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Re: For Stage III's: NED for how long now?

Posted: Tue Oct 31, 2017 9:04 am
by steveincolorado
I'm a stage 3C, Left side Sigmoid part of the colon with Signet Ring Cell carcinoma. My surgery was in August 2012 and I lost 12 lymph nodes during the surgery. So far five years out from the surgery I'm doing okay.

Steve

Re: For Stage III's: NED for how long now?

Posted: Fri Nov 03, 2017 10:14 am
by horizon
NZJay wrote:after my scope last week, I'm NED 3 years and 11 months. Final scan to come :arrow:


Congrats Jay!

Re: For Stage III's: NED for how long now?

Posted: Thu Nov 09, 2017 8:56 pm
by mmblz
2+ years, just had a clean scan

Re: For Stage III's: NED for how long now?

Posted: Mon Nov 13, 2017 10:26 am
by fumaros
I have been NED since my surgery in April 2016 1 year and 7 months.

Re: For Stage III's: NED for how long now?

Posted: Wed Nov 15, 2017 12:21 pm
by KathyLynn
Wow, you are a group of such amazing people with amazing stories. You all give us new ones here so much hope. Thank you so much for sharing your stories. It’s amazing how you all stayed in this group even when you were ready to go on with your life and leave this behind you. This has been part of my everyday routine, to check on threads and read stories.

KathyLynn

Re: For Stage III's: NED for how long now?

Posted: Fri Nov 17, 2017 2:29 pm
by Annemiek
Woop woop!
Just had my Ct scan for my three year cancerversary ( counting from surgery) and the nurse called an hour later for something unrelated saying, oh yeah, your scan is clear!
Cea stable at 1.9. This three year mark is prrrrrretty big! Feels like, 10 yrs have just been added to my life.
Working out 2 times a week and horseriding once.
Working 50%due to chemobrain and neuropathie.
:D

Just saying, there’s hope.

Love,
Annemiek

Re: For Stage III's: NED for how long now?

Posted: Mon Nov 20, 2017 3:35 pm
by Dori W
Hi--I had stage IIIC signet ring colon cancer with fourteen positive lymph notes. I was diagnosed in May 2008 and had my last treatment just before Thanksgiving that year, so 9 or 9.5 years, depending on how you want to count. I still remember how lousy I felt physically that Thanksgiving. Ugh.

I feel strange posting this--it's not really survivor's guilt, but I'm not sure what it is. I just want to show that I am a survivor who had a pretty iffy prognosis going in, and I am still here.

I don't want to diminish the feelings of folks dealing with a lot of uncertainty. One of the hardest things for me during and after treatment was that some of my friends and family could not accept my poor prognosis. I was in the depths, and they wanted me to remain "positive." I don't blame them--they were just dealing with their own fear--but it was hard. Now I'm sounding like a downer--Don't worry, I truly celebrate my NED status!

Happy Thanksgiving to those who celebrate!

Dori

Re: For Stage III's: NED for how long now?

Posted: Tue Nov 21, 2017 9:00 pm
by jsw7302013
Wow, Dori, that is so great that you haven't had any recurrence of treatment needed for so long!
Gives me hope that my NED status can continue!!
Do you still have CEA tests & follow up CT scans?

Re: For Stage III's: NED for how long now?

Posted: Sun Nov 26, 2017 12:46 pm
by teacher2017
Dori W wrote:Hi--I had stage IIIC signet ring colon cancer with fourteen positive lymph notes. I was diagnosed in May 2008 and had my last treatment just before Thanksgiving that year, so 9 or 9.5 years, depending on how you want to count. I still remember how lousy I felt physically that Thanksgiving. Ugh.

I feel strange posting this--it's not really survivor's guilt, but I'm not sure what it is. I just want to show that I am a survivor who had a pretty iffy prognosis going in, and I am still here.

I don't want to diminish the feelings of folks dealing with a lot of uncertainty. One of the hardest things for me during and after treatment was that some of my friends and family could not accept my poor prognosis. I was in the depths, and they wanted me to remain "positive." I don't blame them--they were just dealing with their own fear--but it was hard. Now I'm sounding like a downer--Don't worry, I truly celebrate my NED status!

Happy Thanksgiving to those who celebrate!

Dori


Thank you for your story! It gives me great hope! I pmed you!
Lydia

Re: For Stage III's: NED for how long now?

Posted: Sun Nov 26, 2017 6:50 pm
by Dori W
Hi jsw,

I still get cea tests every six months, but I haven't had scans in a while. I think I'll be stopping my oncology visits and just follow up with my GP after it's officially been ten years.

Re: For Stage III's: NED for how long now?

Posted: Wed Dec 06, 2017 10:16 pm
by lauragb
Hi all! I was Stage IIIB rectal cancer and am now over 6 years out from surgery in which I had a complete pathological response to the chemoradiation. It has been a fabulous yet at times trying 6 years with reversal, then surgery for a bowel obstruction, then bone marrow biopsy for wonky blood counts (it took 5 years for my blood counts to reach almost normal levels post treatment),then lung nodules suspicious for lung cancer that ended up being nothing but were monitored for two years, blood in urine that just ended up being radiation irritation, and now finally almost a year of no one looking for anything! I just put all this on here to encourage any of you dealing with this kind of stuff. It feels good to have NED in the building. Best wishes to anyone needing encouragement.

Re: For Stage III's: NED for how long now?

Posted: Thu Dec 07, 2017 6:10 am
by NHMike
lauragb wrote:Hi all! I was Stage IIIB rectal cancer and am now over 6 years out from surgery in which I had a complete pathological response to the chemoradiation. It has been a fabulous yet at times trying 6 years with reversal, then surgery for a bowel obstruction, then bone marrow biopsy for wonky blood counts (it took 5 years for my blood counts to reach almost normal levels post treatment),then lung nodules suspicious for lung cancer that ended up being nothing but were monitored for two years, blood in urine that just ended up being radiation irritation, and now finally almost a year of no one looking for anything! I just put all this on here to encourage any of you dealing with this kind of stuff. It feels good to have NED in the building. Best wishes to anyone needing encouragement.


Your story looks fantastic.

Straight out of the textbook.

I imagine that it's a lot more satisfying so many years out.

Re: For Stage III's: NED for how long now?

Posted: Thu Dec 07, 2017 7:26 am
by Maelleous
NED since surgery, just over one year. Have a colonoscopy this coming Monday and CT scans in March. Praying to stay that way!

Re: For Stage III's: NED for how long now?

Posted: Thu Dec 07, 2017 7:21 pm
by lauragb
NHMike, you are right it’s more satisfying years out especially since we’re not looking at anything! From your signature, looks like things are going well. Hang in there!

Laura

Re: For Stage III's: NED for how long now?

Posted: Thu Dec 07, 2017 7:22 pm
by lauragb
Maelleous wrote:NED since surgery, just over one year. Have a colonoscopy this coming Monday and CT scans in March. Praying to stay that way!


Good luck with your colonoscopy and March scans, keeping NED in the building!