Stephen

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cindyz
Posts: 465
Joined: Mon Jun 29, 2009 9:17 pm

Stephen

Postby cindyz » Mon May 10, 2010 12:33 pm

I am typing through tears as I send you all the utterly sad message that Stephen passed away yesterday. I thought it was the thing to do, to tell you all as soon as I could. You've been so helpful and supportive. He died at home, where he wanted to be. I never left his side, and during the last 30 minutes or so his mom and dad also held his hands. I've never experienced anything like this.

I don't feel at times that I can breathe. Everything seems so surreal. There is a physical weight pressed against my chest and I just wander aimlessly around. I know counseling is a good thing, but it won't bring him back. Nothing will. And that's all that can make this better.

Our children were here. Our 13-year old Rainey was by his and my side pretty much throughout everything. She wanted to be here. Our 10 year old Reide didn't want to be around him as he was dying, so she kept her distance outside. We had plenty of friends and family around for her. Since then, they've both been painting nonstop, and we've been talking a lot.

I'm not sure what to do. I keep looking for him, looking for signs, looking not only to hear his voice but to make sure his voice is coming from him, not me. I am so utterly and intensely distraught. I miss my Stephen. I miss him.
Wife to Stephen, dx 5/13/09; 45 yo
Stage IV w/numerous mets to liver, 2 to LNs
Colon resection 5/25/09
Folfox/Avastin, Folfiri/Avastin, Folfiri/Erbitux-progressed
Sir Spheres 2/2/2010
Admitted to hospital 4/23/2010
Passed away 5/09/2010

jobasar
Posts: 429
Joined: Mon May 11, 2009 12:21 am
Facebook Username: Allie Genzer
Contact:

Re: Stephen

Postby jobasar » Mon May 10, 2010 12:50 pm

Cindyz,

I'm so sorry for your loss. I will pray for you and your kids to find some peace. I know you have been through a lot and so sorry to hear the sad news. I just wanted you to know that I have been reading and following your journey with Stephen. So sad and I'm glad he's not in pain anymore. Thoughts and prayers are coming your way.

Allie
dx. 12/24/08 w/stage 4 cc/1met to liver
C tumor removed on 01/02/09
Liver surg. on 04/09 clear margins
12 tx's chemo
9/09 NED
01/22/10/2 small lesions on rt. lobe liver.
Liver surgery 03/23/10/n
5/10, 8/10, 11/10, 5/11, 7/11, 9/11 NED

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Gaelen
Posts: 3833
Joined: Fri Jun 13, 2008 12:57 am
Location: CNY
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Re: Stephen

Postby Gaelen » Mon May 10, 2010 12:52 pm

Cindy - there are no words right now that will help you understand that time will keep moving, and that at some point, you will realize that you are moving forward in time. But when you hit that place, you will realize that you are living, and that continuing to live is the best tribute you can give to the love you shared with Stephen.

My condolences to your family, and my strongest thoughts to you and to your girls.
Be in harmony with your expectations. - Life Out Loud
4/04: dx'd @48 StageIV RectalCA w/9 liver mets. 8 chemos, 4 surgeries, last remission 34 mos.
2/11 recurrence R lung, spinal bone mets - chemo, RFA lung mets
4/12 stopped treatment

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dianetavegia
Posts: 2731
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: Stephen

Postby dianetavegia » Mon May 10, 2010 12:58 pm

OH Cindy, I am so very sorry to hear this news. This just breaks my heart. I hope you don't mind if I pray for you, the children and all those who loved Stephen so very much. Cindy, please KNOW that you fought hard and did all you could for Stephen during his illness and showed great love for your precious husband. We were all touched by your openness and willingness to share this battle with us.

God bring you comfort during this time,
Diane
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

14 years since dx and 11 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

veronica1919

Re: Stephen

Postby veronica1919 » Mon May 10, 2010 1:00 pm

Im deeply sorry.



Veronica
stage IV 9/26/09

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joeyooser
Posts: 1273
Joined: Thu Dec 17, 2009 6:43 pm

Re: Stephen

Postby joeyooser » Mon May 10, 2010 1:08 pm

Cindy, so sorry to hear of this. You guys really didn't catch much of a break throughout this whole trial. So many of us have been thinking of and praying for you. Thank you for letting us know.
Tim
Stage IIIc - 9/23 lymph nodes, poorly diff, 35yo father of 2.
Lap resection Jul 28 09 resulted in near-deadly leak
Finished chemo Feb '10; Takedown March '10;
Nov 2010 - carcinomatosis
May 2011 - Clinical Trial, failed out of trial, in hospice care

cgen521
Posts: 66
Joined: Tue Feb 03, 2009 8:18 pm

Re: Stephen

Postby cgen521 » Mon May 10, 2010 1:18 pm

I am so sorry for your loss. May Stephen rest in peace.
Mom diagnosed 2/09-Stage 11A colon
T3N0M0
Folfox-4 cycles-Folfiri-8 cycles
NED 02/09

ams5796
Posts: 2298
Joined: Fri Feb 06, 2009 10:07 am

Re: Stephen

Postby ams5796 » Mon May 10, 2010 1:18 pm

I am so sorry, Cindy. You and your family are in my prayers. Take comfort in the fact that you were an amazing wife.
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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Joanne 814
Posts: 871
Joined: Tue Jun 24, 2008 4:56 pm
Facebook Username: Joanne Flynn Hoerrner
Location: Farmington, CT

Re: Stephen

Postby Joanne 814 » Mon May 10, 2010 1:21 pm

So Sorry CindyZ. Thoughts and prayers to you and your family. May you have comfort knowing he was where he wanted to be.

ONWARD!

Joanne
Age: 51
Dx: Nov 07 @ age 43
Stage IIIC, RCa
Colon Resection: Nov 07, 4 of 27 LN
Chemo/Radiation: 28 treatments w/constant 5FU (Jan-Feb 08)
Chemo: Folfox, 12 cycles (Mar-Aug 08) DONE 8-8-08
CT Scan 1-09 NED

weisssoccermom
Posts: 5988
Joined: Thu May 10, 2007 2:32 pm
Location: Pacific NW

Re: Stephen

Postby weisssoccermom » Mon May 10, 2010 1:23 pm

Cindy,

I, too, am so sorry to hear of Stephen's passing but I am glad that he was able to be at home surrounded by his family and at a place where he wanted to be. There is nothing that can be said or done right now that will make any of this any better - nothing right now that will make any sense. From the way you've described your relationship with Stephen, he would want you and your children to realize that you will be able to carry on, that as Gaelen said, time continues to move forward and that you all have lives to life. That certainly doesn't mean that you don't miss him or that you don't wish he was there with you right now. But, I'm pretty certain Cindy, that you also wouldn't have wanted Stephen to suffer anymore and that the life he was living wasn't the life that either of you envisioned. I'm so glad that his parents were able to be there as well.

I truly can't imagine how difficult this is for you, but you do have two wonderful girls who also are grieving and who desperately need their mom. I'm sure Stephen would want you to make sure that you're there for your daughters and that the three of you can help and support each other through the difficult days ahead.

My prayers and thoughts are with you, your girls and Stephen's family. Please, Cindy, let us know if there is anything any one of us can do for you.

Jaynee
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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luciag
Posts: 24
Joined: Mon Sep 01, 2008 9:51 am

Re: Stephen

Postby luciag » Mon May 10, 2010 1:42 pm

Cindy.

I am so very sorry to hear the news of Stephen's death. There are no words to offer other than I am so sorry! Peace and blessings to you and your entire family.
[i]Lucia posting for DH Steve
Stage IIIC CRC dx 07/08
Right hemicolectomy 8/08
7/34 lymph nodes
FOLFOX6 09/08 to 2/09
NED - 02/09 and counting........

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blakeswife
Posts: 540
Joined: Sun Jul 26, 2009 5:55 pm
Facebook Username: kathy.mair
Location: Utah

Re: Stephen

Postby blakeswife » Mon May 10, 2010 1:50 pm

((((Cindy))))

There are no words right now that would adequetely express how sorry I am for your loss. All I can say is that I hope you find comfort somehow, somewhere. If that's posting on this board, I hope that's what you continue to do. Because as you said, for the most part, "we get it." You have a great ability to express yourself and I believe your experience and knowledge will be helpful to many in the future.

It's funny; when someone passes, you get a few seconds to grieve and then things turn into business. I'm sure that's what you're doing now; making funeral plans, paper work, etc. I wish you strength, peace & happiness in the love of family and in the warm embrace of friends - even "cyber" friends.

Take care my friend,

Kathy
DH Stage IV 10/07
Colectomy, Liver resection & RFA, 1/13 LN
12/07-5/08 Folfox/Avastin
7/09 recurrence-Peritoneum
9/09-12/09 Folfiri/Avastin
1/10-5/10 Xeloda/Avastin
9/10-current w/built in breaks

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Stephen

Postby NWgirl » Mon May 10, 2010 2:03 pm

Cindy - I am so, so sorry for your loss. One minute at a time - one hour - one day. You have been through so much. Sending you warm thoughts and healing prayers.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

girlnextdoor
Posts: 204
Joined: Tue May 19, 2009 2:44 pm

Re: Stephen

Postby girlnextdoor » Mon May 10, 2010 2:04 pm

Oh Cindy,

I have felt so utterly close to you as Stephen and my husband were on similar paths a couple of weeks ago. When their paths diverged, I no longer felt I could offer you anything but solace as you were entering unknown territory to me. Your postings have been so honest and I thank you for making this part of your life available to us.

Of course, I hope you and your girls will find peace.

Fondly,

Lisa
Husband, age 52, DX RC 8/2007
Stage III
5FU,Rad
Surgery (APR) 12/2007
FOLFOX
2 lung nodules 5/2008
HNPCC postive (MSH2 mutation)
Mets to lung 5/2009,lymph nodes
FOLFIRI, Avastin 7/2009
Xeloda 1/2010
Four children (18,15,12,11)

Lisa, loving wife

clarabelle64
Posts: 1022
Joined: Sat Nov 14, 2009 2:27 pm
Facebook Username: claire beaumont

Re: Stephen

Postby clarabelle64 » Mon May 10, 2010 2:29 pm

Dear Cindy
How sad you sound, I am so so sorry to read of your darling Stephen's passing. I have no words of comfort to offer you except please remember we are here and share your grief, lean on us when you need support. Thoughts and prayers to uphold you in your time of sadness.
Clarabelle
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011


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