If you want prayer stop in here!

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Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: If you want prayer stop in here!

Postby Pyro » Sun Jul 21, 2019 1:23 am

A few days ago I was in the hospital and couldn’t pee, they had already Foley cathd be twice and straight cathd my 3 times. I hurt bad and asked for help on a different thread. Somebody saw it and said a prayer for me, 20 minutes later I was going on my own and now I’m home, away from the hospital. Thank you.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

stu
Posts: 1163
Joined: Sat Aug 17, 2013 5:46 pm

Re: If you want prayer stop in here!

Postby stu » Sun Jul 21, 2019 4:20 am

Got a wee Scottish granny praying for you all too .xx
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Jlschueler
Posts: 11
Joined: Tue Jun 12, 2018 2:54 pm
Facebook Username: Jessica.ramey

Re: If you want prayer stop in here!

Postby Jlschueler » Sun Jul 21, 2019 7:02 pm

Any and all prayers appreciated!!

k0chr
Posts: 19
Joined: Wed Jun 05, 2019 5:08 pm

Re: If you want prayer stop in here!

Postby k0chr » Sun Jul 21, 2019 7:19 pm

How could anyone not covet the prayers of a wee Scottish granny? 8)
DX: 54
05/24/19 DX: CC rectosigmoid adenocarcinoma
06/07/19: laparascopic
5.8cm tumor
clear margins
G2 IIIA T2N1AM0
1/10 positive
07/08/19: starting FOLFOX, 12 cycles

stu
Posts: 1163
Joined: Sat Aug 17, 2013 5:46 pm

Re: If you want prayer stop in here!

Postby stu » Mon Jul 22, 2019 3:53 pm

:D Frequently up to two in the morning !!
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

michelle c
Posts: 1876
Joined: Wed Dec 02, 2009 3:58 am

Re: If you want prayer stop in here!

Postby michelle c » Thu Jul 25, 2019 8:14 am

Oh my goodness.....I don’t come here too often anymore but still like to check in from time to time. Saw this post that was started by Terry.....miss her and Bev and John and Jess.....these people have sadly passed away :cry: Reading this post brought back so many memories of my dear friends and warriors. They meant so much to me especially in those dark, dark days. RIP ❤️ Remembered with love ❤️
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Pyro
Posts: 274
Joined: Mon Oct 12, 2015 7:40 pm
Location: Tucson, AZ

Re: If you want prayer stop in here!

Postby Pyro » Wed Jul 31, 2019 3:29 am

Folks

I have an impossible decision to make today and I need prayer to help! I’ve been off chemo due to surgery, missed 2 infusions so far but I don’t want to go back. I’m meeting with the Onc. Today to discuss my future treatments or lack there of. I need quality time, not laid up on the couch in between infusions, that doesn’t work for me. I’m tired, 5 major surgeries and 90 rounds of chemo over 5 years has left me exhausted, I really don’t think I’ll mentally or physically survive another chemo infusion. Thanks for your help, there’s a dark cloud over my house as my wife and I have been discussing this for a few days, I wish the decision was made for me but alas, I’m going to have to be the adult. For those of you who are new, if I quit chemo I have 6 months to 1 year left according to the oncologist, 2 years max if I keep up the chemo. I’m going down anyway, why suffer through the chemo treatments?

Please no alternative medicine responses.
Aug 2015- Diag Stage 4 CC with liver Mets(38/m)
Sep 2015- Avastin/Folfox/Iron
Dec 2015-Not liver surgery candidate
Jan 2016- Erbitux/Folfiri, 2nd opinion at MDA in TX
Feb 2016 -MDA liver surgery
Mar 2016 -30% of left lobe rem, PVE
May 2016 - 70% of liver rem
Jun 2016-Rad
Jan 2017-perm colost @MDA
Jul 2017-Erb/FOLFURI
Nov 2017 -Lung & Liver ablations@MDA
Jan 2018 -Xeloda & Avastin mx
Jul 2018-Avast/FOLFURI
Sep 2018-Rad
Mar 2019 - Keytruda fail, CEA @36
Jun 2019 - FOLFURI until I can’t stand it

MetastaticEquilibria
Posts: 21
Joined: Wed Jul 10, 2019 4:42 am
Location: Japan

Re: If you want prayer stop in here!

Postby MetastaticEquilibria » Wed Jul 31, 2019 4:47 am

Hi Pyro,

I’m only on my first round of FOLFIRI, and already I’m wondering how long I can take it. I have always been of the stance, “don’t talk to me about QOL, let’s just try anything that might work.” But this stuff just saps my will like nothing else I’ve experienced. And you’ve been on it for a couple years, it looks like? Strong man.

Perhaps you could just plan take a break for a while, and come back to FOLFIRI if and when you feel up to it? Who knows, you might see things differently after a while. Or not — and that is ok too.
Last edited by MetastaticEquilibria on Wed Jul 31, 2019 6:43 am, edited 1 time in total.
M55 Stage 4 (Japan)
12/16 Tumor rectal/sigmoid jct
1/17 Resect stage 2 T3N0M0+LVI
2-6/17 UFT+UZEL
7/17 Recurr.+2 liver mets stage 4
7-10/17 FOLFOX+Vectibix
11-12/17 FOLFOX+pelvic rad (x/gamma 60 Gy)
1-7/18 FOLFOX+Vectibix
8-9/18 Liver rad (protons 73 Gy)
10/18-12/18 Xeloda+Avastin
2/19 New liver met
3/19 Liver rad (protons 66 Gy)
4/19 3 lung mets
4-6/19 Vectibix
7/19-now FOLFIRI+Cyramza
8/19 Lung mets stable
CEA 1.4-223 now 12.6
CA19-9 2.8-105 now 65
RAS wild MSS MET+func TP53-func
UGT1A1*28 homo

stu
Posts: 1163
Joined: Sat Aug 17, 2013 5:46 pm

Re: If you want prayer stop in here!

Postby stu » Wed Jul 31, 2019 5:00 am

Praying for you Pryo and I hear you also .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
ginabeewell
Posts: 269
Joined: Wed Oct 24, 2018 10:30 am

Re: If you want prayer stop in here!

Postby ginabeewell » Wed Jul 31, 2019 6:49 am

Praying for you Pyro. Your posts here all suggest that you know in your heart what you want to do. Recognize fully how difficult it is to actually ACT on that of course!

My prayer for you is that you are able to hear your heart clearly and have the confidence to make a decision that feels right for you and your family.

Funny, I came here to ask for a prayer but frankly I feel better giving one.
45 year old mom of twins (7) and lucky stepmom of 13 and 16 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets (largest 11 cm)
9/20/18 CEA 931
10/1/18 FOLFOX + Vectibix planned 12 rounds
12/12/18 Routine scan showed typhlitis (7 days in hospital) but largest met down to 5 cm. Chemo holiday.
12/26/18 CEA 4.6
1/14/18 Resume chemo (#6-8)
3/27/19 Surgery: HAI pump placement / colon resection
4/8/19 Resume chemo (#9-12) FOLFOX (no OX) + Vectibix
5/20/19 CEA 1.3
7/19/18: 1st of 2 liver resections

Mohrfamily
Posts: 137
Joined: Tue May 22, 2018 4:04 pm

Re: If you want prayer stop in here!

Postby Mohrfamily » Wed Jul 31, 2019 10:27 am

I pray just about every day on my way to work for my husband and recently found a site on Pinterest... The 5 signs God is redirecting your life and a lot of that article resonated.

Please pray for my husband While I pray for all of you!
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

jmn
Posts: 48
Joined: Sat Aug 11, 2018 8:20 pm
Location: New York/Philadelphia

Re: If you want prayer stop in here!

Postby jmn » Wed Jul 31, 2019 8:28 pm

Pyro wrote:I have an impossible decision to make today and I need prayer to help!

Pyro, I prayed for you today and I’ll continue to keep you in my thoughts and prayers. Mohrfamily’s husband is also on my prayer list.
DX: CC, 7-9-18 @ age 61, male
Severe anemia (4.5 g/dl), 5-11-18; colonoscopy, 6-29-18
Lap-assisted right hemicolectomy, 7-16-18
G2, moderately differentiated adenocarcinoma in cecum, 4.2 x 3.7 x 0.7 cm
Stage IIB, pT4aN0 (first pathology DX: pT3N0)
0/24 lymph nodes, LVI present, PNI present, surgical margins clear, MSS
CEA: 3.0 (pre-op, 7-10-18); 0.7 (post-op, 8-8-18)
TX: Xeloda (capecitabine) monotherapy, 10-16-18 to 4-21-19
CEA: 4-19, 3.4; 5-19, 3.0; 7-19, 3.0
NED: 5-28-19 :D
Clear colonoscopy, 7-15-19 :D

Gravelyguy
Posts: 177
Joined: Thu Jul 05, 2018 6:03 pm

Re: If you want prayer stop in here!

Postby Gravelyguy » Thu Aug 01, 2019 7:45 am

Pyro,

Praying for you that you will have peace in your decision and the dark cloud will be removed from your home.

Mohrfamily, I remember when you first joined and have been praying for your family since then. Prayers for strength and wisdom.

Dave
6/17 dx mCRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0

Mohrfamily
Posts: 137
Joined: Tue May 22, 2018 4:04 pm

Re: If you want prayer stop in here!

Postby Mohrfamily » Mon Aug 05, 2019 5:10 pm

Thank you for keeping my young family in your prayers. DH gets a (unwanted) break this cycle. This week he decided no vectibix but treatment was stopped altogether till he gets an MRI next week per his oncologist she really doesnt like irinotecan and wants another scan to be sure its three way to go. He yelled at the nurse who called asking if he is the only one trying to beat this, she explained and reasoned that the hold up was the insurance digging their heels....

Pray, pray.....PRAY
DH dx officially stage IV with liver mets largest measuring 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm long mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
4/3/19 consult radiologist for possible radiation treatment.

Nordy1
Posts: 33
Joined: Tue Oct 02, 2018 11:45 pm

Re: If you want prayer stop in here!

Postby Nordy1 » Mon Aug 05, 2019 10:42 pm

Pyro wrote:Folks

I have an impossible decision to make today and I need prayer to help! I’ve been off chemo due to surgery, missed 2 infusions so far but I don’t want to go back. I’m meeting with the Onc. Today to discuss my future treatments or lack there of. I need quality time, not laid up on the couch in between infusions, that doesn’t work for me. I’m tired, 5 major surgeries and 90 rounds of chemo over 5 years has left me exhausted, I really don’t think I’ll mentally or physically survive another chemo infusion. Thanks for your help, there’s a dark cloud over my house as my wife and I have been discussing this for a few days, I wish the decision was made for me but alas, I’m going to have to be the adult. For those of you who are new, if I quit chemo I have 6 months to 1 year left according to the oncologist, 2 years max if I keep up the chemo. I’m going down anyway, why suffer through the chemo treatments?

Please no alternative medicine responses.



Hi Pyro
I have read many of your posts- I don’t post a lot but I need to tell you what an inspiration you are. I had 11 rounds of oxali and fulfox and I thought I was strong/tough until about round 5- every round after that was just another layer of exhaustion and sickness - I made it through and I’m healing from it now.while going through it I read on the forum from members like yourselves many times, obsessed about it sometimes. I want to thank you for your input, it is truly appreciated. I don’t know what I’ll do next time around, I can’t even presume to know what your going through now but I respect all you have gone through. You are in my prayers

nordy1
jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019


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