LeeT, I see you're online!

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Bev G
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Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

LeeT, I see you're online!

Postby Bev G » Sun Apr 17, 2011 10:38 am

Hi Lee,

Lots of us have been so worried about you after the nightmarish week you had two weeks ago. I sure hope you are feeling a lot better! Do you feel like saying? I'm praying for you daily.

Much love, Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: LeeT, I see you're online!

Postby Mona » Sun Apr 17, 2011 11:01 am

LeeT,

I am also praying for you every day. How are you? I hope that you feel batter. Please let us know, but just if you up to it.

Much Love,
Mona
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

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LeeT
Posts: 178
Joined: Mon Jun 14, 2010 11:33 am
Location: Ontario

Re: LeeT, I see you're online!

Postby LeeT » Mon Apr 18, 2011 6:46 pm

Hi All,

Thank you for all your love and prayers, I have been keeping a quiet profile these days and more a lurker than an active particpant.
Things are going okay, CEA still rising, my eyes are very yellow and my liver is definitely not functioning well. It is still giving off a lot of fluid and I look 7 months pregnant, my feet/ legs have also started to swell so I have tree trunks where previously had skinny, skinny legs.
I go for chemo tomorrow (prayers that counts are good) as well as draining of my "baby"- I know this will just fill up quickly again but makes it more comfortable for me. Besides that been feeling pretty goo, energy levels are good but the whole leg/ belly thing makes it difficult to get around (esp after being at work for 6 hours and my feet are so swollen I can't walk.)

Hubby and I are going on a cruise next week, armed with all my pills, letter from Dr. and tons of insurance am determined to do as much as I can- with mandatory naps in the sun on deck....mmmm sun\


I will keep you all posted after tomorrow when we will decide to stick with FOLFOX or move to plan C.

Hugs all around
LeeT
Age31
Proud mamma of Rhys and wifey to Grant
Dx 29 April Stage IV mCRC cancer with mets on liver
18/05- Started FOLFIRI with Avastin

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: LeeT, I see you're online!

Postby Surroundedbylove » Mon Apr 18, 2011 6:53 pm

My thoughts are with you LeeT. I hope they can get things improved to the point where you can go on that cruise and have a pleasant time in the sun.

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

RixInPhx
Posts: 1904
Joined: Fri Oct 08, 2010 11:53 pm
Location: Phoenix

Re: LeeT, I see you're online!

Postby RixInPhx » Mon Apr 18, 2011 7:16 pm

Talk to your onc about a diuretic to reduce the tree trunks and ascites.
My onc put me on spironolactone (50 mg x2 daily) which REALLY reduced the fluid to the point I can rest comfortably and see that my legs and ankles do, in fact, have veins.
M 61, Dx 6/10 CRC st 4, unknown primary CEA 843
2 kg peritoneal mass, met to skull; no surgery
Various regimens of all CRC chemo drugs
Mets to lung 8/11 CEA 135
Folfiri/Erb/Ava 12/11 CEA 320
No progression 5/12 CEA 192

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CRguy
Posts: 10110
Joined: Sun Feb 10, 2008 6:00 pm

Re: LeeT, I see you're online!

Postby CRguy » Mon Apr 18, 2011 7:18 pm

LeeT wrote:Hubby and I are going on a cruise next week, armed with all my pills, letter from Dr. and tons of insurance am determined to do as much as I can- with mandatory naps in the sun on deck....mmmm sun..... Hugs all around


Thank you SO much for letting us know how things are going with you. The cruise sounds 100 % fabulous...Enjoy ! Please watch the "sun" a bit though 'cos some of the chemo and meds make us more sensitive to the UV. Good excuse to get hubby and the staff to wait on you hand and foot, ...you know..."Sorry I need to stay under the umbrella right now" :mrgreen:

(I hear you about the med insurance thing...don't get me started, but finally got a policy I was comfortable with and ventured south of the border 2 weeks ago...the wheels did NOT fall off... so might even do it again.)

Prayers and HUGE best wishes for good counts, good infusin' and megalicious happy cruisin'...!

In Harmony on the Journey, my Canajun sista'

Namaste
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Bev G
Posts: 5856
Joined: Thu Jan 07, 2010 11:19 pm
Facebook Username: Bev Golde
Location: Quechee, VT

Re: LeeT, I see you're online!

Postby Bev G » Tue Apr 19, 2011 4:57 pm

Hi Lee,

Thanks so much for posting. I'm so sorry that things are still very tough. I hope it goes well getting rid of your baby and that your liver function picks up, such a pesky organ! What wonderful news that you and your husband are getting away for a bit. Have the best time ever!!! Lots of sunscreen and not too much alcohol (protect that goofy liver!)

Hope you can post a photo or two when you get back. Will be thinking of you in some nice warm weather!

Love, Bev
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: LeeT, I see you're online!

Postby Mona » Wed Apr 20, 2011 8:56 am

Dear LeeT,

Good to hear from you. I am so sorry that you have to go thry this. I hope that you are going to have good time on the cruse.
I pray for you every day. Please keep going and be possitive.

Much love,
Mona
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: LeeT, I see you're online!

Postby Mona » Wed May 04, 2011 10:42 am

LeeT,

How are you? How the vacations vent. I hope that you have a good time and you doing better.

Much love,
Mona
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

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CRguy
Posts: 10110
Joined: Sun Feb 10, 2008 6:00 pm

Re: LeeT, I see you're online!

Postby CRguy » Wed May 04, 2011 12:25 pm

I will second that Mona, hoping all is well with LeeT

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

clarabelle64
Posts: 1022
Joined: Sat Nov 14, 2009 2:27 pm
Facebook Username: claire beaumont

Re: LeeT, I see you're online!

Postby clarabelle64 » Wed May 04, 2011 2:17 pm

Lee, hope you had a wonderful cruise!! It would have done you a power of good I'm sure.....
Love and prayers
Clarabelle
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011


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