Wives of husbands with Stage IV Colon Freaking Cancer

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SarahS
Posts: 40
Joined: Sat Mar 11, 2017 12:44 pm

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby SarahS » Wed Jun 14, 2017 8:17 pm

Best wishes Lena,

All the very best positive vibes coming your way :D
Wife and caregiver to husband diagnosed with stage 4 colon cancer Nov 2016
Emergency surgery to remove blockage in cecum 12/03/2016
Stage 4 colon cancer. Mets to liver, peritoneum, possibly lungs
K-Ras mutant MSS
01/05/2017 Begin Folfox 6 plus Avastin
CEA pre surgery 114, post surgery 70, 02/2017- 35 03/2017- 23 04/2017- 12

inorganic8
Posts: 20
Joined: Mon Feb 27, 2017 6:13 pm

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby inorganic8 » Thu Jun 15, 2017 9:34 am

"Don't nobody bring me no bad news..."
-The Wicked Witch of the West (The Wiz)

You are both in my prayers Lena. Hang in there. DH and I got really good news from our scan yesterday. I hope that positive vibe multiplies and includes you and our DH. (More details later, right now, let's focus on you.)
Wife to wonderful man with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17, completed 9 rounds
Follow-Up PET 4/13/17 - Very encouraging. Definite shrinkage and 2/3 liver mets resolved.
Follow-Up PET 6/13/17 - Very encouraging. Even more shrinkage.
Folfiri 6/14/17

User avatar
LPL
Posts: 222
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby LPL » Thu Jun 15, 2017 11:11 am

Thank you, jhocno197, Sarah & Kim
for your "No bad news" vibes and prayers.
It worked :!: They did not find anything bad on the ultrasound and hubby was told "vacation" again until next check up in 3 month. We are both very Happy :D :D and will now start packning for our trip to be at our daughter's wedding.

Kim, Please share your good news! :D

Again Thank You all !
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

SarahS
Posts: 40
Joined: Sat Mar 11, 2017 12:44 pm

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby SarahS » Thu Jun 15, 2017 12:35 pm

That's fantastic news Lena

Here's to many more good scans

Enjoy that wedding :)
Wife and caregiver to husband diagnosed with stage 4 colon cancer Nov 2016
Emergency surgery to remove blockage in cecum 12/03/2016
Stage 4 colon cancer. Mets to liver, peritoneum, possibly lungs
K-Ras mutant MSS
01/05/2017 Begin Folfox 6 plus Avastin
CEA pre surgery 114, post surgery 70, 02/2017- 35 03/2017- 23 04/2017- 12

inorganic8
Posts: 20
Joined: Mon Feb 27, 2017 6:13 pm

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby inorganic8 » Thu Jun 15, 2017 1:48 pm

Let's hope this is the start of a tidal wave of good news for everyone.

DH had a PET scan on Tuesday. The cancer is continuing to retreat under the onslaught of Folfirinox. There was as much, if not more reduction between April and June as there was between February and April. I think we're getting closer to resectable and maybe HIPEC. He's had nine total cycles of Folfirinox. Our onc is removing the Oxiliplatin due to neuropathy, so he had just the Folfiri this week. I really don't see that setting us back any, but two more months and we'll get another scan. We are definitely headed in the right direction.

Lena, enjoy the wedding. I hope your daughter is marrying a wonderful person who will be a positive addition to your family.

Sarah, I believe I read earlier, up-thread, that the MSK visit didn't turn out quite how you'd hoped. I too built up huge and unrealistic expectations for our Wake Forrest visit, so I understand feeling let down. I hope you still got good info and that you can see the positives from the trip now that you've had some time to digest it.

Melissa, what's going on with you?

jhonco197 and ronswife, keep hanging in there. We are here for you, sisters.

-Kim
Wife to wonderful man with CRC
Stage IV Diagnosis 1/27/17, Mets to Liver, Omentum, Peri
KRAS Mutation, G12, MSS
Folfirinox 2/8/17, completed 9 rounds
Follow-Up PET 4/13/17 - Very encouraging. Definite shrinkage and 2/3 liver mets resolved.
Follow-Up PET 6/13/17 - Very encouraging. Even more shrinkage.
Folfiri 6/14/17

User avatar
LPL
Posts: 222
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby LPL » Thu Jun 15, 2017 2:21 pm

Inorganic8/Kim wrote:
Let's hope this is the start of a tidal wave of good news for everyone.

Yes yes Please I hope so !!!
Wonderful to hear your positive news :D
and I hope it will continue and give yet another great scan in 2 months time.

About my dear son in law to be.
That is a fantastic story! Almost unbelievable!
His mother and I meet on Internet (an Osteoporosis forum). We became 'soul sisters' and meet in real life in USA 2014. Some month later her son was traveling to Europe and included was a visit to the town where my 3 kids live. I asked them to Please(!) invite him to a dinner and show him the town & nightlife. My kids said: Sigh!! Mom we don't know him! But finally they agreed. A dinner was arranged at my oldest daughter's home and my friend's son arrived. I think like 10 min later they fell in love :wink:
Our kids called us "Wing-moms of the year" :lol:
(Unfortunately there is a Very Sad part in this story and that is that my soul sister got cancer (this hated disease we all know) and she died last year the same week as my DH was diagnosed :cry:)

Now I really need to start packing :!:
We are leaving tomorrow morning.
Hugs
Lena
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

SarahS
Posts: 40
Joined: Sat Mar 11, 2017 12:44 pm

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby SarahS » Mon Jun 19, 2017 2:45 pm

Kim- I have been meaning to respond to your last post for days now, but I am sure you know how it is when you are dealing with a loved one with cancer, nothing quite goes as planned

Yes , I don't know exactly what I was expecting at MSK, maybe that the doc would bring a bottle of the shelf and say, "we have the cure for your specific cancer right here" or something daft like that.
I was disappointed at the time, but as you say in retrospect it was a positive experience becasue the doctor we saw there just confirmed that what my husband is doing is working and is the right path to take for now.
Wife and caregiver to husband diagnosed with stage 4 colon cancer Nov 2016
Emergency surgery to remove blockage in cecum 12/03/2016
Stage 4 colon cancer. Mets to liver, peritoneum, possibly lungs
K-Ras mutant MSS
01/05/2017 Begin Folfox 6 plus Avastin
CEA pre surgery 114, post surgery 70, 02/2017- 35 03/2017- 23 04/2017- 12

mhf1986
Posts: 22
Joined: Sat Mar 11, 2017 8:30 pm
Location: near DC

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby mhf1986 » Wed Jun 21, 2017 7:53 pm

Lena, SO happy for you! Go buy some new dancing shoes and have a wonderful time at the wedding.

Sarah, sorry MSK wasn't what you needed. Sending you some prayers that you will find the answers you seek.

DH continues chemo. Almost didn't last week as neutrophils were down to .9 during the blood test Friday morning but had increased to 1.1 Tuesday morning during doctor meeting (hospital is 75 minutes away so we usually do testing elsewhere; obviously didn't work this time as it was too early). CEA back down to 12. Doc was not excited to discuss spheres or proton so after CT scan in late July or early August we are going to talk to a specialist in that area. Interested in reducing tumor burden in liver as much as we can.

Hugs to all, M
Caregiver to DH, dx age 50, mets to liver, MSS, KRAS wild
10/16: hemicolectomy, colostomy, CEA 114
11/16: FOLFOX started, Avastian added 12/16
2/17: CT scan shows 1 liver tumor shrinking, CEA 31
4/17: CEA 11, blood pressure medicine added
5/17: 1mm growth to lung nodes? liver stable, CEA 15, OX discontinued due to neuropathy
6/17: CEA 12

justbreathe
Posts: 1
Joined: Thu Jun 22, 2017 10:01 am

Re: Wives of husbands with Stage IV Colon Freaking Cancer

Postby justbreathe » Thu Jun 22, 2017 10:49 am

My husband was diagnosed June 2016 with Stage IV CRC with mets in lung and liver. He saw a Radiologist and a Surgeon and they seemed to think if the tumor would shrink the surgeon would be able to remove the main tumor. The oncologist said his cancer was treatable, not curable and their wouldn't be any surgery. I asked what kind of time frame he had if he wasn't treated and the doctor said about three months. That answer was not acceptable since my husband didn't want any part of chemo so I set up an appointment with another doctor for a second opinion. The diagnosis was the same (except the time frame) and he talked my husband into chemo. After 12 rounds of 5-FU the tumors in his lungs and liver were shrinking. The Oncologist is still not optimistic about surgery since there are still spots in the lung and liver but they have decided to do a combination of radiation and Xeloda to give him some relief from the bleeding and the symptoms that come with it. The main tumor in his rectom has doubled in size but there is no blockage.
My husband is 52 years old and I feel like I'm watching him slip away. I feel like we are going through the motions of everyday life but not getting anywhere. We are still standing in the first doctors office with the initial diagnosis. Other than the cancer my husband is this big strong opinionated guy that just wants to get back to his life.
I try not to let him see me get discouraged and I keep looking for another direction but keep hitting walls. How do I help him and keep my sanity? I'm not one for joining forums and talking to strangers but I could use some advice.


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