For Stage III's: NED for how long now?

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Joined: Wed Dec 14, 2005 10:04 pm
Location: Seattle, Washington

Re: For Stage III's: NED for how long now?

Postby ASTEPHENS33 » Fri May 04, 2018 10:19 pm

I was diagnosed in 2005 and am still NED. I do have colonoscopies every year and endoscopies every 3-5 years. I had genetic testing done, and I do have the mutation for AFAP. Glad to see ALL the survivors!

[Ana & Alex]
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Joined: Tue Feb 14, 2017 5:14 pm
Location: Austria

Re: For Stage III's: NED for how long now?

Postby [Ana & Alex] » Fri May 11, 2018 11:09 am

I dreamt about this day so many times, when I could post a victory on this thread.

Yesterday was my surgery's and stoma's birthday. My life is going so well. I'm working and having a ball with my baby girl. And I'm doing bloodwork every two months, CTs every six months and a colonoscopy per year. Today I had my second scan since End of chemo and everything is ok!

I'm so happy, I could explode.
I hope I still have a long life ahead and I can inspire someone who is young and has rectal cancer and has to go through everything we have to, that life can be really sweet again!

Keep fighting and keep hoping!
All the best for everyone,

Dx @ 29 yo. Mum (2 y.o.) & Wife

12/2016: Rectal AdenoCa G2. CEA 4.3. RAS Wild. MSS. IIIB.
01 - 03/2017: 28 RTx + CHT 2,5 g/d Capecit.
03 - 06/2017: Suplemments and Cimetidine.
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2aM0 (4/15), good cCR, limited pCR
06 - 8/2017: 4x CapOx 3,5 g/d (2x Oxi reduced to 80%)
09 -11/2017: 3x Capecit. monotherapy 4g/d
12/2017: Aspirin, Vit. D3, Curcumin, Multivitamin.

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Facebook Username: Robin.lawthers
Location: Florida

Re: For Stage III's: NED for how long now?

Postby Robino1 » Fri May 11, 2018 12:04 pm

Excellent report :D

I wish you continued NED Status!
At 54 2014 1st colonoscopy colon cancer detect
Colon resect margins clear. No chemo Stage II
Distend abd, pain in intestines.
CT scan seeding & Ascites
Lap diag - cancer on the omentum
CEA 217; 219
FOLFOX started 6/17
CEA 202
8/29/17 CT melting of tumor.
Latest CT scan shows 2 new tumors and return of ascites.
CEA: (2017)9/30 -109; 10/12 -99.1; 11/4 -90.7; 11/30 -70.7; 12/14 -83.4; (2018)1/4 -73.3; 2/1-84.2; 89.2; 89.8; 88.5; 81.8: 93.5
BRAF V600e

Posts: 51
Joined: Mon Jan 24, 2011 5:47 pm

Re: For Stage III's: NED for how long now?

Postby thelongglass » Sun May 13, 2018 7:35 pm

It really has been a long time since I posted here. I have made the effort to live my life fully since diagnosis and treatment and been incredibly busy doing that and mothering my three girls. “Challenge by Choice” has been my motto ever since going through that challenging year of treatment and surgeries not by choice, but by necessity.

I am applying to Physician Assistant programs this year, something I set my sights on around my two year NED mark. Returned to university for a few prerequisites and became a medical assistant in order to attain the required 2000 patient care hours to apply to my preferred program. I learned so much as a patient and from all of the other patients I met or read about here online. My PAs were especially important to me in education and communication and care. Regardless of whether I get in, I feel grateful to be here with the opportunity to try.
12/22/10- Diagnosed at 30 yo
Rectal Stage IIIB, T3N1M0
1/11/11- 25 doses radiation w/ 24/7 5FU pump
4/8/11- LAR-Complete Response to Therapy!
5/13/11- 12 treatments of FOLFOX started
11/11- ilestomy reversed, port-a-cath removed
NED since
Mother of 3 beautiful little girls

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