NZJay wrote:after my scope last week, I'm NED 3 years and 11 months. Final scan to come
Dori W wrote:Hi--I had stage IIIC signet ring colon cancer with fourteen positive lymph notes. I was diagnosed in May 2008 and had my last treatment just before Thanksgiving that year, so 9 or 9.5 years, depending on how you want to count. I still remember how lousy I felt physically that Thanksgiving. Ugh.
I feel strange posting this--it's not really survivor's guilt, but I'm not sure what it is. I just want to show that I am a survivor who had a pretty iffy prognosis going in, and I am still here.
I don't want to diminish the feelings of folks dealing with a lot of uncertainty. One of the hardest things for me during and after treatment was that some of my friends and family could not accept my poor prognosis. I was in the depths, and they wanted me to remain "positive." I don't blame them--they were just dealing with their own fear--but it was hard. Now I'm sounding like a downer--Don't worry, I truly celebrate my NED status!
Happy Thanksgiving to those who celebrate!
lauragb wrote:Hi all! I was Stage IIIB rectal cancer and am now over 6 years out from surgery in which I had a complete pathological response to the chemoradiation. It has been a fabulous yet at times trying 6 years with reversal, then surgery for a bowel obstruction, then bone marrow biopsy for wonky blood counts (it took 5 years for my blood counts to reach almost normal levels post treatment),then lung nodules suspicious for lung cancer that ended up being nothing but were monitored for two years, blood in urine that just ended up being radiation irritation, and now finally almost a year of no one looking for anything! I just put all this on here to encourage any of you dealing with this kind of stuff. It feels good to have NED in the building. Best wishes to anyone needing encouragement.
Maelleous wrote:NED since surgery, just over one year. Have a colonoscopy this coming Monday and CT scans in March. Praying to stay that way!
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