Things have been hectic and scary around our house. Larry just hasn't been doing well. Last Monday was chemo day, but he wasn't physically ready for chemo again. Counts were whacked, still had no energy, still fighting mouth sores, strange pain in his leg.....so we decided to give him a week and try again. On Wednesday we found out that he had a blood clot in his leg (thus the pain), but it was in a superficial vein, NOT a deep vein. So, they sent him home with instructions to take 800 mg of Ibuprofen 3 times a day for three days, and not mess with his Coumadin dosage. This seemed to help the leg pain, and we thought things were going well. On Friday I noticed some swelling in his face and hands, but didn't think much of it. Yesterday, it became much more pronounced. And Larry is back in the hospital with a blood clot in the superior vena cava, below his port. He had this about this time last year, too.... interesting thing is that oncologist had just cut his Coumadin from a therapeutic level to a maintenance level 3 weeks ago. Guess Larry is one of the "lucky" ones who will have to remain on therapeutic Coumadin.....
His CEA has been rising steadily. Doubled, then doubled again. Waiting to hear what it is now.......definitely going to need to re-scan and see what our options are. Although, right now, he can't physically handle chemo of any sort......
The kids are scared. I'm exhausted. Larry is .......I don't know how he is. We are just kind of on auto pilot. As I crawled into bed at 3 am this morning, for the first time ever, I was very cognizant of the fact that Larry wasn't beside me, and I had a meltdown. Looking ahead to the future.....wondering..... crying.....praying........ I can't even let my mind go there, but last night, I couldn't stop it. And cried myself to sleep, and slept for 5 hours, and now feel better.
Please friends, pray for us. For strength. For the faith to get through these days. For the children.....they are just......breaking my heart. They try so hard to be brave. But they are really seeing some physical changes in their dad, and reality......just pretty much sucks.....
Will update when we know more. We covet your prayers and good wishes. We just want more time. Good time. Please, pray with us for time.....
Wife to Larry, Stage IV Colon Cancer, with mets to liver
Diagnosed 1/10 at age 44
Folfiri + Avastin 2/10 to 7/10
Liver resection and ablation 9/10
Numerous mets to lung and liver 1/11
Folfox + Avastin 2/11 to 6/11
Folfiri + Vectibix 6/11 to ???