Congratulation on the 13 year mark, sorry for your other medical issues.
Well I celebrated my 16 year mark a few months back. Still NED!! Finally updated my signature line. Glad to be here, butt this virus scares me. My husband has been working from home for sometime now. Don't think that is going to change anytime soon.
I had a cancer scare this past fall. I had radiation back in 2004 and I know this puts me at a higher risk for bladder cancer. Anyway, I started passing blood. When I told my husband, his first words were avoid Dr. Google. I told him I have every intention of avoiding it until I get a diagnoses. Saw my PCP, yep you have blood in your urine, sent me off to see the Urologist.
Urologist set up a Cat scan. Bladder looks good, but radiologist is picking up something on my left kidney. Next they schedule an MRI, yep there is something there. During the mean time, I see my GYN and tell her what is going on. She says follow up with the Urologist, butt don't be surprised if the bleeding is coming from your vagina. As she put it, she has never seen such bad scar tissue and damage that she see in my vagina. Radiation damage
I had surgery where the Urologist went into my bladder, up a tube (sorry remember the name) and into my kidney where he took a few biopsy. The good news no cancer, still not 100 sure what it was. I will see the Urologist next month where they will run a few test to make sure I have healed up in that area. I will ask him. Glad to still be cancer free.
For those just starting, know that many people are beating this disease. I am one of them. So don't give up the hope.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
chemo - FOLFOX
NED - 16 years and counting!