John603 has passsed away

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John603 has passsed away

Postby John603 » Fri Aug 20, 2010 8:07 am

I am so profoundly sorry to bring you this news. John lost his battle with this horrible disease last week. He gave it his all for three years and seven and a half months. He was at home with me, as was his wish. Hospice was more helpful than we ever imagined they could be. His family has been unbelievable with me and the children.

He thought of this group as an extended family and wanted me to let you know that. He loved helping every one of you. I wish I had his bank of knowledge so I could answer your questions, but I don't. He was so very intelligent. And so amazingly funny. Never lose your sense of humor, he would want me to tell you all that.

His wish for all of you is that you fight long enough to be the ones to benefit from better treatments, or even a cure. He did feel that there were several things being studied that had great promise. That is why he fought so hard, so he could be here to see any one of them make it to the patients. So, I too hope that all of you fight and see that day, a day that I hope comes very soon.

Take good care of yourselves and of each other, John would want that.

Live well,

John's wife, Linda

Dx Stage IIIC (14 of 36 LNs +) Jan 07, age 42
Colectomy Jan 07
Folfox + Erb'x Mar 07
Recurrence in Lymph Nodes Feb 08
Folfiri + Avastin Apr 08
NED Dec 08
Recurrence in lungs & pelvic LNs May 09
Folfiri/Avastin May 09 - Nov 09
Erb'x/Irino Dec 09

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Re: John603 has passsed away

Postby Phuong » Fri Aug 20, 2010 8:15 am

Oh Linda, I'm am so very sorry. I'm at a loss for words as anything I could say would be so insignificant compared to what you are going through. John was a great inspiration to many of us and I'm glad that he had his last days at home with you. Our hearts are with you in this great time of grief.

dx'd Stage III Rectal (T3 N1 M0)
Now Stage IV mCRC

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Re: John603 has passsed away

Postby lisab3897 » Fri Aug 20, 2010 8:16 am

I am so very sad to hear this....He has been on my mind for weeks and always in my prayers.
rest in peace.

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Re: John603 has passsed away

Postby SkiFletch » Fri Aug 20, 2010 8:19 am

Oh Linda, I'm so sorry to hear this. Even when we expect it, there is a terrible loss here. John was a fantastic man indeed, so helpful, welcoming, and funny as hell :). We will miss him tremendously. I'm glad Hospice was able to assist you and your family, they can be such a blessing. In the end, let me say that my thoughts and prayers are with your family as you grieve and I hope his passing can be bearable for you. Take care Linda and remember we will always be here for you.
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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Re: John603 has passsed away

Postby jenhopesprays » Fri Aug 20, 2010 8:20 am

Dear Linda,

We could all see the John was a beautiful man. He was always helpful and kind.

I am so sorry for your loss.

Very sincerely,

Stage IV: dx 8/07 at 39.. colon & liver resection & rt ovary
17 rounds of folfox.
12/08 ovary tumor removed with HIPEC & folfiri w/Avastin
9/11 liver resection # 2 followed by chemo

Have Hope with Capitol H

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Re: John603 has passsed away

Postby bayqueen » Fri Aug 20, 2010 8:24 am

I am so sorry for you and your family's loss.
You are in my prayers.
Sue 49 yr.
Diagnosed 1/29/09
Finished 6 wk. 5FU Pump
& Radiation 3/26/09
Temp. Illeostomy 6/18/2009
Margins clear 4/4 Nodes Negative
10/28/09- 6 mo. Folfox
Reversal 5/14/10
Petscan 12/3/10 NED
Port Removal 12/17/10

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Re: John603 has passsed away

Postby cnorton1960 » Fri Aug 20, 2010 8:26 am

So sorry for your loss. You and your family are in my thoughts!
[i][color=#008000][size=85]Diagnosed 6/08
Rad/Chemo 06-09/2008
Surgery 11/08-Stage IIA
Temp Illeostomy-R/V fistula
Tried 5x to fix fistula
Ileostomy rev. 12/2010
2nd ileostomy rev. 12/2011
01/2013-Turnbull Cutait procedure-Healed!
3rd ileostomy rev. 04/18/2013-All is good!

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Re: John603 has passsed away

Postby Russian27 » Fri Aug 20, 2010 8:27 am

Linda i am so sorry for your loss. John was an incredible human being.
Dx at 39(12/2008), Stage IV, omentum mets,
0/16 lymph nodes positive,
right colectomy 1/2009,
FOLFOX + avastin 2/2009-7/2009
Thank You Colonclub! 2015

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Re: John603 has passsed away

Postby Nanette » Fri Aug 20, 2010 8:36 am

I am so very sorry, Linda. I have been thinking and praying for John and your family. He was one of the first people to reply to my original posting when I first joined CC. He was an inspiritation to us all. He will be sorely missed. I loved reading his posts. He was an intelligent man and had a great sense of humor. I'm sure he's giving great advice up in heaven! :)

John was very lucky to have you and even though it's hard to lose someone you love, he is at peace now.

Linda ~ know we are here for you if you ever need to talk.

My condolences to you and your family...
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

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Re: John603 has passsed away

Postby cgen521 » Fri Aug 20, 2010 8:36 am

I am so sorry for your loss. May John rest in peace.
Mom diagnosed 2/09-Stage 11A colon
Folfox-4 cycles-Folfiri-8 cycles
NED 02/09

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Re: John603 has passsed away

Postby LMG » Fri Aug 20, 2010 8:42 am

Dear Linda and family, I am so very sorry to hear this news and my heart breaks for your family. I have read so many of Johns posts and they were always so inspirational and helpful to everyone here. When I think of the Colon Club, he is always one of the first people I think of and I will miss seeing his wonderful words of wisdom. This is a very sad day.

May your wonderful memories bring you comfort in the difficult days ahead. You are all in my thoughts and prayers.

My deepest sympathy,
Lynn - age 52
(3 primary cancers since 2000)
Dx Aug/07 CC mets to liver + Abd. wall
32" of bowel removed /resected
24 LNs ckd/clear
18 rounds 5FU/Leuc/Irinitican
7 mth break chemo
Apr/09 3 mths 5FU, Oxil/Avastin
Stopped treatment by choice July/09

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Bev G
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Re: John603 has passsed away

Postby Bev G » Fri Aug 20, 2010 8:46 am

Dear Linda,

I send you love and my deepest sympathy at the passing of your beloved John. I can only echo what everyone has said. An amazing, compassionate, incredibly strong and intelligent man. He taught many of us "how to do it". I pray you and the kids wil find some peace during this terrible time.

Stop by anytime. You are well-loved here.

58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: John603 has passsed away

Postby BrownBagger » Fri Aug 20, 2010 8:48 am

One of the many things that impressed me about John was not only his honesty, but his optimism, which he seemed to maintain to the end.

We've all lost a good friend, and I know we all mourn his loss.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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Re: John603 has passsed away

Postby Guest T » Fri Aug 20, 2010 8:54 am

Dear Linda and Johns family,

Like everyone else I will miss him terrible. Please know that you are in our hearts and prayers. The colon club has lost a great family member. He was helpful to us all.

God Bless you and may God rest his soul.

Love Toni
Husband Rectal stage 3C 4-06
LAR 4-06
6 weeks Rad & Xeloda
Chemo Folfox 6 mos.
Hernia repair 10-07
NED Until 2-09
folfox/avastin June -09 - Dec-09
Surgery 2-19-2010
perforation another surgery 3-17-2010
Path report shows cancer still active

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Re: John603 has passsed away

Postby beccab1 » Fri Aug 20, 2010 8:55 am

My deepest sympathy to you and your family. I'm glad that hospice was able to help and that you have a strong support system through his family.

My husband, Eric, dx @ age 35
Stage IIIb RC (T3N1M0), 3/10
Finished 6 weeks rad/xeloda 5/10
Surgery 7/10, Lap LAR, Colonic J Pouch, Temp. Ileostomy
Xelox (5 rounds)
Takedown 12/13/10
Clear CT - 2011-2015

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