For Stage III's: NED for how long now?

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Tdubz
Posts: 89
Joined: Sun May 07, 2017 11:01 am

Re: For Stage III's: NED for how long now?

Postby Tdubz » Thu Jun 08, 2017 7:52 pm

This is a great thread, especially for all of us newcomers here. It's great to see all the success stories! Good luck to everyone going through this. I hope to see all our names here in 5 yrs!

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Thu Jun 08, 2017 10:38 pm

Tdubz wrote:This is a great thread, especially for all of us newcomers here. It's great to see all the success stories! Good luck to everyone going through this. I hope to see all our names here in 5 yrs!


Yes this thread is a GREAT inspiration. Please note Diana started this thread in November 2009. About 8 years ago. I'm sorry to say, a few of the people who were here in the beginning are not here today, BUTT make no mistakes, far more MANY of us our here today, MORE than even this thread can cover. It is possible to beat this cancer or for many people it is a treatable long term condition.

As our fellow member ClareAnn puts it,

My fellow asskicker, (love that line)

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

stpio
Posts: 257
Joined: Mon May 26, 2008 6:14 am

Re: For Stage III's: NED for how long now?

Postby stpio » Sun Jul 02, 2017 7:26 am

Lee wrote:
stpio wrote:9 year stage 3 colon cancer survivor and 6 year stage 1 breast cancer survivor. Hugs and best wishes to all for sharing your inspiring stories!


Congratulations on being a survivor to both cancers.

Lee

Thank you for your kind words Lee! :)
Female
Surgery July 17, 2007 Stage III
1 foot of colon removed near spleen
1/21 positive LN
5FU/Leucovorin/Oxilaplatin for 6 months
Completed chemo January 2008
Stage 1 Breast Cancer 2010/radiation Tamoxifen

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ocstacy
Posts: 193
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: For Stage III's: NED for how long now?

Postby ocstacy » Thu Jul 06, 2017 3:19 pm

I actually had to google what NED meant? "No Evidence of Disease!" That is so awesome for all of you ! I am praying for my mama too.. NED NED NED!!! :D
Caregiver/daughter to dear mother age 77, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low grade adenocarcinoma- 6 cm
Neoadjuv. Chemo/Rad. start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Chemo Xeloda post-surgery following reversal 2018
Love my mom, BUTT she is a horrible patient :roll:
Nam-myoho-renge-kyo :!:

Lee
Posts: 5258
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Thu Jul 06, 2017 5:41 pm

ocstacy wrote:I actually had to google what NED meant? "No Evidence of Disease!" That is so awesome for all of you ! I am praying for my mama too.. NED NED NED!!! :D


When people are NED, they reside in NEDville and the expression is "may you always reside in NEDville" :D

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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NZJay
Posts: 640
Joined: Mon Dec 16, 2013 3:00 pm
Location: NZ

Re: For Stage III's: NED for how long now?

Postby NZJay » Sat Jul 08, 2017 9:08 am

3 years and 7 months NED from T4B Stage 3B/C (depends who I ask)
11-13 Dx CC
SPS T4b(touched stomach organ),N1(3/23),M0(Stage 3B)
11-13: resect + partial gastrect
2-14: 1 Tx Cape + Oxy; renal failure, colitis
4-14: 7 Tx Capecitabine
1-15: clear CT
7-15: clear scope
1-16: clear CT
3-17: clear CT
10-17: clear scope (5 year gap now!)
CEA@dx: 8.4 / 6-15: 4.0 / 10-15: 4.2 / 2-16: 4.9 / 7-16: 4.9 / 11-16: 5.0 / 6-17: 4.5
NED since resection

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horizon
Posts: 1424
Joined: Tue Apr 12, 2011 10:10 pm

Re: For Stage III's: NED for how long now?

Postby horizon » Wed Jul 19, 2017 3:22 pm

I can officially update my signature now. Six years NED. This was something I didn't dare hope for early on in my diagnosis. These posts always gave me hope in the beginning so hopefully I'm paying it forward.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 6 years NED). Is this real life?

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Jimswife
Posts: 902
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Fri Jul 21, 2017 5:24 pm

In October 6 years cancer free ... as far as we know according to follow ups , finished with scans now just bloods every 3 months
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Youngjen81
Posts: 47
Joined: Thu Feb 25, 2016 9:46 am

Re: For Stage III's: NED for how long now?

Postby Youngjen81 » Sat Jul 22, 2017 2:53 am

1 year since curative resection!! Ileostomy successfully reversed Jan. 27, 2017
Diagnosed at 35 after 8 years of symptoms
T3n1m0, clinical diagnosis, suspicious spot on iliac crest and left lower lung, unchanged
28 radiation, with Xeloda 3000 mg
LAR with temp ileostomy 6-21-16, pCR!
Ileus and blockage, 12 day hospital stay
Port placement 7-26-16
Fofox begins 8-2-16
Mom to 4 boys(2, 10, 11, 22) they are my world!
Mother diagnosed 5/2016
Clinical stage t3n2m0, cysts on liver and kidneys
Last day of chemoradiation 7-28-16, can't wait! It's hard seeing my Mom in pain

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ocstacy
Posts: 193
Joined: Mon Jun 19, 2017 11:29 pm
Facebook Username: stacy

Re: For Stage III's: NED for how long now?

Postby ocstacy » Mon Jul 24, 2017 1:39 am

Also stage IIIa and NED since July of 2008


Super awesome :mrgreen:
Caregiver/daughter to dear mother age 77, dx 5/09/17 because of me!! :wink:
Rectal CA Stage 3 low grade adenocarcinoma- 6 cm
Neoadjuv. Chemo/Rad. start 7/10/17 ended 08/16/17
3D Lap. surgery @ Keck USC, Dr. Sang Lee 10/17/17 temp ileostomy
11/1 back @ hospital due 2 abscess/hernia - back home 11/06/17 antibiotics
NO LYMPHS INVOLVED! NEAR PATHOLOGICAL RESPONSE! YAY! :shock:
Chemo Xeloda post-surgery following reversal 2018
Love my mom, BUTT she is a horrible patient :roll:
Nam-myoho-renge-kyo :!:

mm66ny
Posts: 427
Joined: Mon Jan 18, 2010 11:11 pm

Re: For Stage III's: NED for how long now?

Postby mm66ny » Thu Jul 27, 2017 9:12 am

NED since June 2009.
Dx RC, T3N1M0, Feb. 2009
LAR, Ileostomy June 2009
12 Folfox tx
Ileostomy takedown Jan. 2010
June 2014 five years NED
Age 48
married w/7 children
Generally irresponsible

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edinaman
Posts: 1090
Joined: Wed Oct 26, 2005 10:15 pm
Location: Minnesota

Re: For Stage III's: NED for how long now?

Postby edinaman » Thu Jul 27, 2017 9:44 am

Just had my 13th anniversary.
Went in for surgery for a cyst on my bladder, and they found colon cancer growing on the outside of the colon. Got to have two surgeries at the same time! Stage 3, one node involved.

Basil
Posts: 207
Joined: Thu Mar 16, 2017 12:33 pm

Re: For Stage III's: NED for how long now?

Postby Basil » Tue Aug 01, 2017 7:30 am

I'm just knocking at the door. May stand on the porch for a while. NED less than 12 hours. Might be all done with treatment, i.e., foregoing post-surgery chemo. Hope that s true and hope to find a happy home in this thread.
40 y/o male, kids 6&9
Dx 3/16/17, rectal cancer S3,t3,n1,m0
PROSPCT trial (FOLFOX in lieu of chemorad)
FOLFOX 4/5/17 - 6/26/17
LAR 7/31/17, temp ileo
pathological complete response
Adjuvant chemo cancelled (IDEA Study)
Ileo reversed 9/25/17
NED

Cathie
Posts: 78
Joined: Fri Mar 28, 2014 12:09 pm

Re: For Stage III's: NED for how long now?

Postby Cathie » Tue Aug 01, 2017 11:03 am

14 years.....since March of 2003
Dx'd colo rectal cancer Oct 2002
radiation chemo November December 2002
Surgery Mar 2003 which was a temp ileo
Summer of 2003 more chemo
Ileo reversed Mar 2004
Cancer free since then

Ron50
Posts: 621
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Wed Aug 02, 2017 6:49 am

I just have to hang in till next jan 22nd when I will pass year twenty ex stage 3c. We have quite a club going,hugs to all Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo


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