Update on just a bunch of little things

[NWgirl]

Love the quote. Best of luck with your next round of chemo. Extra hugs for Lilli.

[tammylayne]

The time sure does fly...seems like just yesterday you were doing round 8!! They are flying by, and heres hoping for a nice quiet uneventful one letting you get some zzzzzzzz!!

And your little one is a real cutie patootie!!!!!!

Tammylayne

[jmarie]

I have a room, this place is a madhouse today. Seems all my fellow patients on this floor are in bad shape . Being on an oncology floor that is somewhat expected but quite a few patients seem to be in crisis mode all at once. So nurses are running everywhere, I don't expect my chemo anytime soon since I am (gladly)not in crisis mode.

My BP is extremely high and I feel like crap, 142/99. I don't know how anyone lives with untreated high BP, I feel like my heart is about to jump out of my chest. If they don't get it back down in the next few days I am going to refuse Avastin. I feel like it has helped me greatly but the high BP isn't worth it. Since I don't have any other cold symptoms but the sore throat I haven't felt the need to take any cold meds. My Great Grandfather died when he took cold medicine and BP meds, so I know to be very careful.

After the dipstick said +4 protein they sent out for a urine protein test on the 6th and 12th, both were normal. They think they had some bad dipsticks , they had a few patients with bad tests that were completely normal on the test that was sent out.

Thanks for all the well wishes, you all know I would be lost with out you!

[hopeful]

Lilli is so cute! Her hair is getting longer and she looks more like a little girl than a toddler now, at least in that picture.

I love neti pots! It's the one thing that seems to work when my nose is stuffed up or during allergy season. It also seems to help when it's really dry in the house from having the heat on. I was surprised the first time I tried one about 3 years ago how easy it was and how well it works.

Maybe the supplements are what is helping you to feel better this time around. I hope they help in some way with the whole battle as well. You just never know what might help.

Praying this chemo is uneventful and that you're back at home soon.

[Cj51]

Your Lilli is ADORABLE! What a cutie!!
Hope that your treatment is going uneventfully today.

cj

[jmarie]

Ahhhhhh....

Benedryl IV

nap time

[Terry]

Jess, I'm so happy your hear with her too! She's so adorable, I love her curls:)

Good luck with this chemo round (I like your tour de france' reference:) I will say a prayer for everything to go well and for it to work it's magic on that cancer.

Can you pm me what supplements your taking. I need energy and now that I'm off everything I'm all for supplements. When you have time, no hurry and thanks!
Terry

[Molly23MN]

Happy birthday to Lilli! She looks like a sweet girl. I hope this round of chemo treats you well and that they can find a way to lower your blood pressure.

[blakeswife]

Hope everything is going well, Jess! Your daughter is absolutely adorable!

FWIW, Blake had to go onto blood pressure medicine as well and it was probably from the Avastin. The medicine is called Bystolic and it has worked wonders. It lowered his BP and his pulse rate. You may want to mention it because it's not a drug commonly prescribed ..... maybe because it's new, I dunno.

Anyway, hope you're enjoying a nice chemo cocktail!!

Kathy

[Surroundedbylove]

I love the picture - cute, cute little girl. Glad you're there with her too!

SBL

[jmarie]

My body tolerated chemo for #9, I am over at the clinic getting more premeds and 5FU. Last night was a long night, the guy in the next room had a very rough night which puts a lot of things in perspective. His alarms went off for nearly 2 hrs straight(3am-5am). He was so disoriented, had no family or familiar faces there with him to explain. From what I could hear he kept pulling out his tubes and monitor sensors, couple times he yelled for a urine container(blank on the actual term) even though he had a catheter. He did try to pull the catheter out. It was sad and very sobering. I am so thankful I haven't been in that position. By the time all this drama was over I was wide awake and asked for some Benedryl, once I was sleeping good the tech insisted on opening the blinds and getting my vitals which I know they don't need at that point or they would keep me on the monitor. Than she leaves the blinds open By the time I get back to sleep its already 7 and I had wanted to check out at 8am. I slept until 9am, so by the time I get cleaned up, dressed, fed and over to the clinic its 10am. An hour and a half later than I wanted. Not a real big deal, just annoyed

BP is very high again. My Onc wants me to see my PCP for the BP, kind of annoyed by that. I am already here for chemo, why can't he have my nurse call in a Rx? I am sure he has good reasons, just don't feel like going to another appt today. I am guilty of using my Onc as my PCP, after more than two years since dx I have only seen my PCP for a flu shot. I know it is best to have a PCP in my team, just tired of docs I do love my Onc, he has been wonderful through all this I am just annoyed right now. Being annoyed seems to be the theme for the day , probably just lack of sleep and now with even more steroids I won't be able to sleep. My Onc did say we would hold Avastin until my BP is under control.

On a good note, no sore throat this morning. Looks like what ever caused the sore throat couldn't take the heat from Oxi .

Thanks for the prayers and positive thoughts!
Jess

[hopeful]

Jess, after spending a good part of the night awake and having the chemo take so long, I would be more than annoyed at being told to go your PCP for an RX for the BP. I suppose, like you said, it's good to have your PCP in on your overall care, but having to show up for another appointment right after the night you had..... I think you're very patient!

[azahar]

What an ordeal! But so many good things too.

Really hoping for the best.

[aellis]

Loved the picture of your little one. Sorry she didn't feel well for her birthday. I seem to keep a sore throat alot but I think also that it is side effect of the chemo. my nose runs like a faucet all the time and my eyes water continuesly. sure that is not spelled right. I am taking the avastin also but so far have not had any problems with my bp. Glad to hear you have made it through #9 without many complications.

[Ladybug]

I hope that your PCP figures out the bp- and then you can just be done messing around with all of this! Also- I'm sorry you had such a rough night. I don't know why they can't have some respect for the fact that- yes- they need to get your vitals- but- you're SLEEPING! I would be oh-so-much more grumpier if I had a night like that!

I'm glad that the chemo went okay! On to #10!

I hope that you have a good weekend!