Hi! When I had my illeostomy surgery in 6/2003 the doctors and nurses did not tell me about "phantom sensations" after the procedure. For those of you not familiar with this, the rectum will still signal an "urge" to go and sometimes mucus will come out the anus even though the waste exits through the stoma. I had a lot of mucus excretions and phantom sensations those 3-4 months after surgery and then they subsided. I went for 2 -3 years without the phantom sensations. However, now they are back. I am puzzled. Almost daily I have the phantom sensation and feel like I need to get to the restroom quick. Very rarely does any mucus come out. Can any of you share your experiences on this topic? I thought that I was done with the frequent phantom sensations since my illeostomy was done so long ago. Help, I am confused? Thank-you, in advance for sharing.
Miss Kim