Postby laniemarie427 » Thu Jun 08, 2017 6:05 pm
I haven't been on here in years. I am 44 now & am 9 yrs. cured from 3c sigmoid. I had 14+ nodes out of 32. I believe my CEA was 11? This was 11/2007. My kids were 5, 3, & 6 mos...now 15, 13, & 10. I have permanent peripheral neuropathy. They hit me hard at 34 w/ Folfox, (the oxilaplatin), & clinical trial of Erbitux. I was 1 of about 3,700? that qualified for the lottery drug. KRAS testing wasn't done back then so I don't know my result.
By 2011-12, Essential Trevor dx, & finally tested for inflammation & ESR/SED 86 & CRP 55. As of Spring 2017, they are still elevated at around 60 & 30. Rheumys still have no answers. Chronic pain/Fibro/CFS/Bouts of Trigeminal Neuralgia/Sinus Migraines/Urticaria/Psoriasis.
In 9/16, IgM of 11/12 detected in blood. Being watched every 6 mos. now for MGUS, Waldenstroms, myeloma, or lymphoma.
In 4/17, Lip biopsy for Sjogrens, negative.
*Paternal gpa had stage 4 cc.
*Maternal Great Aunt had cc. (Still alive).
Many prayers out to anyone suffering from any cancer or disease.
~Melanie/Lanie