For Stage III's: NED for how long now?

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Re: For Stage III's: NED for how long now?

Postby Smoore » Mon Jul 22, 2013 6:24 pm

I have been NED since November 13, 2009. So far.....I never get bored saying that, writing that, or hearing that!

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very worried husband
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Re: For Stage III's: NED for how long now?

Postby very worried husband » Tue Aug 27, 2013 9:16 pm

congrats smoore. I was also supposed to share this great news of my wife NED today, but we have a setback. she had a lung nodule discovered in today's results. so not unfortunately for us... but congrats to you. may you remain NED forever...
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)

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Location: Los Angeles

Re: For Stage III's: NED for how long now?

Postby John72 » Wed Aug 28, 2013 2:40 pm

Passed the three year point in July. Just scanned and got the results today. Everything was clear, no further scans(unless I have symptoms of recurrence).
7/13/10 CC
7/23/10 -3C RC, 7cm,15/33 lymph nodes
8/31/10 5 1/2 weeks of radiation + Xeloda
11/12/10 6 rounds Oxy + Xeloda
3/25/11 Finished chemo
6/15/11 Colostomy reversal followed by infections
9/05/14 Clear CT scan

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Re: For Stage III's: NED for how long now?

Postby kiwiinoz » Wed Aug 28, 2013 7:20 pm

Congrats John
Must be scary to have no scans, but really good news and thanks for posting
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

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Location: Madtown, WI

Re: For Stage III's: NED for how long now?

Postby brigita » Wed Sep 04, 2013 7:50 pm

I've been too superstitious to post in this thread until now: I celebrated my 5 year anniversary of completing chemo a few weeks ago. Between that and my complete response to radiation, I'm comfortable saying it should be smooth sailing from here on out.

In other news, I'm running my first marathon in November. Because screw you cancer and screw you neuropathy--I'm running the show here.

Stage III rectal @ 33, 4.5mo postpartum
Ovary transpo: 12/07
33 tx rad+Xeloda: 2/08
Lap LAR 0/11 +nodes: 3/08
8 FOLFOX tx: 8/08
Ileo reversal: 9/08
CIPN since 10/08
Normal uterus + lame ovaries = infertile
26.2 11/13

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Re: For Stage III's: NED for how long now?

Postby crockpotgirl » Sat Nov 09, 2013 8:34 pm

I just passed my 4 year mark. There are actually some days that I don't think about cancer! I don't check back on the CC forum as much as I did during the first couple of years, but I do want to share good news for those who are looking for hope.

BTW, even though my scans put me at a stage II, my onc always insists that I might have been a stage III. I'll never know.

This forum was extremely helpful for me. I'll always be grateful for the hope I found here. Blessings to you,

T3N0M0 rectal IIa 11/6/09 age 43
5FU and radiation
LAR, BSO, j-pouch, ileostomy 2/12/10 at MD Anderson 0/21 nodes
Folfox4 3/10
Ileostomy takedown 7/21/10
Neuropathy 8/10
Port out 10/29/10
Married, 4 young boys, lots of pets
Thankful to be alive!

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Re: For Stage III's: NED for how long now?

Postby Jimswife » Sun Nov 10, 2013 11:59 am

Just past the 2 year mark cancer free since oct 19th 2011
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Location: California

Re: For Stage III's: NED for how long now?

Postby Margo » Mon Nov 11, 2013 4:20 pm

You can see my old post on the first page. My husband is doing great more than 6 years after surgery.
I wish you all the same.
Husband 50 yrs dx 07/16/07 CC stage III B, low grade
right colectomy 07/31/07, 50 lymph nodes/ 3 positive, surgeon Gil Galloway ( La Jolla, CA),
CEA before sur. 1.32,

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Re: For Stage III's: NED for how long now?

Postby nbrandt » Tue Nov 12, 2013 10:19 pm

So Happy to be here NED at Year 3. Feeling so fortunate living life Scan to scan on the 6 month scan schedule. Just finished my annual pilgrimage to San Xavier Mission in Tucson AZ giving thanks.
DXCCT3N2aMx 5/20LN
Scan 10-13-10,4-4-11,7-4-11,9-22-11,4-9-12,9-24-12,10-1-13,4-9-14,9-17-14,9-10-15,9-15-17NED,
CEA 1. Pre .6 7-4-11 .7 9-22-11 .6
1-13-12 .9 4-9-12 .7 9-24-12 .6 1-4-13 .8 10-1-13 .8 4-9-14 .7 9-17-15.8
Courage, Hope, Health

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Re: For Stage III's: NED for how long now?

Postby Ron50 » Wed Nov 13, 2013 6:56 am

Coming up for 15 years ex st3c 6/13 nodes in Jan. Just had my first colonoscopy in three years . One very small polyp go back in three years. Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Re: For Stage III's: NED for how long now?

Postby lauragb » Thu Nov 14, 2013 7:59 pm

Just got scan results back today, NED. Since I had a clean pathology report at surgery, 2 year anniversary tomorrow, I consider myself two years NED and grateful every minute.

RC 3B 7/2011 @ 53
Chemoradiation 5 weeks 8/11
LAR-Hysterect-temp ileo
pCR, 0/23 nodes
Folfox 1/12, Xeloda 2/12 to 5/12
Reversal 5/12
SBO,lysis of adhesions 12/12
NED 11/12, 11/13, 6/16

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Re: For Stage III's: NED for how long now?

Postby GreenMonkey » Thu Nov 14, 2013 10:13 pm

BOY oh BOY did I need this...

I am feeling very defeated. Just finished my second round of chemo and I don't know if I have it in me to continue. I was thinking, whats the point... it's just going to come back.

You just gave me a major infusion of HOPE. Thank you!
RC - T3NXMX depth of invasion 3mm - diagnosed 5/26/13 age 53
High Dose, Internal Radiation at Johns Hopkins resulted in a PCR
LAR 9/10/13 - 0-26 nodes. CEA 1.9 post surgery
XELOX started 10/21/13(8 rounds)
11/14 NED

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Re: For Stage III's: NED for how long now?

Postby BrendaB » Fri Nov 15, 2013 9:34 am

Two years ago today I had my surgery to remove 7 inches of colon, uterus, cervic and ovaries. So far so good! Next Tuesday I have a quarterly follow up and crossing for continued perfect blood results.
10-27-11 Diagnosed CC
11-15-11 Colon resection, complete hyst.
Staged T3N1a, one out of 33 lymph nodes
12-11 Started Oxali and Xeloda, 8 rounds
6-8-12 Very last dose of Xeloda!
6-26-12 CT scan results, NED!
7-26-12 Ilieo. reversal, port out

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Re: For Stage III's: NED for how long now?

Postby jens22 » Fri Nov 15, 2013 11:05 pm

3 and a 1/2 years!!!!! :D :D :D :D :D :D :D
Colonoscopy 3/10 for ? hemmorrhoid.
Diag Colon Cancer 3 days later
Colon Ressection 3/30/10
Stage 3B 5/14 Nodes positive.
Power Port and 7 months of Chemo
Port removed 11/11
8 negative Cat Scans..... 10 years cancer free and Discharged from Sloane Kett!!
Diag age 47 , now 57 Mom of 3 boys.

Staci's team
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Location: Canfield, Ohio

Re: For Stage III's: NED for how long now?

Postby Staci's team » Wed Nov 20, 2013 8:07 am

I already posted this in its own thread, but today marks four years since Staci's surgery to remove what was trying to kill her. NED since 11-20-09 and praying to keep it that way.

Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
Member of The Colon Club's Board of Directors

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