Postby Terry » Wed Oct 06, 2010 1:14 pm
So I had my PET scan last week. I called yesterday and they said it will be at least a week. I usually get them in about 3 days. My husband said enjoy the indian summer and don't think about cancer for a week. That's exactly what I decided. If it's bad news I don't need to hear it until next week, if it's good, then I'll be really happy next week.
I saw my surgeon yesterday and he suggests (depending on the scan) that I have the cardiothoracic surgeon go in and take out the lymph node that keeps coming back and whatever else he finds. Recover from this surgery and then he wants to go in and take out whatever he finds and give me a permanent colostomy. I have one lymph node in the sacrum that is half necrotic. It was gone for about 9 months and then showed up this past May along with one in the chest. He said this is the only way to be sure that the cancer doesn't spread to the tailbone (very, VERY painful). This really scares me. If I knew this was my best chance for survival, I'd do it, but HOW do I know this. My other option is (depending on the PET) to have some type of radiation, tomotherapy, steriotactic radiation, etc.
I really hate all these decisions!
Please pray that the Lord leads me into the right direction.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!