If you want prayer stop in here!

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: If you want prayer stop in here!

Postby ginabeewell » Wed Oct 09, 2019 12:06 am

CrossfitChick1980 wrote:Good evening, I'm stopping in for prayer. I am grieving the loss of my husband and there are moments where it seems like my grief will swallow me whole. Please pray that God continues to comfort us. Thanks!


I’ve been procrastinating going to bed and poking around the internet and found this and think now I know why I wasn’t going to sleep earlier like I should have. I will be praying for you with everything I have tonight.
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts
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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: If you want prayer stop in here!

Postby Trying » Thu Feb 20, 2020 12:05 pm

I need more prayer please. I'm in a dark place and need my life back. I'm truly suffering..Thank you
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020
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stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: If you want prayer stop in here!

Postby stu » Thu Feb 20, 2020 1:32 pm

We got you xx
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: If you want prayer stop in here!

Postby JJH » Thu Feb 20, 2020 1:55 pm

Trying wrote:I need more prayer please. I'm in a dark place and need my life back. I'm truly suffering..Thank you

Image
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●
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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: If you want prayer stop in here!

Postby Mohrfamily » Thu Feb 20, 2020 5:19 pm

My DH had an HAI placed in November and a CT scan is showing liver progression. We are getting his systemic back in place. We need prayers for strength
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
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Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: If you want prayer stop in here!

Postby Lee » Thu Feb 20, 2020 5:31 pm

Trying wrote:I need more prayer please. I'm in a dark place and need my life back. I'm truly suffering..Thank you


You are in my thoughts and prayers.

Hugs to you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: If you want prayer stop in here!

Postby stu » Thu Feb 20, 2020 6:04 pm

Mohrfamily ,
So sorry to hear than and will do !
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .
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User avatar
JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: If you want prayer stop in here!

Postby JJH » Thu Feb 20, 2020 9:27 pm

Mohrfamily wrote:... We need prayers for strength

Prayers for strength:

https://www.praywithme.com/prayer-for-strength.html

- - - -

In 2018 Mohrfamily wrote: ... Our 4 year old went to her first year of bible school just 1 week of it. While other preschoolers prayed for toys etc, when it got to her she prayed for her daddy. She doesn't know the word cancer or what it means/could mean and frankly we don't know how to talk about it ...

Prayers for children:
https://www.praywithme.com/prayers-for-children.html
Last edited by JJH on Fri Feb 21, 2020 1:31 am, edited 1 time in total.
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Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: If you want prayer stop in here!

Postby Lee » Thu Feb 20, 2020 11:47 pm

Mohrfamily wrote:My DH had an HAI placed in November and a CT scan is showing liver progression. We are getting his systemic back in place. We need prayers for strength


You and Trying are BOTH in my daily prayers now!!

God be with you both families in this most trying times.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!
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Nordy1
Posts: 44
Joined: Tue Oct 02, 2018 11:45 pm

Re: If you want prayer stop in here!

Postby Nordy1 » Mon Feb 24, 2020 2:33 am

Hello all you wonderful prayer warriors!

I have my 2 year scan tomorrow and I’m feeling hopeful but nervous - my usual solution is to come on this forum and read the words of wisdom that all over this forum. Hooray for me because tonight I found your thread. I would really appreciate a prayer

Thank you
Nordy1
jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019
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Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: If you want prayer stop in here!

Postby Gravelyguy » Mon Feb 24, 2020 10:13 am

Praying for you Nordy, Mohrfamily, and Trying.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!
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Mohrfamily
Posts: 267
Joined: Tue May 22, 2018 4:04 pm

Re: If you want prayer stop in here!

Postby Mohrfamily » Mon Mar 09, 2020 5:57 am

This is minor surgical procedure by the books today but DH is having his HAI removed today not for positive reasons.

We went through so much to get it, to get that original tumor out ... I hang my head today. I pushed for so much and things got worse doc says he's got a little more than 25% good liver right now, DH made the choice to remove it and make plans to call on SIRT just hope we weren't lied to about being able to still have the option after the pump.

Need prayers for all of it today, the procedure there hope of SIRT, the hope that FOLFIRI will kick ass.
DH dx stage IV liver mets largest 6x6.4 cm
Colonoscopy/endoscopy/port place 5/29
4cm mass in splenic flexure
1st round FolFox 5/30
08/2018 new CT no new lesions, clear lungs, slight decrease in colon.
3/2019 PET scan shows greater than 6-7 liver mets largest measuring 3x3 cm. No growth nothing new.
8/15/19 largest liver lesion 1.9x2.1
9/16/2019 OSU to proceed with surgery implant HAI and colon resection
11/19 resection of colon HAI placed
2/20 CEA back to 1000s, liver worse than when we began-start FOLFIRI
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beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: If you want prayer stop in here!

Postby beach sunrise » Tue Mar 10, 2020 12:23 am

I pray every day for all fighting cancer. When I let my family know my dx I received 5 prayer clothes in the mail from their churches. I wore them pinned on me every day until time for surgery and couldn't take them in with me. As soon as I woke up and got my wits about me that was first thing I asked for, my prayer clothes. I will wear them all the way through this cancer battle. I am going to say my prayers in a few for everyone and hopefully get some good sleep tonight.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
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User avatar
JJH
Posts: 408
Joined: Mon Apr 24, 2017 7:26 am

Re: If you want prayer stop in here!

Postby JJH » Tue Mar 10, 2020 7:49 am

beach sunrise wrote:I pray every day for all fighting cancer. When I let my family know my dx I received 5 prayer clothes in the mail from their churches. I wore them pinned on me every day until time for surgery and couldn't take them in with me. As soon as I woke up and got my wits about me that was first thing I asked for, my prayer clothes. I will wear them all the way through this cancer battle. I am going to say my prayers in a few for everyone and hopefully get some good sleep tonight.

beach sunrise -

Thank you for reminding us of the existence of prayer shawls. In the past there have been several members of this forum who have commented on this:

Prayer Shawls on Colon Talk

BTW: There is even a Prayer Shawl Ministry in northwest Ohio!
"The darkest hour is just before the dawn" - Thomas Fuller (1650)
●●●
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User avatar
beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: If you want prayer stop in here!

Postby beach sunrise » Tue Mar 10, 2020 12:42 pm

They are very comforting and helps keep grounded in positivity and power of prayer. My 2 sisters had cystic fibrosis and always had them growing up.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
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