Postby KP » Sun Dec 02, 2007 10:45 pm
Sorry I've been "checked out" and only got into this post by page 4!
The whole CC arena is very segmented, that's part of the problem. There is no "one big player" in terms of promoting awareness, offering resources, rallying for colon cancer on the hill... S.G.K. is "it" for Breast Cancer.
If we talk about promoting March for CC stories, having running events, getting congress to wear blue ribbons - it would be terrific to try to run this through some organization that can build up resources and be respected.
You may know that I was in the NYT in a cover story for CC - that was great awareness. They found me through CCA, and a local chapter. I know CCA is trying to start more regional programs and build awareness. I don't think it matters WHERE it comes from, or WHICH organization.
I do know that CC is not "hip." I truly thought my article would bring about greater opportunities to talk about Colon Cancer and younger people being diagnosed. IT DID NOT! I, too, have tried to contact Oprah to do something on CC. I have tried to contact major cancer support groups to get involved with patient advocacy and CC, and received a "canned response." I would have thought that the NYT feature would open doors to share information.
I am not sure how it goes from here. I'd love to see an organization like CCA reach out with media events, regionally throughout the US.
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KP
36,
Stage IV (liver mets), dx 7/06
Liver & Colon Resection: 7/07
Liver Recurrence: 12/07