plenty of weapons in the arsenal for this stuff - now you just have to go get a doc who's willing to use the big guns! 
Beth
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net
dx @age 42, Jan '11 RC, T2or3NxM0 (stage IIIA/IIIB)
6 wks chemorad Feb - Mar '11
LAR 5/23/11, staged T2N1bM0 (2 of 15 nodes positive)
8 rounds FOLFOX, June-Oct. 2011
clear scans Nov '11, May '12, Nov '12, May '13
http://www.mysemicolon.net
Re: big bums the beast returns
I am scheduled for a thoracotomy on Monday and hitting high anxiety mode !I would be grateful if anyone has any advice to get through it/tips for recovery. Thanks !
Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
-
SkiFletch
- Posts: 6361
- Joined: Mon Dec 07, 2009 3:39 pm
- Facebook Username: Michael Fletcher
- Location: Buffalo, NY
Re: big bums the beast returns
Ouch, sorry you have to join the gang mungo. Is it going to be open thoracotomy, or Video Assisted (VATS)? Recovery time is faster for VATS, but even open thoracotomy isn't too bad. Hope for good news
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married
Still NED and living life to the fullest
"Can any one of you by worrying add a single hour to your life."
Re: big bums the beast returns
While you are waiting for your surgery occupy your mind - movies, books, crossword puzzles. Exercise physically to the point of exhaustion - believe me the surgery will be the last thing on your mind. You will be sleeping through the surgery and you'll be medicated after for you pain - so there's nothing to worry about.
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015
Re: big bums the beast returns
Thanks for the positive replies -I like the sound of 'not too bad ' Fletch ! i tried the "can't I have VATS?" after learning about it here but no can do -open thoracotomy it is.I'd appreciate anyone swinging some chickens for me for Monday.
i tried the "can't I have VATS?" after learning about it here but no can do -open thoracotomy it is.I'd appreciate anyone swinging some chickens for me for Monday.Stage IV
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Left hemicolectomy Dec 2006
Liver resection March 2007
6 months FOLFOX
Thoractomy to remove lung met Aug 2011
NED again
"Above all,what matters is not to lose the joy of living in the fear of dying"Maggie Keswick Jencks
Re: big bums the beast returns
Sorry about the beast getting things out of control.Its like the enemy returns to muck up our lives aye.I really feel for you mungo.
Rachael lives witht the fear that this will happen to her too.I just said to her that chemo and all of the other treatments are the armour that we fight the enemy with.Chemo is going to war on these dumb cell beasts.
i do hope you are being the best care and support to help you.Dont forget never give in neveer give up. Our loving thoughts from Rachael and mum
Rachael lives witht the fear that this will happen to her too.I just said to her that chemo and all of the other treatments are the armour that we fight the enemy with.Chemo is going to war on these dumb cell beasts.
i do hope you are being the best care and support to help you.Dont forget never give in neveer give up. Our loving thoughts from Rachael and mum
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