Page 41 of 56

Re: For Stage III's: NED for how long now?

Posted: Mon Jan 25, 2016 10:09 pm
by NZJay
26 months NED as of today :)

Re: For Stage III's: NED for how long now?

Posted: Mon Jan 25, 2016 11:20 pm
by VodKanockers
Congrats! I really appreciate everyone sharing their stories that give us all hope.

First colonoscopy since my surgery on Thursday and CT week after. Not freaking out yet but I'm guessing I'll be experiencing the scanxiety everyone talks about the night before.

Re: For Stage III's: NED for how long now?

Posted: Mon Jan 25, 2016 11:56 pm
by Lee
NZJay wrote:26 months NED as of today :)


CONGRATULATIONS :D . That is a major milestone.

May you always reside in NEDville.

Lee

Re: For Stage III's: NED for how long now?

Posted: Tue Jan 26, 2016 1:26 am
by horizon
NZJay wrote:26 months NED as of today :)


Congrats! Big milestone!

Re: For Stage III's: NED for how long now?

Posted: Tue Mar 01, 2016 6:43 pm
by pantufla
I wanted to bump this for JacquelineJacqueline. Lots of hope on this thread. :)

Re: For Stage III's: NED for how long now?

Posted: Tue Mar 01, 2016 8:14 pm
by Jacquelinejacqueline
Thanks guys! It's so great reading so many positive stories. I hope you all reside in 'ned-ville' forever, and for those who are still battling but are here offering your support and encouragement, words cannot describe how amazing you are.

I have been supporting my boyfriend for 11 months now and it's been a heck of a journey, good and bad. I have been able to be mostly strong and positive for him as i know that's what he needs. However, it's taken its toll on me emotionally and even physically.

What I can't help struggling with is when I look through people's signatures, it seems like most people had a lot less lymph node involvement than he did initially, which makes me think there's less chance for him. There seem to be much fewer 3c long term survivors than 3b or a. Am I missing something, or is my brain just being selective about what it pays attention to? I know when I'm in my worried state I can look for the bad.

The most annoying thing about this worry today is that I'm checked into the blue mountains in Australia for just one night, on my only holiday away from it all, and here I am sitting in my room worrying rather than going and enjoying the pool or lunch. I know that's silly. It's just that sometimes being on my own is the only time I actually get to think about this. (And he had an oncologist appointment this morning which bought it all back home).

I

Re: For Stage III's: NED for how long now?

Posted: Wed Mar 02, 2016 10:09 am
by horizon
Jacquelinejacqueline wrote:What I can't help struggling with is when I look through people's signatures, it seems like most people had a lot less lymph node involvement than he did initially, which makes me think there's less chance for him. There seem to be much fewer 3c long term survivors than 3b or a. Am I missing something, or is my brain just being selective about what it pays attention to? I know when I'm in my worried state I can look for the bad.


(In my opinion) you're wasting too much mental energy on minutia. You don't know how he's going to turn out and all the studying of stats here isn't going to change that. I spent *SO* much time worrying about things that didn't happen. The bad things that did I never could have predicted. Be informed about what is happening but it's easy to take it too far.

Re: For Stage III's: NED for how long now?

Posted: Wed Mar 02, 2016 11:27 am
by pantufla
Oh my goodness Jacqueline. I do the same thing. I tried to explain it to my husband, and he understood very well. He said, "You feel like a turtle." That is exactly how I feel. Sometimes, I have to just be a turtle and go into my own shell to self-soothe. Deep down, if I future-trip, I become petrified and have a hard time being part of a couple. I really have to focus on enjoying this day (here in southern California where it is beautiful). I have to write a gratitude list every day. I have to practice trusting my higher power. I can only practice. It comes and goes.

Look to Lee and Ron50. They are total miracles. Also, I get a real sense that when people are NED for 5 years, they don't tend to come to this site much more, so that is something I consider.

Welcome to the site Jacqueline. Big hugs and good for you for the mini vacation :)

Re: For Stage III's: NED for how long now?

Posted: Wed Mar 02, 2016 1:08 pm
by sadysue
I am approaching five years in August. I plan to hit that mark....and then beyond. Live every day like it really counts.....because it really does! :wink:

Re: For Stage III's: NED for how long now?

Posted: Fri Mar 04, 2016 1:09 pm
by CoachDan
NED since February 17th. 16 days and counting!

Re: For Stage III's: NED for how long now?

Posted: Fri Mar 04, 2016 9:09 pm
by Cathie
I don't know what stage I was. But I've been NED since Mar 2003.

Cathie

Re: For Stage III's: NED for how long now?

Posted: Wed Apr 20, 2016 11:39 am
by Annemiek
My scan results show I'm NED, at this point in time, half a year out of chemo, 1,5 year after shit hit the fan and surgery .

So proud of how hard our little family has worked to get here. ( myself included)
i'm working again, exercising, energy still low but with the right choices we are having an awsum time!!

Yihaaaaa!

Annemiek

Re: For Stage III's: NED for how long now?

Posted: Thu Apr 21, 2016 12:37 am
by DanInMN
Four years now.

Re: For Stage III's: NED for how long now?

Posted: Thu Apr 28, 2016 1:13 am
by JaninOz
Colonoscopy one teensie polyp. Scan clear. CEA down again to 0.04. I am claiming two years NED now and many many more to come.

Re: For Stage III's: NED for how long now?

Posted: Fri Apr 29, 2016 1:15 pm
by dmondgirl
My fiance was diagnosed with Rectal cancer July 31, 2015. Had Four 5FU treatment, followed by 28 radiation with Xeloda pill.... 6 weeks break...surgery done March 17, 2016.... Pathology report says he is T2N1 , clear margins... the tumor was no longer there only minimal microscopic residue!!!! So he responded to more than 50% of his treatment!!! Having a little tough time with the recovery!!

I cant wait to scream 1 year NEW, 2 years, 3 years..etc etc GOD I have faith in you!!!