For Stage III's: NED for how long now?

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dianetavegia
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For Stage III's: NED for how long now?

Postby dianetavegia » Mon Nov 16, 2009 1:24 pm

I know we've read that many Stage III's no longer post because it's boring to keep repeating 'I'm NED' or they have survivor's guilt, but I'd like to hear from Stage III's who have been disease free since dx. :o)

Roll Call Please!

I'm Diane and I've been NED since Jan. 7, 2009.
Last edited by dianetavegia on Thu Dec 31, 2009 2:22 pm, edited 1 time in total.
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 10 months since original dx. Five yrs. 7 months post liver resection.
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

WEndy21

Re: For Stage III's: NED for how long now?

Postby WEndy21 » Mon Nov 16, 2009 1:28 pm

Well....I'm hoping not to kinx myself since I have a CT scan in 30 minutes, but....
DX September 2004 --Stage IIIA with 2 nodes +
Started chemo Nov. 2004
Finished "reg" chemo June 2005
Surgeon considers it 5 years NED
ONC considers me 4 years NED (if I "pass" my test today).

question....when is stage III considered "cured" ? Ever? or are we in remission indefinitely until it returns (if it does)?

ams5796
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Re: For Stage III's: NED for how long now?

Postby ams5796 » Mon Nov 16, 2009 1:48 pm

I'm Ann and I have been NED since May 1,2007.
Stage 3C (or 4?) Rectal Cancer 01/07
2/10 lung mets
3/11 VATS
6/11 VATS
7/13 lung met
2/14 SBRT
NED 8/14
5/17 scan and MRI found treated spine met

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init0
Posts: 28
Joined: Mon May 11, 2009 11:36 am
Location: Atlanta, GA

Re: For Stage III's: NED for how long now?

Postby init0 » Mon Nov 16, 2009 2:40 pm

It will be Two Years NED for me on Jan 30th 2010.
Stage 3c 1/30/2008 at 38yrs old
2 Resections, no ostomy
12 rounds of Folfox completed 8/15/2008
In Remission for over 5 years now!

Margo
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Location: California

Re: For Stage III's: NED for how long now?

Postby Margo » Mon Nov 16, 2009 3:55 pm

My husband is NED since 7/31/07.
Margo,
Husband 50 yrs dx 07/16/07 CC stage III B, low grade
right colectomy 07/31/07, 50 lymph nodes/ 3 positive, surgeon Gil Galloway ( La Jolla, CA),
FOLFOX 4 ,
CEA before sur. 1.32,
NED

NWgirl
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Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: For Stage III's: NED for how long now?

Postby NWgirl » Mon Nov 16, 2009 4:05 pm

NED since surgery - November 2007. Knock on wood. Last CT was August 2009; next one in February 2009.

Update February 2011 -

Spots showed up on lungs - CT scan February 2010
June 2010 - CT scan - improvement - next scan; 6 months
December 2010 - PET/CT and diagnostic CT - lymph node in pelvis lit up plus one in chest and spots on both lungs
January 2011 - PET/CT and diagnostic CT - lymph node in pelvis not lighting up; lymph node in chest still lighting up + spots in lungs; though not huge change from December 2010
February 2011 - VATS to right lung - 2 spots removed; 1 cancer 1 not cancer; lymph node left as a 'measure' of how effective chemo will be (lymph node is in a bad spot - will do chemo first).
If response to chemo is good, I may be a candidate for another VATS procedure or targeted radiation in the future.

Continue to live life from treatment to treatment, scan to scan.
Last edited by NWgirl on Tue Feb 15, 2011 6:14 pm, edited 1 time in total.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

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barbara jayne
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Facebook Username: Barbara Allenhttps://www.facebook.com/barbara.alle
Location: Wales, UK

Re: For Stage III's: NED for how long now?

Postby barbara jayne » Mon Nov 16, 2009 4:42 pm

Hi everybody ! I have been NED since January 3rd 2008 :D
DX. Colon Cancer (Cecum) stage 3
Right hemicolectomy Jan '08
2/22 L.nodes positive
Oxi and Xeloda
Xeloda discontinued
due to DPD enzyme deficiency
Lynch Syndrome
9 years NED
Facebook user name,
Barbara Allen https://www.facebook.com/barbara.allen.927

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AugustWest
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Location: Maryland

Re: For Stage III's: NED for how long now?

Postby AugustWest » Mon Nov 16, 2009 4:43 pm

Been luckily NED since surgery as well, Aug 07.
My last scans, xrays & blood work were ok in Oct.
Stage IIIb CC - dx 8/07
4/26 nodes pos.
10 tx Oxaliplatin / 6 months Xeloda

vancanes
Posts: 10
Joined: Fri Oct 06, 2006 1:24 pm

Re: For Stage III's: NED for how long now?

Postby vancanes » Mon Nov 16, 2009 4:46 pm

Tomorrow I have my appointment at Sloan and I am praying that I will be 5 years and 4 days NED from Stage IIIC.

Lori

Lee
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Re: For Stage III's: NED for how long now?

Postby Lee » Mon Nov 16, 2009 5:36 pm

I was diagnosed in April 2004, guess I've been NED since August 2004 (5+ yrs) when I had my surgery. I finished chemo in February 2005. On my last visit to my Onc, in August 2009, she said she didn't want to see me again until Aug. 2010; I have been seeing her every 6 mths for the past 2 years. I will be seeing my surgeon sometime next year for my colonoscopy, I did not have to see her this year, a first in 4 years as I had scopes every year for the first 4 years. I was diagnosed rectal cancer IIIC.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Nanette
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Facebook Username: Nanette Pepperday-Derry
Location: Buffalo, NY

Re: For Stage III's: NED for how long now?

Postby Nanette » Mon Nov 16, 2009 6:21 pm

It will be one year NED for my husband on December 11, 2009 and we hope it stays that way!!! Next CT scan is in April, 2010.

-Nanette
Husband, Bruce - diag. 12/07/08 at age 50
Stage IIIB CC, poorly diff, muc. adeno, sig. ring cell
Stage I bladder cancer
1 of 17 LN affected
Colonectomy 12/11/08
Finished chemo/rad on 8/19/09
Four years NED on 12/11/12 - Thank God!!
Livin' life!!!!!!

SusanNore
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Location: Encinitas CA

Re: For Stage III's: NED for how long now?

Postby SusanNore » Mon Nov 16, 2009 7:39 pm

I have been NED since July 2005 (surgery); CT scan In January 2010 hopefully will confirm that status! :D

Sue
Dx 6/05 Stage III Rectal w/lymph mets; LAR surgery 7/05, completed Folfox and radiation 3/06.

ASTEPHENS33
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Re: For Stage III's: NED for how long now?

Postby ASTEPHENS33 » Mon Nov 16, 2009 8:34 pm

I was diagnosed as stage IIIA in October, 2005 and have been NED since. It is still scary for me, though, whenever I need to have some type of screening.

Luv2Run
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Re: For Stage III's: NED for how long now?

Postby Luv2Run » Mon Nov 16, 2009 8:45 pm

My scenario sounds EXACTLY like SusanNore. Dx and surgery July 2005, chemo and radiation completed March 2006. Next yearly scan is Jan 2010.
dx ulcerative colitis @ 22 yrs
partial colectomy @ 41 yrs
dx Stage III rectal cancer -July 2005 - 46 yrs old
Ileostomy

Polarprincess
Posts: 793
Joined: Tue Aug 05, 2008 11:36 am

Re: For Stage III's: NED for how long now?

Postby Polarprincess » Mon Nov 16, 2009 11:19 pm

Also stage IIIa and NED since July of 2008
42 y/o Diagnosed Stage IIIa (T1 N1 of 26 M0) July 2008
LAR July 24 2008
Supposedly benign polyp with
invasive tubulovillous adenocarcinoma
12 cycles Fulfox
28 days chemoradiation
Finished April 20th 2009
Currently NED


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