For Stage III's: NED for how long now?

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Margo
Posts: 86
Joined: Wed Dec 19, 2007 3:18 pm
Location: California

Re: For Stage III's: NED for how long now?

Postby Margo » Fri Dec 09, 2011 3:54 pm

My husband , dx 7/2007, he is doing great 4.5 years after a surgery.
Margo,
Husband 50 yrs dx 07/16/07 CC stage III B, low grade
right colectomy 07/31/07, 50 lymph nodes/ 3 positive, surgeon Gil Galloway ( La Jolla, CA),
FOLFOX 4 ,
CEA before sur. 1.32,
NED

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Sat Dec 10, 2011 6:18 am

Excellent news . Keep this thread going people with your positive stories !!!!
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

Staci's team
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Joined: Fri Sep 25, 2009 9:43 am
Location: Canfield, Ohio
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Re: For Stage III's: NED for how long now?

Postby Staci's team » Sat Dec 10, 2011 11:15 pm

Today is our son's 4th birthday, so it's certainly a day to celebrate -- but it will also always be remembered in our family as the day two years ago that Staci finally came home from the hospital after a 3 week stay. Talk about a great birthday present for our youngest!

Her surgery was November 20, so it's technically two years plus three weeks that she's been NED -- verified by scans and a scope two weeks ago that was perfectly clear!


Chris
Husband to Staci, diagnosed at age 32
Clinical dx Stage II/III rectal cancer, 7/2009
APR surgery 11/09 leading to...
Pathological dx Stage IIIB, ypT3N1M0, 11/2009
http://www.caringbridge.org/visit/staciwills
Member of The Colon Club's Board of Directors

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Jimswife
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Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Sun Dec 11, 2011 7:12 am

Great news chris and happy birthday to your little boy . How many lymph nodes positive did stacie have ?
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

Guest

Re: For Stage III's: NED for how long now?

Postby Guest » Sun Dec 11, 2011 9:28 pm

NED Since Feb 13, 2007

Diagnosed Stage 3B on Oct 18, 2006. Did 6 weeks Xeloda and Radiation followed by a resection of the tumor. I was treated at MD Anderson by a very good surgeon. I had a bag for six weeks and after the takedown of that I had no further treatment. I take a tablespoonful of Flaxseed oil every morning and 2000mg of Coriolus VPS (Mushroom Extract). I have become a vegetarian because it agrees with my guts. It took me two and a half years to get my guts stable after having the bag removed. I had a couple of sigmoidoscopies that were clean and I do a CEA test once a year. I am not looking for signs of disease because I don't expect them. I am extremely healthy and back to my former self now five years later. AFAIK, I am cured. That is my view of it.

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Jimswife
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Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Mon Dec 12, 2011 12:19 pm

That's excellent news . Did you have many positive lymph nodes . My husband had 2 out of 21 .... I'm hoping too he will be cured .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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wwroam
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Facebook Username: Wayne Whitaker
Location: Brisbane, Australia
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Re: For Stage III's: NED for how long now?

Postby wwroam » Mon Dec 12, 2011 9:16 pm

My CT scan last Friday was clean but my blood tests had gone missing. They've just been emailed through and my CEA has dropped. I don't know whether there is any connection but my glucose level has dropped from 12.4 to 7.5 ( still high, but I am on medication for late onset diabetes ) and my cholesterol has dropped from 5.8 to 3.3 ( thanks to Lipitor). All clear for another 6 months.
Stage 3a DX 25/06/07
Folfox complete 30/01/08
7 years NED
Port scheduled for removal 8/02/10 Gone.
PSA .54 No prostate problems
Diagnosed Type 2 Diabetic
SO diagnosed CC Stage IV Liver Mets 23/03/15

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Jimswife
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Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Tue Dec 13, 2011 4:12 am

Excellent , I see your soon approaching your 5th year too , so many people on here beyond 5 years now . Some even 15 /20 and even 26 years out but some people keep saying there is no cure ??? Surely this is classed as cured or as near as you can get to it ??
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Tue Dec 13, 2011 4:14 am

Was yours Colon or rectal cancer ? How many nodes pos ? My husband t3 n2 m0
2 lymphs out of 21 .
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

Guest

Re: For Stage III's: NED for how long now?

Postby Guest » Tue Dec 13, 2011 9:02 am

I had four swollen nodes but no positives and they took 29 out. There was no metastasis but the tumor was very large and that supposedly determined the poor prognosis the doctors gave me.

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: For Stage III's: NED for how long now?

Postby Lee » Tue Dec 13, 2011 9:36 am

Jimswife wrote:Excellent , I see your soon approaching your 5th year too , so many people on here beyond 5 years now . Some even 15 /20 and even 26 years out but some people keep saying there is no cure ??? Surely this is classed as cured or as near as you can get to it ??


They say once you've had cancer, you never truly get rid of it simply because your body is able to let it happen again (some saying that goes something like that). Because I've reached the 5 year mark, some people (Drs included) say I am cured. I've also been told, because I had rectal cancer, I really need to hit the 10 year mark to be "cured". And still other will tell me, I'm in remission only, that my body can still produce cancer. I like to think as time goes on my chances (odds) of having it come back get smaller and smaller.

I know a person who was diagnosed with breast cancer. She survived it. 25 years later, she was diagnosed with breast cancer again. She is fine today. Somehow they were able to determine that the 2nd round of cancer was a new cancer and not a reoccurence of the cancer from 25 yrs ago. Monitoring and follow ups are one of our best defense in dealing with cancer.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Tue Dec 13, 2011 9:42 am

So in correct in thinking it is curable in some situations after a certain time period has elapsed ? The onc and surgeon said to my husband that there's a 50 percent chance he's already cured by surgery alone but doing chemo will bump him up to the 70 percent mark , but don't they say cancer is in each and everyone of us and it just takes a certain something to trigger it ??
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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Ivona
Posts: 2048
Joined: Mon Jan 19, 2009 12:39 pm
Facebook Username: Ivona Bradley
Location: Ottawa, Canada

Re: For Stage III's: NED for how long now?

Postby Ivona » Tue Dec 13, 2011 4:20 pm

Diagnosed October 30, 2008....late stage III...9 LN positive.

Am still alive and kicking butt!!! :lol:
dx'd Oct '08 (age 48)
T3bN2Mx
9/23 LN's
resection Nov '08
Folfox Jan '09 - March '09
Xeloda March 24/09 - July 6/09

"Yesterday is history, tomorrow is a mystery, but today is a gift. That is why it's called 'the present'. "

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Jimswife
Posts: 904
Joined: Fri Nov 18, 2011 9:53 am

Re: For Stage III's: NED for how long now?

Postby Jimswife » Tue Dec 13, 2011 4:55 pm

Great news , no reoccurs ??? Heres hoping you have beaten this monster for good :))
Victoria , Wife to Jim age 43 dx oct 2011
Stage 3 cc with 2 out of 21 positive lymph nodes
Folfox starts nov 11-may 12
All scans and bloods since surgery confirm no evidence of disease
Hoping to stay ned forever .... Fingers crossed !!!!!!!

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very worried husband
Posts: 130
Joined: Mon Mar 28, 2011 1:20 am

Re: For Stage III's: NED for how long now?

Postby very worried husband » Wed Dec 14, 2011 9:21 am

Dear All,

I have never posted but am a daily visitor to this amazing site for quite a few months.
As my name suggests, I am husband of a loving wife 26, (aged 25 at the time of her Diagnose). I am happy to announce that her first yearly colonoscopy, CT and blood tests all came back normal yesterday...... Diagnosed on 24th January, 2011 in China, STAGE 3 B, with 3/29 Nodes Positive (although I really don’t know whether she is 3 C or 3 B, since her Path reports says that her 7/29 lymph nodes had metastasis and 3 were cancerous nodes!! Chinese translated to English), Lynch Synd. Colon Resection 28th January, 2011. Flofox finished Aug 2011.
The toughest year of our lives!! Diagnosed with Colon Cancer a month after our wedding!!!
Lots of Prayers, amazing Supports from our families from both sides, Traditional Chinese medicines and invaluable tips from this forum and CSN forum is bringing the worst year of our lives to an end. I hope, wish and pray we never see another year like this in our lives ever again.
Best of luck to all of you. May we have a CURE for this disease for all the stages soon.......
Caregiver to Wife age25
Diagnosed Colon IIIB Jan2011
7/29 Nodes +
5FU+Oxi in china. Feb-Aug 2011
CEA@Diagnose:0.79
Immunological chemistry: Ki-67 (+), MSH2(+), MLH1(++), ERCC1 (-)
NED Supplements: Aspirin,Vit D,Calcium, Genoderma Lucidium
Baby born June 2015 :D :D :)


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