CRguy invents new "Stage"

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CRguy
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CRguy invents new "Stage"

Postby CRguy » Fri Jan 08, 2010 4:42 pm

How about Stage 3.5 not Stage III (a,b,c) and not Stage IV, but Stage 3.5 ?

Here's how it works : it is a descriptive stage not a true diagnosis ( so we won't use Roman Numerals. )
Why ? Because when you do all your good follow up stuff...AND..they find "something" of interest, but don't have it nailed down, you are Stage 3.5 until the next actual diagnosis. Then you enter the CRC lottery to find out if you stay at III or go to IV

There, isn't that a fun game ?? I'll go first.

November Xrays/ultrasound showed some calcification in the chest -> do a CT.
December CT showed calcification is nothing, BUT...here's the first bonus round... found two different "things" to be checked on -> do a PET scan. Second bonus round..."urgent" PET scans will take 4-8 weeks. Third bonus round... the two different masses appear to be unrelated processes, so we could be seeing primaries or mets or both or neither !!!!

What a fun game. Since I am determined to keep my sense of humor about life's "joke on me" I will make sure I buy lots of lottery tickets, you know, so you win some and lose some, but you gotta KEEP playin' !!

Still on the journey but a few less Cheers today friends,
CRguy, Stage 3.5
Last edited by CRguy on Fri Jan 08, 2010 5:24 pm, edited 2 times in total.
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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justsing
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Re: CRguy invents new "Stage"

Postby justsing » Fri Jan 08, 2010 4:50 pm

Oh stuff and bother!

I was wondering how this whole thing was playing out, but hadn't heard any news, so figured you'd post when there was something to announce. So, we've got something old, something new, trouble borrowed and CRguy blue . . .

Lung stuff is just a big nuisance as far as I'm concerned. People live for years and years with shrapnel and all manner of crap in their lungs, so unless this new crap is doing something nasty, I say just ignore it. Easier said than done, I know. But it's amazing how quickly you can find your Zen and compartmentalize!

Sending you much commiseration, my fellow traveler!
justsing, 46
Stage IV
colon resection 12/07
Liver resection 04/08
Phase I vaccine trial
liver, lung LN mets
tried Oxi, Iri and Avastin
now trying new chemo combos then sir spheres
College prof in theatre & voice
2 girls 18 & 14, one son 10

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jenhopesprays
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Re: CRguy invents new "Stage"

Postby jenhopesprays » Fri Jan 08, 2010 4:51 pm

Ok that is hilarious!

When you come out with the new and updated version, would you add in a square to go from Stage 4 to Stage 3.5?

Here is to hoping this round you win some....

Jennifer
Stage IV: dx 8/07 at 39.. colon & liver resection & rt ovary
17 rounds of folfox.
12/08 ovary tumor removed with HIPEC & folfiri w/Avastin
9/11 liver resection # 2 followed by chemo
NED

Have Hope with Capitol H

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BrownBagger
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Re: CRguy invents new "Stage"

Postby BrownBagger » Fri Jan 08, 2010 4:53 pm

Well, CR, let's hope it's nothing.

I like the 3.5 Stage idea. I think Skifletch might qualify for that one.

My personal motto has always been, "Win, lose or draw, I'm going to do it with a smile."

So keep smiling, my friend.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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CRguy
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Re: CRguy invents new "Stage"

Postby CRguy » Fri Jan 08, 2010 5:23 pm

thanks folks,

justsing
Thanx for the good wishes and yes, I am getting back into fight mode, just annoyed with no definite info, just suspicions ??? the scanxiety thing and delays. will keep chattin' with you as I journey.


jenhopesprays
"Here is to hoping this round you win some...." thank you, thank you and here's best wishes to your continued success, too. You want a "Take One Giant Step Back " square !!! oh Yeah you got it, gonna definitely work on that one !!


BrownBagger
Thanx for chekkin' in bro'. I will keep smiling...always makes folks wonder what I've been up to !


Cheers and keep well
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Bev G
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Re: CRguy invents new "Stage"

Postby Bev G » Fri Jan 08, 2010 5:31 pm

I say how about tons of bonus points for a great sense of humor, class, dignity and imagination in navigating these really exiting opportunities for personal growth and reflection (that's my motto for today--I try to make up a new one each day). Everyone gets to imagine how to use their bonus points, and every other day, and in months ending in "y" they double :)

I hope and pray for results that will add up to absolutely nothing for you. Best wishes.
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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CRguy
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Re: CRguy invents new "Stage"

Postby CRguy » Fri Jan 08, 2010 5:49 pm

Bev G wrote:I hope and pray for results that will add up to absolutely nothing for you. Best wishes.


Thanx for your bonus points Bev and I give you some, for understatement of the day !
really exiting opportunities for personal growth and reflection


still chucklin'...
think I need to go and compartmentalize my Zen.

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

SkiFletch
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Location: Buffalo, NY

Re: CRguy invents new "Stage"

Postby SkiFletch » Fri Jan 08, 2010 6:15 pm

BrownBagger wrote:I like the 3.5 Stage idea. I think Skifletch might qualify for that one.


I like that idea BB, now if I can just convince the Fiancee of that :lol:. I get to have Crguy's lottery on Tuesday with a PET scan. Good thing I know the radiologist doing the scan so I don't have to wait for results :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."

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BrownBagger
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Re: CRguy invents new "Stage"

Postby BrownBagger » Fri Jan 08, 2010 7:14 pm

You got a fiance, Fletch? That's great! Lucky girl.
Eric, 58
Dx: 3/09, Stage 4 RC
Recurrences: (ongoing, lung, bronchial cavity, ribs)
Major Ops: 6/ RFA: 3 /bronchoscopies: 8
Pelvic radiation: 5 wks. Bronchial radiation—brachytheray: 3 treatments
Chemo Rounds (career):136
Current Chemo Cocktail: Xeloda & Erbitux & Irinotecan biweekly
Current Cocktail; On the Wagon (mostly)
Bicycle miles post-dx 10,477
Motto: Live your life like it's going to be a long one, because it just might, and then you'll be glad you did.

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willtowin
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Location: oklahoma

Re: CRguy invents new "Stage"

Postby willtowin » Fri Jan 08, 2010 7:30 pm

Well CRguy, and fellow scan buddy....Since were scan buddies, I think yours will have to be nothing too! So the waiting has to be fun, 4 weeks for an urgent pet...wow.

I had a pet, that showed area of concern and went to a ct and was found to be "brain shrinkage" funny eh...

I do like the 3.5, or limbo stage.

praying for it to go back down to 3.

How are you feeling, any symptoms that are bothersome right now?
Stage 1 -4-25-08 (lymphovascular invasion)
poorly diff
Hnpcc negative
TAH/BSO 5-08
Folfox COMPLETED 12-26-08
NED as of 12-09
gallbladder removed 3-09
appendectomy 11-2012
1-2013 FNH of liver, or Adenoma
44 year old mom to 3-10, 11 & 14

NWgirl
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Re: CRguy invents new "Stage"

Postby NWgirl » Fri Jan 08, 2010 7:32 pm

This doesn't sound like a fun game. I don't think I want to play anymore! So long as you're stuck in the game, I hope you win. I hope we all do, but I've heard this game doesn't always play fair.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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CRguy
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Re: CRguy invents new "Stage"

Postby CRguy » Fri Jan 08, 2010 9:56 pm

NWgirl wrote:This doesn't sound like a fun game. I don't think I want to play anymore! So long as you're stuck in the game, I hope you win.

thanx Belle, don't think I'll play either "Game called on account of huge levels of sucknitude !"

willtowin wrote:Since were scan buddies, I think yours will have to be nothing too!

OK I am in on that one !
willtowin wrote:I do like the 3.5, or limbo stage. praying for it to go back down to 3.
How are you feeling, any symptoms that are bothersome right now?


No clinical Probs at all (good) just scanxious (not so good), thanx for the prayers.

Cheers all
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Dori
Posts: 426
Joined: Mon Jun 23, 2008 10:29 pm

Re: CRguy invents new "Stage"

Postby Dori » Fri Jan 08, 2010 10:04 pm

I was told I was "stage three and a half" once, but it was right at the time of my diagnosis. It sucked!! CRguy, I hope you get back to regular old stage III soon!!!

Good thoughts coming your way.

Dori
47 years old
Stage IIIC, high grade signet ring, 14 out of 18 nodes affected
Colon resection 5/15/08
FOLFOX 6/08 - 11/08
Mom to a great 11 (!!) yo girl
Currently NED

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CRguy
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Re: CRguy invents new "Stage"

Postby CRguy » Fri Jan 08, 2010 10:17 pm

Thanks Dori,

all good thoughts greatly needed and appreciated !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

SkiFletch
Posts: 6361
Joined: Mon Dec 07, 2009 3:39 pm
Facebook Username: Michael Fletcher
Location: Buffalo, NY

Re: CRguy invents new "Stage"

Postby SkiFletch » Fri Jan 08, 2010 11:01 pm

BrownBagger wrote:You got a fiance, Fletch? That's great! Lucky girl.


Pfft, I'm the lucky one :)
11/13/09 5cm Stage IV 9/25 lymph nodes w/2cm peritoneal met at 29 YoA
12/15/09 LA right hemi-colectomy
6/16/10 Folfox FINISHED
8/10/10 Prophylactic HIPEC
10/9/10 got Married :D
Still NED and living life to the fullest

"Can any one of you by worrying add a single hour to your life."


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