For Stage III's: NED for how long now?

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wineoceros
Posts: 16
Joined: Mon Jan 24, 2011 9:13 pm
Facebook Username: James Robert McLaughlin
Location: Erin,Ont

Re: For Stage III's: NED for how long now?

Postby wineoceros » Sat Jan 25, 2014 11:19 am

3 years today!
DX@ 47
DX 01/17/11
Surgery 01/25/11 Sig/resection
T3N2a 01/31/11/ 5 of 20 Nodes Pos.
Chemo FOLFOX 4, 12 rounds Finished Sept/3/11
NED Oct/11,April/12,Oct /12, March/13, Oct/13, Mar/14,

nicola smith
Posts: 1040
Joined: Thu Oct 07, 2010 9:06 am

Re: For Stage III's: NED for how long now?

Postby nicola smith » Thu Feb 06, 2014 11:29 am

4 years today. Last week's CEA was normal - 1.3. Still living (well) day-by-day.
UC history
11/09: Dx, CEA 2.9
02/10: colectomy, temp ileo; pT3N1Mx
10/10: 12 Folfox6
03/11: jpouch
2010/11/12/13/14: 6 PET and/or CT's - NED
quarterly 03/2010- 03/2015: CEA range 0.8-1.3
03/2015: discharged to GP :D

nkoske
Posts: 442
Joined: Fri Feb 22, 2013 2:00 pm
Location: California

Re: For Stage III's: NED for how long now?

Postby nkoske » Thu Feb 06, 2014 12:30 pm

Year out from surgery, 11 days ago.
Nick, DX @ age 34, IIIB Rectal Cancer 10/2012
ChemoRad IMRT 11/2012
Laparoscopic LAR 1/2013 (No Ileo)
Post Surgery Path IIIB (2/15 LN)
Chemo 2/2013 (XelOx)
Currently NED, Graduated from Med Onc 10/2017

steveincolorado
Posts: 14
Joined: Sat Sep 15, 2012 6:39 pm
Location: East of Colorado Springs, Colorado

Re: For Stage III's: NED for how long now?

Postby steveincolorado » Thu Feb 06, 2014 1:22 pm

Diagnosed during a coloscopy 6th of August 2012, Surgery 27th of August where I was diagnosed at stage 3C (Signet Ring Cell) with 6 out of 12 Lymph Nodes cancerous). Six months of Chemo that ended March of last year. So far all of my blood work and CT scans have been good.Blood work last month saw my CEA at 2.0, down from 2.2 previous test.
This is my first post on the forum. I joined the forum sometime towards the end of 2012. Mostly I just read other peoples posts which have answered my questions without me having to ask. :-)

Still too soon for me to be thinking about being NED but I seem to be cancer free at the moment.

Thanks

Steve
DX Stage IIIC 6 Aug 2012 at age 58
Resection 27 Aug 2012
PET scan 25 Sep 2012 no further cancer detected
Chemo started 15 Oct 2012
--Oxaliplatin
--Fluorouracil
--Leucovorin
Chemo completed 20 March 2013
CT scan 25 April 2013 No sign of cancer

sonofsal
Posts: 22
Joined: Thu Jan 30, 2014 7:09 pm

Re: For Stage III's: NED for how long now?

Postby sonofsal » Thu Feb 06, 2014 7:00 pm

I would just like to say thank you to whoever bumped this thread. I don't know if I would have had the courage to find it on my own. Really lifted my spirits and gives me a lot of hope. I go for my first visit with the Oncologist this next week. Wish me luck!
DX Jan.13. Stage 3A CC at 43 y/0
Lap. resection - 2/25 pos Nodes
T2N1M0
6 Mo's Xeloda and Oxaliplatin
Genetic testing pos. for Lynch Syndrome
MSH2 Mutation
Daddy to Great 9 Y/O girl - Not ready to leave Her

lydia123
Posts: 771
Joined: Sun Jul 04, 2010 11:23 am

Re: For Stage III's: NED for how long now?

Postby lydia123 » Sat Feb 08, 2014 5:24 pm

I hardly post now. My husband is now just over 3 years post treatment.

Getting rid of the fatigue took 2.5 years. There's still some neuropathy. But life is good, and we are both healthy.
lydia123
caregiver to husband dx stage III colon/rectal cancer 5/10
6/10 surgery
7/10: FOLFOX began -- became nausea management expert
12/10: Chemo-radiation ended, scans clean.
NED since, but some scans required follow-up

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Mon Feb 10, 2014 9:26 am

28 months ned here ... Result from ct today confirm "all clear" ... Has been promoted to yearly scans now x
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

Mary316
Posts: 157
Joined: Thu Apr 19, 2007 12:37 pm
Location: Michigan

Re: For Stage III's: NED for how long now?

Postby Mary316 » Wed Apr 09, 2014 8:58 am

It's been a while since I have posted on this board......its a good thing for me because it means I don't consume myself with "cancer thoughts" anymore. However, I feel like I should post and give a quick update, it was always so comforting to me while in the middle of my journey to read positive stories and by the grace of god, I am one of those stories......(so far....hate the thought of jinxing myself!!)

I was diagnosed 7 years ago on February 8, 2007. I was a stage 3C with 8 out of 12 nodes involved. I had surgery right away and began surgery on March 16, 2007 (my 32nd birthday). I completed 6 months of chemotherapy (Folfox) right on time and now am still on the road to recovering "mentally." My oncologist officially released me on March 16 2013 (who would have known my birthday would be soooo significant in my life???). I am going to get genetic testing done this summer, but otherwise, I'm trying to make the best out of my life and not allow the scary bad thoughts to consume me anymore.....It's a process, but it is not impossible!! Keep positive, and stay strong!!
Mary
Stage IIIc Feb. 2007 (31 years old)
Completed chemo Aug. 2007
43 year old mother to 16 & 14 year old boys

Stevet
Posts: 54
Joined: Thu Mar 06, 2014 9:35 pm

Re: For Stage III's: NED for how long now?

Postby Stevet » Wed Apr 09, 2014 9:13 am

IIIC, and I've been NED for 20yrs this month.

Mary316
Posts: 157
Joined: Thu Apr 19, 2007 12:37 pm
Location: Michigan

Re: For Stage III's: NED for how long now?

Postby Mary316 » Wed Apr 09, 2014 9:22 am

That is awesome Stevet............such great news to hear!! Thanks for taking the time to share!
Mary
Stage IIIc Feb. 2007 (31 years old)
Completed chemo Aug. 2007
43 year old mother to 16 & 14 year old boys

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wwroam
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Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
Contact:

Re: For Stage III's: NED for how long now?

Postby wwroam » Tue Jun 17, 2014 2:13 am

I had an oncologists appointment this afternoon. Still all clear. That will make it 7 years on the 25 th.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

BrendaB
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Facebook Username: Brenda Bliskowski
Location: Minnesota

Re: For Stage III's: NED for how long now?

Postby BrendaB » Tue Jun 17, 2014 10:23 am

This month has been two years since completing treatment. Had a yearly scan as was still clear. :D
10-27-11 Diagnosed CC
11-15-11 Colon resection, complete hyst.
Staged T3N1a, one out of 33 lymph nodes
12-11 Started Oxali and Xeloda, 8 rounds
6-8-12 Very last dose of Xeloda!
6-26-12 CT scan results, NED!
7-26-12 Ilieo. reversal, port out

Joy
Posts: 460
Joined: Wed Apr 12, 2006 6:33 pm
Location: Ontario, Canada

Re: For Stage III's: NED for how long now?

Postby Joy » Wed Jun 18, 2014 9:03 am

Oncologist has cut me loose. No more CT scans...she did not say "cured" but she did say
that the chance of a recurrence was not great for colonrectal.

Sadly, I am not "out of the woods"...I was diagnosed with CLL (chronic lymph leukemia),
and MDS (anemia)..MDS probably caused by my prior radiation/chemo for colonrectal.
My kidneys are damaged....probably caused by prior radiation/chemo for colonrectal.
I was left with a wicked case of neuropathy in my feet and legs...caused by prior radiation/chemo for colonrectal.

This sounds very depressing...BUT I am still enjoying life!! I go to Florida for 6 months every winter, I have 3 wonderful
little Grandkids, I have a wonderful caring family and husband.

LIFE IS GOOD :D

I am so thankful for the care and treatment I received, and especially for my Colonrectal oncologist. She said "it is between you and\
the cancer and I am betting on you". Even with all the post chemo medical problems...I have no regrets...I believe that FOLFOX/RADIATION
saved my life :D
Joy
Stage III rectal cancer 2 nodes out of 19
LAR January 4th 2006
2 rounds of FOLFOX
28 continuous radiation with continuous 5FU
6 rounds of FOLFOX
NED

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dianetavegia
Posts: 2724
Joined: Sat May 16, 2009 8:47 pm
Facebook Username: Diane Weldy Tavegia
Location: Villa Rica, Georgia

Re: For Stage III's: NED for how long now?

Postby dianetavegia » Thu Jun 19, 2014 6:37 am

I started this thread several years ago when I was Stage IIIB and looking for hope. I stopped posting on it except for rare occasions after a small liver was found at my 3 year appointment making me Stage IVa. Since then I've had an open liver resection where they took 80% of my liver to remove a teeny, tiny met and no follow up chemo. I've been cancer free with a normal CEA for 26 months post liver resection. I am now 5 years 5 months and 2 weeks post my original colon resection.

When mets come, and they do for more than 50% of us, don't give up! My onc actually said that having a solitary liver met so many years out, and such a small met gave me a huge chance for this being my cure. Don't give up and don't lose hope!
Stage III cc surgery 1/7/09. 12 tx FOLFOX
Stage IV PET = 1.5cm liver met. HR 4/11/12

11 years since dx and 7 3/4 years post liver resection.
Pronounced CURED and discharged by onc

“O Lord my God, I cried out to You, And You healed me.” Psalms 30:2

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Bussman
Posts: 138
Joined: Sat Jan 22, 2011 1:49 pm
Location: Pennsylvania, USA

Re: For Stage III's: NED for how long now?

Postby Bussman » Thu Jun 19, 2014 10:48 am

Had scans on Monday, and got results yesterday: "all clear". ~3.5 years NED from resection, just under 3 yrs NED from end of treatment. Humbly grateful and somewhat amazed at how things have gone so far!

Bussman
1/21/11 dx CC @ 53
2/09/11 rt colon resect
0/18 LN; 4 tumor dep.
stage IIIB T4a N1c M0
3/11- 8/11 - 12 FOLFOX tx
6/11, 12/11 PET/CT scans- clean
1/12 follow-up scope - clean
6/12, 12/12,6/13 PET/CT scans- clean
NED


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