Ya know, I tried to respond to that post (person w/new ostomy) twice - and both times it didn't go through - so I finally just gave up. Maybe third times the charm?
I had my ileostomy for one year. My tumor was right where the colon/rectum meet. My surgeon said this was my only option - period. I was completely freaked out. I was lucky - I had an excellent surgeon who aside from her great surgical skills, also knew when a patient needed some tough love. One thing that helped me tremendously in learning to adjust to my life with my ostomy - was that one of my only chances of surviving - was to have that ostomy. It was a big part of the reason I was still alive - period. Many people talk about the importance of chemo and radiation in their chances of survival - but to me, the ostomy should be included in that category as well - it helps to keep you alive! Keeping that thought in mind helped me in my adjustment to my new body image.
By the time I was eligible for my take down surgery, I had to think long and hard about whether to just keep it permanently. I had adjusted very well and life was good. Honestly - life was better with my ostomy than it is now. I'm still trying to be positive and hope things will improve (they did for awhile), but there are still many times I wished I'd just kept the ostomy. Time will tell and I know it is something I can always discuss with my surgeon if the time comes that I finally throw in the towel on this whole reversal situation.
Once you have cancer your life is never the same. There are things you lose that you wish you could regain. We have the choice as to whether to dwell on those things or take what we have and just keep moving forward. In all I've been through the past couple of years, the ostomy was a pretty minor and very managable issue.
So yeah, I had an ostomy for a year and I was VERY okay. And after being up till almost 1:00 a.m. last night because I couldn't stop pooping, I'm feeling pretty envious of those who have ostomies right now and probably got a good nights sleep!