I am so profoundly sorry to bring you this news. John lost his battle with this horrible disease last week. He gave it his all for three years and seven and a half months. He was at home with me, as was his wish. Hospice was more helpful than we ever imagined they could be. His family has been unbelievable with me and the children.
He thought of this group as an extended family and wanted me to let you know that. He loved helping every one of you. I wish I had his bank of knowledge so I could answer your questions, but I don't. He was so very intelligent. And so amazingly funny. Never lose your sense of humor, he would want me to tell you all that.
His wish for all of you is that you fight long enough to be the ones to benefit from better treatments, or even a cure. He did feel that there were several things being studied that had great promise. That is why he fought so hard, so he could be here to see any one of them make it to the patients. So, I too hope that all of you fight and see that day, a day that I hope comes very soon.
Take good care of yourselves and of each other, John would want that.
John's wife, Linda
Dx Stage IIIC (14 of 36 LNs +) Jan 07, age 42
Colectomy Jan 07
Folfox + Erb'x Mar 07
Recurrence in Lymph Nodes Feb 08
Folfiri + Avastin Apr 08
NED Dec 08
Recurrence in lungs & pelvic LNs May 09
Folfiri/Avastin May 09 - Nov 09
Erb'x/Irino Dec 09