For Stage III's: NED for how long now?

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Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Wed Mar 21, 2018 9:25 am

CAGirl wrote:1 year NED. Woo hoo! (It does count from resection date, right?)


Generally yes, from your resection date.

Congratulation!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

Margo
Posts: 86
Joined: Wed Dec 19, 2007 3:18 pm
Location: California

Re: For Stage III's: NED for how long now?

Postby Margo » Mon Mar 26, 2018 4:19 pm

My husband is cancer free since 7/31/2007, 11 years almost. :D
We live happy, simple life, we don't think about his illness anymore,so I don't post on this forum anymore...
Be strong, never give up ! Believe you can be cured. He had stage III B colon cancer ( see my signature).
Good luck to everybody !
Margo
Margo,
Husband 50 yrs dx 07/16/07 CC stage III B, low grade
right colectomy 07/31/07, 50 lymph nodes/ 3 positive, surgeon Gil Galloway ( La Jolla, CA),
FOLFOX 4 ,
CEA before sur. 1.32,
NED

Ron50
Posts: 660
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Tue Mar 27, 2018 1:16 am

Hugs to you both, well done . Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Mon Apr 16, 2018 3:40 pm

Coming up 7 years cancer free , ct results today confirmed that , feeling very blessed x

Nextgen
Posts: 26
Joined: Sun Aug 07, 2016 12:38 pm

Re: For Stage III's: NED for how long now?

Postby Nextgen » Mon Apr 16, 2018 3:58 pm

Hi All,

My mum has been NED since May2014 Liver resection, followed by 8x Xeloda+cetuximab.
First diagnosis was Dec2011 extended right hemicolectomy, followed by 12x folfox.
Praises be the LORD! Hosanna in the highest! Amen!
My mum 55yr on first diagnosis
Dx cc T3N2bM0 on Dec2011 CEA5.0, extended right hemicolectomy Dec2011, 12x Folfox CEA1.9,
Liver mets on Feb2014 CEA6.4, liver resection on May2014, 8x xeloda+cetuximab CEA2.8,
CT scan shows eccentric bowel wall thickening of rectosigmoid region Jul2016 CEA1.8
Colonoscopy on Aug2016 NED
CT on Mar2018 NED
CEA 1.4 Nov2016
CEA 1.5 Mar2017
CEA 2.1 Jun2017
CEA 1.1 Aug2017
CEA 2.7 Nov2017
CEA 1.3 Dec2017
CEA 1.8 Mar2018
CEA 1.8 Jun2018
God have mercy, bless & save mum! Amen!

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horizon
Posts: 1473
Joined: Tue Apr 12, 2011 10:10 pm

Re: For Stage III's: NED for how long now?

Postby horizon » Mon Apr 16, 2018 9:02 pm

Jimswife wrote:Coming up 7 years cancer free , ct results today confirmed that , feeling very blessed x


Awesome! They stopped doing CT scans on me. So happy for both of you.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 7 years NED). Is this real life?

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WriterGirl1969
Posts: 492
Joined: Sat Mar 05, 2016 3:48 pm
Location: Central NY

Re: For Stage III's: NED for how long now?

Postby WriterGirl1969 » Tue Apr 17, 2018 4:16 pm

2 years NED for me as of today's results.
Onward! :)
--Tracy
DX 3/4/2016 Colon Cancer; age 46 Mom of 4-yr-old
Stage IIIB: T3N1M0
3/31/16 Left Hemi
4 to 10/2016: Xeloda Monotherapy
CEA: 10/16 0.56, 1/17 0.54
3/6/17 CT clear; 4/17/18 CT clear;
NED 2 years
“If I can help somebody as I walk along, then my living shall not be in vain.”

nomoretacos
Posts: 50
Joined: Sun Mar 27, 2016 5:57 pm

Re: For Stage III's: NED for how long now?

Postby nomoretacos » Sat Apr 21, 2018 8:28 am

Stage 3C here, last month was 2 years for me as well since surgery :D

Post chemo I travelled around the world on and off for nearly a year and now i'm back to fulltime work. It's been one hell of a ride!
03/16 Dx Stage IIIC, sigmoid resection surgery,T3 N2b M0, 7/20 nodes, 4 tumor deposits, CEA 3.7, age 31
04-10/16 Folfox with delays and reductions
10/16 Post chemo CT scan shows two non specific spots (one liver, one lung)
11/16 Port removed
12/16 CEA 0.9
09/17 NED
03/18 NED

Lee
Posts: 5621
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Wed May 02, 2018 4:10 pm

Just to update, I've hit the 14 yrs mark since diagnoses of stage IIIC rectal cancer. My signature line tells the story. It is possible to beat this cancer.

Good luck to all of those in the trenches.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

hopeful1
Posts: 4
Joined: Wed Jan 21, 2015 5:39 am

Re: For Stage III's: NED for how long now?

Postby hopeful1 » Wed May 02, 2018 11:48 pm

My husband was diagnosed with stage IIIa bowel cancer in 2013. He was 4 years NED (except CEA slightly raised in 5's). Liver met in 2017 he had a resection and now 1 year post NED on CT. CEA still raised (currently 8.2) but this might be his normal. He was 43 years old at diagnosis and we are glad we are making the stats for 5 year survival!
Expecting baby number 2 later this year. :shock:
Husband diagnosed with stage III a 2013.
Bowel resection and Folfox 2013/14. CEA less than 3.
Reversal ileostomy 2014.
6 monthly CT's NED 3 monthly CEA's slow increase to 5's.
PET scan no bowel cancer. Early stage thyroid cancer.
Thyroidectomy 2015. CEA's still in 5's. NED on CT.
2017 small liver mass. CEA 35.Liver resection and Folfox CEA less than 3.
2018 NED on CT. CEA 8.2.

Capri
Posts: 62
Joined: Thu Apr 19, 2018 5:59 pm

Re: For Stage III's: NED for how long now?

Postby Capri » Thu May 03, 2018 2:43 pm

Thank you Hopeful1; your post renews my hope for my son.
I wish you and your husband continued good health and congratulations on your soon-to-be new addition to the family.
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT 2 liver hemangiomas, PET scan-nothing "lit up"
Neuropathy has started.
7/30/18 Completed 12 cycles of FOLFOX.

zx10guy
Posts: 162
Joined: Mon Jan 07, 2013 12:54 pm

Re: For Stage III's: NED for how long now?

Postby zx10guy » Thu May 03, 2018 4:13 pm

Had my scan today and just picked up the radiology report. NED. So this will be 5.5 years out from when I was first diagnosed Stage 3b descending colon and coming up on 2 years since being diagnosed Stage 0 appendicial cancer. Now I'll have to see where my CEA is which has been averaging around 14-15 all of last year with a high point of 20 on one test. Don't get blood drawn till I have my office visit with my oncologist on the 14th with results available 2 to 3 days out.

Capri
Posts: 62
Joined: Thu Apr 19, 2018 5:59 pm

Re: For Stage III's: NED for how long now?

Postby Capri » Fri May 04, 2018 8:25 am

Wonderful news, I'm happy for you! I'm hoping that your CEA is way down as well. You've really done very well.
Mom to son 46 yo at Dx (2017)
9/17 rectal bleeding
12/17 colonoscopy sigmoid tumor; CT & MRI chest, abd,& pelvis clear; CEA normal
1/18 Robotic resection, Path: adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 Port placed; 2/26/18 Begins FOLFOX
6/18 On Early surveillance CT 2 liver hemangiomas, PET scan-nothing "lit up"
Neuropathy has started.
7/30/18 Completed 12 cycles of FOLFOX.

Dori W
Posts: 28
Joined: Mon Aug 25, 2014 2:30 pm
Facebook Username: Dori Woodhouse

Re: For Stage III's: NED for how long now?

Postby Dori W » Fri May 04, 2018 4:05 pm

I'm coming up on ten years. I was diagnosed on May 8th, 2008 and had surgery on May 15th 2008, followed by six months of chemo. I was stage 3c with fourteen positive lymph nodes and a particularly aggressive type of cancer (signet ring cell). I've never had a recurrence! I've had my ups and downs, but life is good. I feel very lucky to be here.
Diagnosed stage 3C signet ring colon cancer in May, 2008
14 out of 18 positive lymph nodes
Final treatment in November, 2008
NED ever since
I used to have an account under "Dori," but I've lost access to it.
You can view my old posts here: search.php?author_id=1446&sr=posts

Ron50
Posts: 660
Joined: Fri Feb 10, 2006 7:04 pm

Re: For Stage III's: NED for how long now?

Postby Ron50 » Fri May 04, 2018 9:44 pm

Congratulations Dori W. I'm glad to hear that you are getting some quality life. I'm out past 20 years (stage 3c) I know that surviving survival is not always easy but some of us manage to slip through the cracks so continue to make the best of it, Hugs ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo


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