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Re: For Stage III's: NED for how long now?

Posted: Fri Nov 11, 2016 7:36 am
by stpio
9 year stage 3 colon cancer survivor and 6 year stage 1 breast cancer survivor. Hugs and best wishes to all for sharing your inspiring stories!

Re: For Stage III's: NED for how long now?

Posted: Sun Nov 20, 2016 5:12 pm
by Lee
stpio wrote:9 year stage 3 colon cancer survivor and 6 year stage 1 breast cancer survivor. Hugs and best wishes to all for sharing your inspiring stories!


Congratulations on being a survivor to both cancers.

Lee

Re: For Stage III's: NED for how long now?

Posted: Sat Dec 31, 2016 10:59 am
by Bruce In Buffalo
Had A CT Scan December 28th, 2016....ALL CLEAR.
8 Years Cancer Free.

KEEP UP THE FIGHT

Re: For Stage III's: NED for how long now?

Posted: Sun Jan 01, 2017 1:22 pm
by lauragb
I was five years NED on November 15 from stage IIIB rectal. Celebrating each day.

Re: For Stage III's: NED for how long now?

Posted: Sun Jan 01, 2017 6:01 pm
by mtipte
Congrats! Just a question to all those NeDs, what supplements or natural stuff did you take?
Thanks.
Happy 2017 and be NED forever.

Re: For Stage III's: NED for how long now?

Posted: Mon Jan 30, 2017 4:35 pm
by Jimswife
Annual scan results confirm still cancer free .... 5 years and counting , couldn't be happier x

Re: For Stage III's: NED for how long now?

Posted: Mon Jan 30, 2017 11:42 pm
by horizon
Jimswife wrote:Annual scan results confirm still cancer free .... 5 years and counting , couldn't be happier x


That's so great. Congrats to you both.

Re: For Stage III's: NED for how long now?

Posted: Tue Jan 31, 2017 1:24 am
by Ron50
I guess I should continue to update ,just ended year 9 ex stage 3c into 6 nodes. Ron. Best wishes to all.

Re: For Stage III's: NED for how long now?

Posted: Tue Jan 31, 2017 1:26 am
by Ron50
Make that end year 19 ex stage 3c. Ron.

Re: For Stage III's: NED for how long now?

Posted: Tue Jan 31, 2017 9:34 am
by dianetavegia
Congratulations to all of you! These reports are what kept me going those 3 years I was NED. Now I look at the long term Stage IV friends who are NED. I'm coming up on 5 years this April after my liver resection and it's been 8 years 2 months since my original dx.

Don't give up HOPE! I do believe they'll find a way to stop colon cancer in its' tracks in our lifetime!

Re: For Stage III's: NED for how long now?

Posted: Thu Feb 02, 2017 5:47 pm
by Bob Bones
11 years last week

Re: For Stage III's: NED for how long now?

Posted: Fri Feb 03, 2017 1:21 pm
by very worried husband
we Crossed 6 years mark last week ( hopefully NED ) :D :D. Although We are watching lungs spots again found on Nov CT Scans. January Colonoscopy was clear. CEA Normal. we will have another scan in April and hopefully she will be declared CURED per our oncologist.
Life is so beautiful and busy with our 19 months little monster.
Best of luck everyone and thanks for what you all did for us.

Re: For Stage III's: NED for how long now?

Posted: Thu Jun 08, 2017 1:58 am
by GreenLakeGirl
Bumping up.
Eight years since my stage III diagnosis, and six years since my lung surgery/scare.

Re: For Stage III's: NED for how long now?

Posted: Thu Jun 08, 2017 6:05 pm
by laniemarie427
I haven't been on here in years. I am 44 now & am 9 yrs. cured from 3c sigmoid. I had 14+ nodes out of 32. I believe my CEA was 11? This was 11/2007. My kids were 5, 3, & 6 mos...now 15, 13, & 10. I have permanent peripheral neuropathy. They hit me hard at 34 w/ Folfox, (the oxilaplatin), & clinical trial of Erbitux. I was 1 of about 3,700? that qualified for the lottery drug. KRAS testing wasn't done back then so I don't know my result.

By 2011-12, Essential Trevor dx, & finally tested for inflammation & ESR/SED 86 & CRP 55. As of Spring 2017, they are still elevated at around 60 & 30. Rheumys still have no answers. Chronic pain/Fibro/CFS/Bouts of Trigeminal Neuralgia/Sinus Migraines/Urticaria/Psoriasis.

In 9/16, IgM of 11/12 detected in blood. Being watched every 6 mos. now for MGUS, Waldenstroms, myeloma, or lymphoma.

In 4/17, Lip biopsy for Sjogrens, negative.

*Paternal gpa had stage 4 cc.
*Maternal Great Aunt had cc. (Still alive).

Many prayers out to anyone suffering from any cancer or disease.

~Melanie/Lanie

Re: For Stage III's: NED for how long now?

Posted: Thu Jun 08, 2017 6:38 pm
by Lee
laniemarie427 wrote:By 2011-12, . . . Psoriasis.



Congratulation on your NED status. I'm a 13 yr survivor. That word, psoriasis, caught my attention. Last summer, I was diagnosed with psoriasis. Dr was a bit surprised as I guess most people are diagnosed in there mid 20's, not their late 50's.

Anyway I always suspected my cancer/chemo treatment has something to do with me getting psoriasis. They threw the kitchen sink at me too. In fact when I got FOLFOX it was only available for stage IV folks. I was a stage IIIC. It was an experimental drug back in 2004. I was my Onc 1st and only patient for many months to get FOLFOX. I was selected for my overall good health and young age (47). To read they threw the kitchen sink at you too, I suspect there is a connection.

Thank you for checking in and the update.

Lee