The Colon Club

Hi Lee,

Lots of us have been so worried about you after the nightmarish week you had two weeks ago. I sure hope you are feeling a lot better! Do you feel like saying? I'm praying for you daily.

Much love, Bev

LeeT,

I am also praying for you every day. How are you? I hope that you feel batter. Please let us know, but just if you up to it.

Much Love,
Mona

Hi All,

Thank you for all your love and prayers, I have been keeping a quiet profile these days and more a lurker than an active particpant.
Things are going okay, CEA still rising, my eyes are very yellow and my liver is definitely not functioning well. It is still giving off a lot of fluid and I look 7 months pregnant, my feet/ legs have also started to swell so I have tree trunks where previously had skinny, skinny legs.
I go for chemo tomorrow (prayers that counts are good) as well as draining of my "baby"- I know this will just fill up quickly again but makes it more comfortable for me. Besides that been feeling pretty goo, energy levels are good but the whole leg/ belly thing makes it difficult to get around (esp after being at work for 6 hours and my feet are so swollen I can't walk.)

Hubby and I are going on a cruise next week, armed with all my pills, letter from Dr. and tons of insurance am determined to do as much as I can- with mandatory naps in the sun on deck....mmmm sun\


I will keep you all posted after tomorrow when we will decide to stick with FOLFOX or move to plan C.

Hugs all around

My thoughts are with you LeeT. I hope they can get things improved to the point where you can go on that cruise and have a pleasant time in the sun.

SBL

Talk to your onc about a diuretic to reduce the tree trunks and ascites.
My onc put me on spironolactone (50 mg x2 daily) which REALLY reduced the fluid to the point I can rest comfortably and see that my legs and ankles do, in fact, have veins.

LeeT wrote:Hubby and I are going on a cruise next week, armed with all my pills, letter from Dr. and tons of insurance am determined to do as much as I can- with mandatory naps in the sun on deck....mmmm sun..... Hugs all around

Thank you SO much for letting us know how things are going with you. The cruise sounds 100 % fabulous...Enjoy ! Please watch the "sun" a bit though 'cos some of the chemo and meds make us more sensitive to the UV. Good excuse to get hubby and the staff to wait on you hand and foot, ...you know..."Sorry I need to stay under the umbrella right now"

(I hear you about the med insurance thing...don't get me started, but finally got a policy I was comfortable with and ventured south of the border 2 weeks ago...the wheels did NOT fall off... so might even do it again.)

Prayers and HUGE best wishes for good counts, good infusin' and megalicious happy cruisin'...!

In Harmony on the Journey, my Canajun sista'

Namaste
CRguy

Hi Lee,

Thanks so much for posting. I'm so sorry that things are still very tough. I hope it goes well getting rid of your baby and that your liver function picks up, such a pesky organ! What wonderful news that you and your husband are getting away for a bit. Have the best time ever!!! Lots of sunscreen and not too much alcohol (protect that goofy liver!)

Hope you can post a photo or two when you get back. Will be thinking of you in some nice warm weather!

Love, Bev

Dear LeeT,

Good to hear from you. I am so sorry that you have to go thry this. I hope that you are going to have good time on the cruse.
I pray for you every day. Please keep going and be possitive.

Much love,
Mona

LeeT,

How are you? How the vacations vent. I hope that you have a good time and you doing better.

Much love,
Mona

I will second that Mona, hoping all is well with LeeT

In Harmony
CRguy

Lee, hope you had a wonderful cruise!! It would have done you a power of good I'm sure.....
Love and prayers
Clarabelle