For Stage III's: NED for how long now?

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cmrl
Posts: 169
Joined: Mon Apr 21, 2014 8:39 pm

Re: For Stage III's: NED for how long now?

Postby cmrl » Fri May 06, 2016 2:48 pm

Just got results of chest CT, and everything is stable. Apparently I have had lung nodes from the start, but they haven't changed. My CEA is 2.7, which has been slowly decreasing. So I am NED for 33 months. :)
Resection of splenic flexure 7/24/13
T3N2BM0, Stage 3c,12/29 nodes
Folfox x12 9/13-3/14
CT scan 4/14, enlarged spleen, otherwise clear
CT 4/15, spleen WNL.
6/17 3 cm benign polyp at ileocecal valve, awaiting removal

Kekeg
Posts: 183
Joined: Mon Oct 01, 2012 12:31 am
Location: Arkansas

Re: For Stage III's: NED for how long now?

Postby Kekeg » Thu May 12, 2016 2:27 pm

Want to share good news...May 2016 Five year scans of chest, abdomen and pelvis, NED. Just passed my five year anniversary as a survivor of Stage 3B colon cancer adneocarcinoma...Was not sure this anniversary would come, so grateful.

Like many of you experienced depression after treatments were over and I had to face reality... Started medication(took several tries to find right one), began therapy, then Left my stressful executive job 31 months ago, teaching college part time and in school full time, fulfilling one of my personal goals of obtaining a doctorate degree. Graduate in 9 days! Not much money but now in jeans and sneakers every day. I still see therapist monthly though we are now moving to every 6 weeks.

My oncologist and I had a laugh in April about my new "less stressful" lifestyle when I asked to delay scans until after my defense at university. I can sincerely advise others to talk with your doctor about medication and start counseling if you are experiencing depression. It is a real illness!

God Bless

Keitha
KeKeG age 58
Colon cancer - adneocarcinoma dx 5/2011
Stage III b
T3N1Mx
Rt colectomy 5/2011
Chemotherapy 6/2011 -2/2012
5FU, leukovorin, irrintocan
PET clear 2012
Lung nodules on chest CT 8/2012, unchanged 12/2012
CT 4/9/2013 NED, nodules unchanged
CT 4/2014 NED, nodules unchanged
CT 4/2015 NED nodules both lungs, unchanged size
CT 5/2016 NED 5 year survivor of Stage IIIB!!

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Sun May 15, 2016 8:35 pm

We were out of town with FIRST Robotic Competition in St Louis when I hit my anniversary day. It was not till the next day on the plane (late at night) on the way home that it hit me, It has been 12 yrs since my diagnoses. My signature line tells the story. I was told on my last Onc visit (Aug 2015), that I was cured. I should be more concerned about a new cancer than this one popping up again.

For those just starting this journey, NEVER give up the hope. When I started, FOLFOX was still experimental. I was my Onc 1st patient to get it. There have been many advancement since my diagnoses. More people are beating this cancer today, than when I was diagnosed. I carry many people in my heart that did not make up.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

dmondgirl
Posts: 104
Joined: Thu Apr 14, 2016 1:54 pm

Re: For Stage III's: NED for how long now?

Postby dmondgirl » Mon May 16, 2016 12:52 pm

Lee wrote:We were out of town with FIRST Robotic Competition in St Louis when I hit my anniversary day. It was not till the next day on the plane (late at night) on the way home that it hit me, It has been 12 yrs since my diagnoses. My signature line tells the story. I was told on my last Onc visit (Aug 2015), that I was cured. I should be more concerned about a new cancer than this one popping up again.

For those just starting this journey, NEVER give up the hope. When I started, FOLFOX was still experimental. I was my Onc 1st patient to get it. There have been many advancement since my diagnoses. More people are beating this cancer today, than when I was diagnosed. I carry many people in my heart that did not make up.

Lee



Lee i just want to let you know that you give me hope... every time i read one of your post my heart gets happy because it gives me hope that everything will be fine and that my fiance will overcome his battle too!!!
Fiance – Diagnosed 7/ 2015 @ 41yrs old- rectal cancer
Initial staging - T3N0M0
4 tx of Folfox/5FU
28 radiation with Xeloda
LAR surgery 3/17/16 final stating T2N1M0.

Rough Recovery
9/16-Recurrence @ resected area
Biopsy - Poorly differentiated adenocarcinoma, with signet ring cell features & neuroendocrine differentiation.

8 tx of Folfiri! No shrinkage everything stable .. lymph nodes behind his abdominal area grew a little bit
4 tx of Erbitux + Irinotecan- No shrinkage everything stable

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Jimswife
Posts: 902
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Tue May 17, 2016 1:49 pm

Over 4.5 years now , everything still fine as far as we know , scan in Jan all clear , bloods last month normal .... Going for the big 5 stone milestone , if we get there its party time !!!!
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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wwroam
Posts: 738
Joined: Sun Apr 06, 2008 8:13 pm
Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: For Stage III's: NED for how long now?

Postby wwroam » Thu Jun 23, 2016 8:11 pm

A day early but it will be 9 years tomorrow.
After the confusion of my colonoscopy of April 27th ( the Procedure Report referred to Lymphoma instead of Lipoma), I'm grateful to still be alive and well.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

Ron50
Posts: 622
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Fri Jun 24, 2016 9:38 am

Congrats on the 9 years Wayne and I hope things go well for your wife , all the best Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

Wilson02
Posts: 21
Joined: Wed Feb 24, 2016 1:08 pm

Re: For Stage III's: NED for how long now?

Postby Wilson02 » Mon Jul 11, 2016 2:09 pm

Congratulations... :D
Stage 3b CC
Diagnosed 05/27/15
Folfox 07/15 to 01/16 12 cycles
CEA at diagnosis (05/15) 18.8
CEA after surgery (05/15) 3.9
CEA 02/08/2016 - 6.8
CEA 03/08/2016 - 7.1
CEA 05/09/2016 - 6.6

AnnClare
Posts: 241
Joined: Wed Sep 09, 2015 3:31 pm

Re: For Stage III's: NED for how long now?

Postby AnnClare » Tue Jul 12, 2016 11:48 am

I continually read over these success stories to renew my hope and fortify me to keep going through Tx. It's so encouraging to be reminded that this thing, this beast, CAN be beaten once and for all.

A million thanks to those of you who constantly remind us to NEVER lose hope. You are angels. :)
42 yr. old female
Rectal cancer Stage 3C T3 N1 M0 - Sept 2015
28 rounds radiation w/Xeloda - Nov - Dec 2015
2/17/16 - Surgery to remove rectal tumor, lymph nodes (2/20+), ovaries & fallopian tubes, temp. ileostomy
3/28/16 - 9/26/16 -12 rounds FOLFOX w/full oxi
Ileo reversal 10/27/16; Port removed 12/1/16
Lung mets confirmed 2/6/17
March-May 2017 - brain mets; brain rad. 5/9-5/29/17

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John72
Posts: 335
Joined: Fri Jan 28, 2011 3:06 am
Location: Los Angeles

Re: For Stage III's: NED for how long now?

Postby John72 » Thu Jul 21, 2016 6:56 pm

Tommorow will be six years post surgery. No testing this year :)
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

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mmblz
Posts: 47
Joined: Sat Oct 10, 2015 3:03 pm

Re: For Stage III's: NED for how long now?

Postby mmblz » Fri Jul 22, 2016 9:04 pm

9 months. Looking forward (???) to a scan at one year...
37yo married 12 years. 4 kids 9, 7, 4, 2
2015-09-21 colonoscopy finds tumor in sigmoid, partial obstruction
2015-09-22 CT no mets, path G2 adenocarcinoma, CEA 1.2
2015-09-29 lap hemicolectomy at MSKCC
2015-10-06 pT3 N1a M0 stage IIIB
2015-10-22 folfox started - 12 rounds, last 4 no oxaliplatin
2016-10-27 clear CT !

nicola smith
Posts: 1039
Joined: Thu Oct 07, 2010 9:06 am

Re: For Stage III's: NED for how long now?

Postby nicola smith » Thu Aug 18, 2016 10:03 am

Still NED - sigmoidoscopy coming up in September. Still experiencing significant but manageable 'stocking' neuropathy in feet and lower limbs.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

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Annemiek
Posts: 303
Joined: Tue Apr 07, 2015 4:05 am
Location: The Hague, Netherlands

Re: For Stage III's: NED for how long now?

Postby Annemiek » Thu Nov 10, 2016 4:18 pm

Very happy to report I had my CT scanresukts this morning and I am still NED!!! Two years!!
It'/ been a hekk of a ride, but I'm over the worst now back at work, energy is back, still neuropathy in feet.but I'll take it and run with ir! As fast as I can away from cancer!
Tomorrow is my 45 birthday. Did not expect to make it two years ago.
Just look at me now! :lol: :lol: :D :lol: :wink: :D :D :D




Annemiek

43 yr mum of a girl aged 7
10/2014 coloncancer stage IIIc
11/2014 HIPEC, tumor removed + 12 positive out of 60 ln
hysterectomy, abdominal lining partly removed
Peridonitus, stoma fitted, 6 abcesses drained in abdomen
MSS, kras
3/2015 Folfox, someones playing kill Bill inside me
9/2015 finished 12 rounds,
First scan results: NED!!!!!!!!!
4/2016 ct scan: NED!!!
7/2016 ultrasound: NED
10/2016 cr scan: NED
5/2017 ultrasound: NED 2,5 yrs!
CEA 8/2017 1.8 stable.
CT scan 11/2017 NED! 3 yrs
CEA 1.9

Kathym
Posts: 81
Joined: Sun Dec 04, 2011 10:55 pm

Re: For Stage III's: NED for how long now?

Postby Kathym » Thu Nov 10, 2016 11:59 pm

Five years this month for me .
Stage 3 colon cancer diagnosed oct 2011 (50 yrs old)
Colon resection nov 2011
Chemo with folfox starts dec 6 finished 12 rounds may 2012
November 2013 clean scan
Ned!
"courage is being scared to death and saddling up anyway" ( John wayne)

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LeonW
Posts: 306
Joined: Sun May 03, 2015 4:59 pm
Location: Amsterdam, Netherlands

Re: For Stage III's: NED for how long now?

Postby LeonW » Fri Nov 11, 2016 5:41 am

Annemiek wrote: . . had my CT scan results this morning and I am still NED!!! Two years!!
It'/ been a hekk of a ride, but I'm over the worst now back at work, energy is back, still neuropathy in feet.but I'll take it and run with ir! As fast as I can away from cancer!
Tomorrow is my 45 birthday. Did not expect to make it two years ago.
Just look at me now! :lol: :lol: :D :lol: :wink: :D :D :D


Sincere congrats, plenty of reason to celebrate now: Birth, Life Until Now, who you are, etc
Enjoy a long and Exciting and Happy ride this side of the bump.
Hug - L
Dec 2012 - Dx CC; MM @ 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - nuclear liver scan, 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, bad delirium, emboli, encephalopathy) all cancer gone, pCR
2014/15 - recovery; benign polyp Apr '15
Apr 2016 - new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017, next Nov 2017


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