Hi All
This may be a sensitive subject but I have to ask.
It appears the "rules" for getting a liver transplant from a donor prohibit a transplant when the primary cancer is not in the liver. I know this is to prevent damaging a perfectly good liver with cancer if it comes back... but if the primary site is removed (colon) then the risk of cancer isn't so great right? I know it can travel...
Anyway - Is there ANY way that any of you know, to get a transplant if your cancer originates elsewhere, outside of the liver? Perhaps a private donor - I think its called donor-to-donor or a direct donor? Maybe in another country?
The stats show that although post survival rates for liver transplants where there was a primary site of cancer on the liver are LESS than other types of transplants (cirhossis etc) - they are better than not doing it at all.
My tumors are too large to resect my liver. The locations prevent a salvageable piece to use to sustain life while it grows back.
IDEAS????
Thanks,
Karen