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Re: For Stage III's: NED for how long now?

Posted: Fri May 04, 2018 10:19 pm
by ASTEPHENS33
I was diagnosed in 2005 and am still NED. I do have colonoscopies every year and endoscopies every 3-5 years. I had genetic testing done, and I do have the mutation for AFAP. Glad to see ALL the survivors!

Re: For Stage III's: NED for how long now?

Posted: Fri May 11, 2018 11:09 am
by [Ana & Alex]
I dreamt about this day so many times, when I could post a victory on this thread.

Yesterday was my surgery's and stoma's birthday. My life is going so well. I'm working and having a ball with my baby girl. And I'm doing bloodwork every two months, CTs every six months and a colonoscopy per year. Today I had my second scan since End of chemo and everything is ok!

I'm so happy, I could explode.
I hope I still have a long life ahead and I can inspire someone who is young and has rectal cancer and has to go through everything we have to, that life can be really sweet again!

Keep fighting and keep hoping!
All the best for everyone,

Love,
Ana

Re: For Stage III's: NED for how long now?

Posted: Fri May 11, 2018 12:04 pm
by Robino1
Excellent report :D

I wish you continued NED Status!

Re: For Stage III's: NED for how long now?

Posted: Sun May 13, 2018 7:35 pm
by thelongglass
It really has been a long time since I posted here. I have made the effort to live my life fully since diagnosis and treatment and been incredibly busy doing that and mothering my three girls. “Challenge by Choice” has been my motto ever since going through that challenging year of treatment and surgeries not by choice, but by necessity.

I am applying to Physician Assistant programs this year, something I set my sights on around my two year NED mark. Returned to university for a few prerequisites and became a medical assistant in order to attain the required 2000 patient care hours to apply to my preferred program. I learned so much as a patient and from all of the other patients I met or read about here online. My PAs were especially important to me in education and communication and care. Regardless of whether I get in, I feel grateful to be here with the opportunity to try.

Re: For Stage III's: NED for how long now?

Posted: Thu Jun 07, 2018 3:28 pm
by teacher2017
Moving this thread up for new members! Read about some real success stories!

Re: For Stage III's: NED for how long now?

Posted: Tue Jun 12, 2018 1:01 pm
by kellywin
I feel like it's time for me to add to this thread :D . It's been 5 years! Was diagnosed at 40, stage IIIC as you can see by my signature. Had my latest CT scan in April and still all clear. I do have to have another colonoscopy soon, BUTT happy to be here and give some positivity to all of you newly diagnosed people. It's a struggle both mentally and physically during the diagnosis phase, then the treatment phase, surgery, after effects, etc. I haven't been as active on here as I once was, life gets in the way, which is a good thing.

Positive thoughts to all who are in the midst of this...

And thanks to everyone on this board, especially long term members who have helped me and continue to help as new people start their journey here.

Re: For Stage III's: NED for how long now?

Posted: Wed Jun 13, 2018 1:05 am
by hawkowl
Just saw the oncologist again and I'm still NED more than 3 years after I completed my last chemo. I don't know what tomorrow will bring, but today was a very good day :-)

Re: For Stage III's: NED for how long now?

Posted: Thu Jun 14, 2018 11:27 pm
by wwroam
Ten days early but I'm claiming 11 years before this thread disappears to page 3.
Even better, I am now 4 months in remission for NSC Lung Cancer. From inoperable to remission.
Best wishes to all
Wayne

Re: For Stage III's: NED for how long now?

Posted: Fri Jun 15, 2018 1:43 pm
by Basil
I had my one year ct and colonoscopy this week and learned my results this morning. All clear. Scope, ct and blood all great. One down, four to go.

Re: For Stage III's: NED for how long now?

Posted: Fri Jun 15, 2018 3:03 pm
by Shana
wwroam wrote:Ten days early but I'm claiming 11 years before this thread disappears to page 3.
Even better, I am now 4 months in remission for NSC Lung Cancer. From inoperable to remission.
Best wishes to all
Wayne


Awesome! Keep on NED!

Re: For Stage III's: NED for how long now?

Posted: Fri Jun 15, 2018 3:05 pm
by Shana
Basil wrote:I had my one year ct and colonoscopy this week and learned my results this morning. All clear. Scope, ct and blood all great. One down, four to go.


Yay! Glad to hear your good news! NED forever and always!

Re: For Stage III's: NED for how long now?

Posted: Thu Aug 09, 2018 12:34 am
by thubler
Bump

Re: For Stage III's: NED for how long now?

Posted: Thu Aug 09, 2018 10:43 am
by O Stoma Mia
Here is the story of a Stage III survivor -- diagnosed 16 years ago:

https://www.healthcentral.com/article/colon-cancer-survivor-carries-on-as-firefighter