For Stage III's: NED for how long now?

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stpio
Posts: 257
Joined: Mon May 26, 2008 6:14 am

Re: For Stage III's: NED for how long now?

Postby stpio » Fri Nov 11, 2016 7:36 am

9 year stage 3 colon cancer survivor and 6 year stage 1 breast cancer survivor. Hugs and best wishes to all for sharing your inspiring stories!
Female
Surgery July 17, 2007 Stage III
1 foot of colon removed near spleen
1/21 positive LN
5FU/Leucovorin/Oxilaplatin for 6 months
Completed chemo January 2008
Stage 1 Breast Cancer 2010/radiation Tamoxifen

Lee
Posts: 5297
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Sun Nov 20, 2016 5:12 pm

stpio wrote:9 year stage 3 colon cancer survivor and 6 year stage 1 breast cancer survivor. Hugs and best wishes to all for sharing your inspiring stories!


Congratulations on being a survivor to both cancers.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Bruce In Buffalo
Posts: 7
Joined: Tue Dec 13, 2011 1:05 pm

Re: For Stage III's: NED for how long now?

Postby Bruce In Buffalo » Sat Dec 31, 2016 10:59 am

Had A CT Scan December 28th, 2016....ALL CLEAR.
8 Years Cancer Free.

KEEP UP THE FIGHT
Bruce In Buffalo
stage III B Colon & unrelated stage I bladder
Diagnosed & surgically removed 12/08
1 off 17 nodes positive
Fulfox and radiation 2/09 - 8/09
8 Years NED!

lauragb
Posts: 897
Joined: Sun Aug 28, 2011 5:25 pm

Re: For Stage III's: NED for how long now?

Postby lauragb » Sun Jan 01, 2017 1:22 pm

I was five years NED on November 15 from stage IIIB rectal. Celebrating each day.
RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

mtipte
Posts: 80
Joined: Mon Dec 19, 2016 4:35 pm
Facebook Username: mario tipte
Location: Lima, Peru

Re: For Stage III's: NED for how long now?

Postby mtipte » Sun Jan 01, 2017 6:01 pm

Congrats! Just a question to all those NeDs, what supplements or natural stuff did you take?
Thanks.
Happy 2017 and be NED forever.
Dear Mum 60 y/o
dx 09/16 RC III CEA 9
Chemo/rad 28 from 10/16 till 12/16
Xeloda
multiple lymph nodes
Adenocarcinoma low grade invasive
Now 2000 mg Xeloda for 2 weeks as maint. before surg.
24/01/17 CEA 4,9
APR surgery permanent colostomy :( 24/03/17
3/26 nodes involved -LVI - clean margins
Staged after surgery: T3N1Mx
Infection due to bladder problems. Slow recovery.
CEA 1.7 :)
Adj. Chemo Xelox 6 rounds 29/04/17
After round 3 CT Scans Clear 15/07

God is faithful. Only Jesus.

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Jimswife
Posts: 902
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Mon Jan 30, 2017 4:35 pm

Annual scan results confirm still cancer free .... 5 years and counting , couldn't be happier x
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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horizon
Posts: 1434
Joined: Tue Apr 12, 2011 10:10 pm

Re: For Stage III's: NED for how long now?

Postby horizon » Mon Jan 30, 2017 11:42 pm

Jimswife wrote:Annual scan results confirm still cancer free .... 5 years and counting , couldn't be happier x


That's so great. Congrats to you both.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

Ron50
Posts: 628
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Tue Jan 31, 2017 1:24 am

I guess I should continue to update ,just ended year 9 ex stage 3c into 6 nodes. Ron. Best wishes to all.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Ron50
Posts: 628
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Tue Jan 31, 2017 1:26 am

Make that end year 19 ex stage 3c. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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dianetavegia
Posts: 2633
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Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia
Contact:

Re: For Stage III's: NED for how long now?

Postby dianetavegia » Tue Jan 31, 2017 9:34 am

Congratulations to all of you! These reports are what kept me going those 3 years I was NED. Now I look at the long term Stage IV friends who are NED. I'm coming up on 5 years this April after my liver resection and it's been 8 years 2 months since my original dx.

Don't give up HOPE! I do believe they'll find a way to stop colon cancer in its' tracks in our lifetime!
Stage IIIB cc surgery 1/7/09. 5/17 nodes. 12 tx FOLFOX
Stage IVa 2/15/12. CEA 6.4 PET = 1.5cm liver met. HR 4/11/12 No chemo

Eight yrs, 11 months since original dx. Five yrs. 7 months post liver resection. NED November 2017!
“O Lord my God, I cried out to You, And You healed me.”
Psalms 30:2

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Bob Bones
Posts: 162
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Facebook Username: markcooper1968@btinternet.com
Location: UK

Re: For Stage III's: NED for how long now?

Postby Bob Bones » Thu Feb 02, 2017 5:47 pm

11 years last week
Sigmoid Tumor 5cm T(3) , 11/23 nodes
Stage IIIC at age 37, Poorly differentiated
Surgery 23/01/06 ( Laparoscopic )
Converted to Formal because of my anatomy!
6 months of Xeloda
NED 10 years (touch wood)
Lynch Syndrome MSH2

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very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: For Stage III's: NED for how long now?

Postby very worried husband » Fri Feb 03, 2017 1:21 pm

we Crossed 6 years mark last week ( hopefully NED ) :D :D. Although We are watching lungs spots again found on Nov CT Scans. January Colonoscopy was clear. CEA Normal. we will have another scan in April and hopefully she will be declared CURED per our oncologist.
Life is so beautiful and busy with our 19 months little monster.
Best of luck everyone and thanks for what you all did for us.
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

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GreenLakeGirl
Posts: 757
Joined: Mon Jan 18, 2010 5:55 am
Location: Pacific NW

Re: For Stage III's: NED for how long now?

Postby GreenLakeGirl » Thu Jun 08, 2017 1:58 am

Bumping up.
Eight years since my stage III diagnosis, and six years since my lung surgery/scare.
2009, age 37 with a 2yo: CC, IIIB (T4N1M0). IBD history
2010-11: FOLFOX, 12 rounds. 5 surgeries (3-step Ileal j-pouch, infection, VATS)
Currently NED.
Mom, you can go the hard way if you want, but the easy way is much easier. ~my 3yo

laniemarie427
Posts: 8
Joined: Mon Jun 29, 2009 2:18 am

Re: For Stage III's: NED for how long now?

Postby laniemarie427 » Thu Jun 08, 2017 6:05 pm

I haven't been on here in years. I am 44 now & am 9 yrs. cured from 3c sigmoid. I had 14+ nodes out of 32. I believe my CEA was 11? This was 11/2007. My kids were 5, 3, & 6 mos...now 15, 13, & 10. I have permanent peripheral neuropathy. They hit me hard at 34 w/ Folfox, (the oxilaplatin), & clinical trial of Erbitux. I was 1 of about 3,700? that qualified for the lottery drug. KRAS testing wasn't done back then so I don't know my result.

By 2011-12, Essential Trevor dx, & finally tested for inflammation & ESR/SED 86 & CRP 55. As of Spring 2017, they are still elevated at around 60 & 30. Rheumys still have no answers. Chronic pain/Fibro/CFS/Bouts of Trigeminal Neuralgia/Sinus Migraines/Urticaria/Psoriasis.

In 9/16, IgM of 11/12 detected in blood. Being watched every 6 mos. now for MGUS, Waldenstroms, myeloma, or lymphoma.

In 4/17, Lip biopsy for Sjogrens, negative.

*Paternal gpa had stage 4 cc.
*Maternal Great Aunt had cc. (Still alive).

Many prayers out to anyone suffering from any cancer or disease.

~Melanie/Lanie

Lee
Posts: 5297
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Thu Jun 08, 2017 6:38 pm

laniemarie427 wrote:By 2011-12, . . . Psoriasis.



Congratulation on your NED status. I'm a 13 yr survivor. That word, psoriasis, caught my attention. Last summer, I was diagnosed with psoriasis. Dr was a bit surprised as I guess most people are diagnosed in there mid 20's, not their late 50's.

Anyway I always suspected my cancer/chemo treatment has something to do with me getting psoriasis. They threw the kitchen sink at me too. In fact when I got FOLFOX it was only available for stage IV folks. I was a stage IIIC. It was an experimental drug back in 2004. I was my Onc 1st and only patient for many months to get FOLFOX. I was selected for my overall good health and young age (47). To read they threw the kitchen sink at you too, I suspect there is a connection.

Thank you for checking in and the update.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!


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