I am weirdly thankful there is a name for it! And no, I don't have any kind of a pouch. I was fortunate that my surgery went well, and I haven't had any other issues really. Thanks for the link, and for the info! I sincerely appreciate it! I think I am just thankful to know this won't be my new normal
So when they removed your rectal tumor you must have a "straight connect" then since you don't have a colonic j-pouch to create a neo-rectum? Straight connects still seem to have clustering but in addition to my thread, you may want to read the thread devoted to straight connections.
Although you didn't have a temporary ileostomy and therefore a takedown surgery, I think our experiences still may be helpful to you because you had rectal cancer and thus you must have less of a rectum left - and that's what seems to cause the clustering (less rectum equals smaller "holding tank" and the colon attached to is is designed to move things along rather than "hold" so you get the clustering.
Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019