Update on Larry

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Anji
Posts: 506
Joined: Mon Jun 14, 2010 12:07 pm
Facebook Username: pray for larry edge
Location: Kentucky

Update on Larry

Postby Anji » Sun Apr 17, 2011 9:58 am

Things have been hectic and scary around our house. Larry just hasn't been doing well. Last Monday was chemo day, but he wasn't physically ready for chemo again. Counts were whacked, still had no energy, still fighting mouth sores, strange pain in his leg.....so we decided to give him a week and try again. On Wednesday we found out that he had a blood clot in his leg (thus the pain), but it was in a superficial vein, NOT a deep vein. So, they sent him home with instructions to take 800 mg of Ibuprofen 3 times a day for three days, and not mess with his Coumadin dosage. This seemed to help the leg pain, and we thought things were going well. On Friday I noticed some swelling in his face and hands, but didn't think much of it. Yesterday, it became much more pronounced. And Larry is back in the hospital with a blood clot in the superior vena cava, below his port. He had this about this time last year, too.... interesting thing is that oncologist had just cut his Coumadin from a therapeutic level to a maintenance level 3 weeks ago. Guess Larry is one of the "lucky" ones who will have to remain on therapeutic Coumadin.....

His CEA has been rising steadily. Doubled, then doubled again. Waiting to hear what it is now.......definitely going to need to re-scan and see what our options are. Although, right now, he can't physically handle chemo of any sort......

The kids are scared. I'm exhausted. Larry is .......I don't know how he is. We are just kind of on auto pilot. As I crawled into bed at 3 am this morning, for the first time ever, I was very cognizant of the fact that Larry wasn't beside me, and I had a meltdown. Looking ahead to the future.....wondering..... crying.....praying........ I can't even let my mind go there, but last night, I couldn't stop it. And cried myself to sleep, and slept for 5 hours, and now feel better.

Please friends, pray for us. For strength. For the faith to get through these days. For the children.....they are just......breaking my heart. They try so hard to be brave. But they are really seeing some physical changes in their dad, and reality......just pretty much sucks.....

Will update when we know more. We covet your prayers and good wishes. We just want more time. Good time. Please, pray with us for time.....

Anji
Anji
Wife to Larry, Stage IV Colon Cancer, with mets to liver
Diagnosed 1/10 at age 44
Folfiri + Avastin 2/10 to 7/10
Liver resection and ablation 9/10
Numerous mets to lung and liver 1/11
Folfox + Avastin 2/11 to 6/11
Folfiri + Vectibix 6/11 to ???

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LeeT
Posts: 178
Joined: Mon Jun 14, 2010 11:33 am
Location: Ontario

Re: Update on Larry

Postby LeeT » Sun Apr 17, 2011 10:24 am

Oh Anji, I am sorry to read your pain. At least they were able to dx the blot clot and hopefully resolve it quickly. My thoughts and prayers are with you and Larry and kids.
LeeT
Age31
Proud mamma of Rhys and wifey to Grant
Dx 29 April Stage IV mCRC cancer with mets on liver
18/05- Started FOLFIRI with Avastin

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Russian27
Posts: 490
Joined: Sun May 17, 2009 9:47 am

Re: Update on Larry

Postby Russian27 » Sun Apr 17, 2011 10:50 am

Anji my prayers and positive vibes go your way!
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

Mona
Posts: 910
Joined: Wed Jan 19, 2011 10:27 am
Facebook Username: maria kucharek
Location: NY

Re: Update on Larry

Postby Mona » Sun Apr 17, 2011 10:58 am

Sorry you have to go through this difficult time.I am with your family. Prayer's and positive thoughts are with you.

Mona
At age 46 DX 7/21/10 Stage 4 colon cancer with mets to the liver.
8/10 Folfox 6 tx
11/10 Colon/liver resection 1/29 nodes
12/10 Folfox 6 tx, NED
3/11 chemo done
11/11 recurance liver
12/11 liver resection/Hai pump
01/12-07/12 Fudor/Folfiri

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waw4
Posts: 838
Joined: Sun Sep 12, 2010 8:44 am
Location: Durham, NC

Re: Update on Larry

Postby waw4 » Sun Apr 17, 2011 10:59 am

Sounds like rough conditions and a tough time for all of you - my prayers for you, Larry, and your children.
Bill, 68 yr. old male, m. w/2 grown daughters
Colonoscopy 6/29/10; Dx Stage I or II
Colon Resection 7/15/10; Dx Stage III
FOLFOX4 start 9/14/10; end 1/20/11 (9 tx)
Grateful for 2nd Chance NED time!

AQHA girl

Re: Update on Larry

Postby AQHA girl » Sun Apr 17, 2011 11:11 am

Anji and Family ... Healthy energy, positive thoughts and strong prayers coming from South Dakota.

Rosie

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aussielones
Posts: 403
Joined: Mon Jan 24, 2011 6:17 am

Re: Update on Larry

Postby aussielones » Sun Apr 17, 2011 12:24 pm

Thinking of you and sending lots of prayers...what a cruel disease this is. Remember what cancer cannot do- it can't destroy love or the spirit. Be strong even though it's hard.
31y/o
Dx 24/9/10
Cecum, liver, LN, lungs
Sg IV C.C inoperable
Folfiri, Xeloda ,FOLFOX. More FOLFIRI
Regorafinib nearly killed me. But I'm still alive! LOVE BEATS CANCER

simon031003
Posts: 553
Joined: Mon Jan 17, 2011 10:17 pm
Location: Central Texas

Re: Update on Larry

Postby simon031003 » Sun Apr 17, 2011 1:09 pm

Anji,

My prayers are with all of you. My heart is breaking for both you and the kids. I hate, hate this cancer. I wish I had the magic words to say to make everything all better, but there are no words. There is absolutely nothing anyone can say to make the pain go away. You are such a woman of faith and everyone of your posts show that. Just remember God won't give you more than you can handle. Give it God and let him take care of it. I know from personal experience that it is very difficult to not take it back from him, but if we truly give it all to him that load is lifted from our heart. Give Larry a big hug and kiss. I hope he is doing better today.
Michelle wife of Esteban
T3N1M0 12/31/10
Folfox 2/22/11
9/19/2011 confirmed cancerous lymph nodes via biopsy; started FOLFIRI with Avastian turned into FOLFIRI with Ebritux now FOLFIRI w Vectibux 12/12 mets to liver and pancreas
2/17/13 resting in Heaven

Mojo
Posts: 729
Joined: Sat Mar 26, 2011 1:43 pm

Re: Update on Larry

Postby Mojo » Sun Apr 17, 2011 2:00 pm

Anji, praying for your strength to handle everything, and praying for Larry and the kids. Take it an hour at a time. I am walking same path, hsbds cancer progressing. Find joy in the smallest things and never give uo hope. Sharon
colon cancer stage 3 2n0mets 2002
cancer returns march 2010
emerg brain surgery, chemo may 2010 sterotactic radiation april 2010

progression of tumors march 2011 new chemo camptosar leukovorin 5fu avastin
Kenny age 58/died 11/21/11

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Update on Larry

Postby Kathleen808 » Sun Apr 17, 2011 2:15 pm

Oh Anji,
My heart breaks for you my friend. I wish I could hug you and let you cry it all out. I can commit to praying for you and I will continue to do so. I am praying for strength for you that the Lord will sustain you and give you the strength and courage to keep walking forward. I am praying for time. I am praying for Larry and your precious children. I know you are strong Anji, but let God and those around you carry you through this hard time.

Aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

eve
Posts: 188
Joined: Mon Jul 26, 2010 10:56 am

Re: Update on Larry

Postby eve » Sun Apr 17, 2011 3:30 pm

Anji, my heart goes out to you and your family. Sending you my warmest thoughts and prayers. Eve.
2009 Dad (age 66) CC stage IV
FOLFIRI+Avastin
Xeloda-Avastin
December 2012 liver resection
March 2013 lung liver mets
Xelox and Avastin
Xeloda and Erbitux
My lovely dad passed July 2014

BTW please forxgive mistakes, my english is far from perfect.

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GreenLakeGirl
Posts: 771
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: Update on Larry

Postby GreenLakeGirl » Sun Apr 17, 2011 3:39 pm

My thoughts are with and Larry.
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

Surroundedbylove
Posts: 3124
Joined: Tue Dec 16, 2008 6:43 am
Location: Seattle

Re: Update on Larry

Postby Surroundedbylove » Sun Apr 17, 2011 5:10 pm

Anji,

My heart goes out to all of you. My thoughts and prayers are with you.

SBL
Surroundedbylove

Rectal Cancer @ 43, '08
Clinical: T3,N2a,MX (IIIB)
6 wks XELOX & radiation
LAR, colonic j-pouch, & temp ileo '09
Surgical: ypT3,ypN0,ypMX (0 of 20 nodes)
FOLFOX; XELOX
Ileo Takedown ‘09
LARS for 10 years before learning it is finally being studied
InterStim Sacral Nerve Neuromodulator 2019

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chrissyrice
Posts: 1171
Joined: Thu Sep 23, 2010 8:44 am
Location: Atlanta, Georgia

Re: Update on Larry

Postby chrissyrice » Sun Apr 17, 2011 6:32 pm

Praying for you and your family... also praying for a retired firefighter in hospice now. Very hard for everyone involved and I wonder how you manage each day, Anji.

I hope that you will have comfort and peace and hope.

Chrissy
DX 10-31-09 Surgery 12-1-09 Sigmoid Colon
Stage IIIb T3,N2,MX; Chemo Feb 2010-Aug 2010; 4 rounds Folfox; 8 rounds 5FU +LV
12/2010 PET/CT Scan, Cancer Free
7/2012 CT Scan NED 2 years
10/2013 NED 3 years
8/2014 NED 4 years
Recurrence 6/2015: iliac lymph node(s)
8/2015 Surgery: 3 cm tumor removed+iliac artery graft
3/2016 CT Scan Stable
6/2016 Stable
9/2016 Stable
12/2016 Stable
3/2017 Stable
Recurrence 6/2017
12/2017 Surgery removed all cancer w/ clean margins
07-27-2018 Cancer-free for 7 months

xharryx

Re: Update on Larry

Postby xharryx » Sun Apr 17, 2011 6:58 pm

god bless you and your family and may he give you the strength to get thru these trying times. hoping your husband gets better soon and they dont find any more cancer to deal with.


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