Hoping for an update from Cindyz...

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KellyBelle
Posts: 811
Joined: Sat Jul 19, 2008 9:25 am
Facebook Username: Kelly Davis Keeling

Re: Hoping for an update from Cindyz...

Postby KellyBelle » Tue May 04, 2010 8:56 am

Oh Cindy,

You and Stephen will be in my thoughts constantly today. I'm so impressed with the advice and wealth of knowledge that has been shared with you here.

Warm, peaceful, healing thoughts headed your way,

Kelly
Diagnosed March, 2008
Stage IIIC
Colo-Anal Reconstructive Surgery April, 2008
Finished Folfox treatment November, 2008
NED! December 2008
NED! December 2011

Life is what we make it, always has been, always will be.
~Grandma Moses

lorrainem
Posts: 819
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Facebook Username: https://www.facebook.com/lorraineaminogue
Location: NY

Re: Hoping for an update from Cindyz...

Postby lorrainem » Tue May 04, 2010 9:16 am

I too have been following your journey. All I can offer is my best wishes for strenghth for you both. What a ride you've been on together.
Chemorad/Surgery/Chemo
Stage II, no mets, no nodes NED 05/08 again 08/08 again 11/08
Ileostomy reversal 10/16/08

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Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Hoping for an update from Cindyz...

Postby Kathleen808 » Tue May 04, 2010 10:24 am

Cindy,
I am thinking about you and Stephen today. I pray that the two of you get some peace. All my good thoughts are going to you.

With aloha and prayer,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

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Nanette
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Re: Hoping for an update from Cindyz...

Postby Nanette » Tue May 04, 2010 11:07 am

Hi Cindy,

I'm so sorry to hear about Stephen's setback. I hope they get to the root of the problem and you both can get some answers to get this under control.

Lisa - I'm glad your husband is home now, too, and he's on his way to feeling much better.

Sending tender thoughts, prayers and hugs your way...
-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

girlnextdoor
Posts: 204
Joined: Tue May 19, 2009 2:44 pm

Re: Hoping for an update from Cindyz...

Postby girlnextdoor » Tue May 04, 2010 12:01 pm

I am wishing and praying for the best outcome for you and Stephen today, Cindy.

Lisa
Husband, age 52, DX RC 8/2007
Stage III
5FU,Rad
Surgery (APR) 12/2007
FOLFOX
2 lung nodules 5/2008
HNPCC postive (MSH2 mutation)
Mets to lung 5/2009,lymph nodes
FOLFIRI, Avastin 7/2009
Xeloda 1/2010
Four children (18,15,12,11)

Lisa, loving wife

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sallya
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Location: Seattle, WA
Contact:

Re: Hoping for an update from Cindyz...

Postby sallya » Tue May 04, 2010 12:18 pm

Hi Cindy,

I'm sorry your discharge plans were changed. That must be so frustrating and discouraging. I am thinking about you and Stephen today and am I am hoping for some rest and some clarity on next steps for both of you.

Much love,

Sally
Wife of "Dom;" dx 7/3/09
Stage IV with 4 mets to the liver and ~25 affected nodes
Colon resection 7/6/09
Ileo 7/6/09
Starting Folfox + Avastin 8/13
www.dominicsally.blogspot.com

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hopeful
Posts: 1372
Joined: Mon Jan 04, 2010 11:43 am

Re: Hoping for an update from Cindyz...

Postby hopeful » Tue May 04, 2010 12:43 pm

Cindy, thinking and praying for you and Stephan today. Hoping things will calm down and he'll start to see improvement again.
Caregiver to husband diagnosed 11/09 stage IIIb colon cancer
Surgery 11/5/09
12 rounds FOLFOX beginning 12/18/09
Folfox finished 6/3/10
Last scan Jan 2015
NED since Dec. 2009

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Terry
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Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Hoping for an update from Cindyz...

Postby Terry » Tue May 04, 2010 1:11 pm

Oh Cindy I'm sorry what an ordeal your going through! I agree with the rest and see if you can set up appt. times for the docs to be in the room at the same time and have a list of questions ready. It sounds like you have to many docs not communicating with each other and if you have them together they will be able to make more of a collaborative decision. And get some of your answers done. They really need to find out if this perf. is healed before he becomes septic. He has a lot of symptoms of being septic already and that's not a good thing.

Your in my thoughts and prayers and I to will pray for wisdom for the docs.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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Hildar5
Posts: 107
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Facebook Username: Hilda Barraza Robles
Location: Monrovia,California

Re: Hoping for an update from Cindyz...

Postby Hildar5 » Tue May 04, 2010 1:58 pm

You guys are in my prayers and I hope for the best for your family..
Glad he will be home :)
God Bless
Hildar5
Dad Dx age 54 on 3-4-10
Colon Res.4-13-10
Rad 6/28 5fu off 7/5
Scan 4spots on liver and 1 on lung
7/23 Xeloda Oxi Avastin
9/20 PET showed lung spot gone & liver spots decr.
12/28 PETLiver Clear, Rectal tumor Clear,lung nod.Back 1/2 in.

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Ivona
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Facebook Username: Ivona Bradley
Location: Ottawa, Canada

Re: Hoping for an update from Cindyz...

Postby Ivona » Tue May 04, 2010 2:55 pm

Thanks for checking in. Keep us posted.
dx'd Oct '08 (age 48)
T3bN2Mx
9/23 LN's
resection Nov '08
Folfox Jan '09 - March '09
Xeloda March 24/09 - July 6/09

"Yesterday is history, tomorrow is a mystery, but today is a gift. That is why it's called 'the present'. "

clarabelle64
Posts: 1022
Joined: Sat Nov 14, 2009 2:27 pm
Facebook Username: claire beaumont

Re: Hoping for an update from Cindyz...

Postby clarabelle64 » Tue May 04, 2010 4:48 pm

Cindy
How awful for you...when the time comes to make a decision you will make the right one....I would be honoured to have you in my corner Cindy!!!
Love and prayers to you and Stephen
Clarabelle
Clarabelle, Mother of Deborah who has CC with mets to liver + lungs.
Has been on Folfiri then 5FU + Oxi
Lung Mets progressed
Currently on Intravenous Vit C + diet + supplements
My darling girl passed away 18.8.2011

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karin
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Facebook Username: Karin Tobin Fagner
Location: Austin, TX

Re: Hoping for an update from Cindyz...

Postby karin » Tue May 04, 2010 10:07 pm

cindy,
I'm sorry your discharge plans were changed but it sounds like he needs to be in the hospital....I agree with Terry, they need to start figuring something out and quickly....if it's surgery he needs, they will have to determine risk vs. benefit....even with high risk, a bowel perforation is not likely to heal on it's own and on it's own, left unrepaired, it will eventually cause more problems, including sepsis....but, if he still has a perforation in his bowel, taking po food (or being fed by dobhoff tube) is a poor choice...

I am thinking about you guys all the time, and sending strong positive thoughts, and praying for stephen....
Luv and hugs,
Karin
Karin
BFF dx'd June09 w CRC & peritoneal mucinous carcinomatosis @ age 40
She beat cancer for 20 months!

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Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Hoping for an update from Cindyz...

Postby Terry » Tue May 04, 2010 10:16 pm

They're giving Stephan po food with the possibility that he still has a perf.? That just doesn't sound right to me!

I meant to tell you Cindy, the guy that's doing all of the screaming may have a brain injury, they do that quite often. I hope he's not in so much pain that he's screaming like that. I wouldn't think so, more like the brain injury or someone that is mentally disabled.

I'm praying right after I get off the computer for you guys. May the Lord take Stephan in his loving and healing hands and work a miracle for him and may he give you the strength you need to go through this wherever it leads you.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

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jmarie
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Facebook Username: Jessica Ramos Smith
Location: Jacksonville, FL
Contact:

Re: Hoping for an update from Cindyz...

Postby jmarie » Tue May 04, 2010 10:25 pm

Such a rollercoaster! I am sorry to hear this latest news. Please remember I am only about an hour away, PM w/ your number if you need some support. I can bring you coffee, lunch or just a shoulder to lean on. I understand if you would rather your privacy, but please don't hesitate to ask for help if ou need it.

Hugs and prayers
Jessica
DX Stage IV 11/25/08
mets liver lung, kras mutant
Baby 2yrs old! I am 32yrs
Too many chemo txs to count
trying to find a clinical trial
"You can't stop the waves, but you can learn to surf"


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