Lifes2Short update

Please feel free to read, share your thoughts, your stories and connect with others!
Lifes2short
Posts: 549
Joined: Mon Oct 30, 2006 10:54 pm
Location: Salt Lake City, UT

Lifes2Short update

Postby Lifes2short » Sun Oct 18, 2009 8:43 pm

Joe here - Just wanted everyone to know that Lynn has decided to end chemo. She's gone beyond curative efforts and has moved to hospice care, in our home. The doctors and nurses of the hospice team are trying to manage her pain and provide some quality of life in her remaining time. We do not have any idea how much time that is, but the target is to enjoy Christmas with the kids.

She's been in excruciating pain these past few days, even got an ambulance trip to the ER a couple of nights ago. No more hospitals. No more tests or invasive treatment. We pray that the pain is managed soon and that she is able to enjoy some good days with friends and family.

Her Mom is here, and her brother arrives on Tuesday.

From me, thank you for all of the support – prayers, love, financial, and otherwise. No amount of thanks is enough to express my astonishment at how wonderful human beings can actually be.

I'll keep posting updates to joelaberge.blogspot.com
Age 45; Stage IV, mets to liver, nodes and bones.
Dx 12/05; Chemoradiation, surgery, Folfox, Folfiri, Folfiri, Folfiri, Folfiri
Intrathecal pain pump 3/09 (works great!)
Irinotecan / Erbitux 5/09 - ?
Two wonderful kids ages 7 and 5

User avatar
justsing
Posts: 1623
Joined: Sat May 10, 2008 2:55 pm
Location: Pittsburgh, PA
Contact:

Re: Lifes2Short update

Postby justsing » Sun Oct 18, 2009 8:47 pm

My heart is breaking for you.
She has faced this disease with such vigor and determination.

I hope that you can make the most of your time together and that she is as pain free as possible!
justsing, 46
Stage IV
colon resection 12/07
Liver resection 04/08
Phase I vaccine trial
liver, lung LN mets
tried Oxi, Iri and Avastin
now trying new chemo combos then sir spheres
College prof in theatre & voice
2 girls 18 & 14, one son 10

User avatar
blakeswife
Posts: 540
Joined: Sun Jul 26, 2009 5:55 pm
Facebook Username: kathy.mair
Location: Utah

Re: Lifes2Short update

Postby blakeswife » Sun Oct 18, 2009 9:01 pm

Oh my heart breaks for you & your family. Lynn & I just met and compared notes; she was so optomistic! She has fought this damn disease with all she had. I truly hope that her pain subsides and that your family will have some quality time together. I hate cancer.

I'll be thinking of you. Kathy
DH Stage IV 10/07
Colectomy, Liver resection & RFA, 1/13 LN
12/07-5/08 Folfox/Avastin
7/09 recurrence-Peritoneum
9/09-12/09 Folfiri/Avastin
1/10-5/10 Xeloda/Avastin
9/10-current w/built in breaks

User avatar
Terry
Posts: 5536
Joined: Wed Oct 03, 2007 10:36 pm
Facebook Username: Terry Minor
Location: Silver Cliff, Wisconsin

Re: Lifes2Short update

Postby Terry » Sun Oct 18, 2009 9:04 pm

I feel so bad for Lynn, you and your whole family. I also pray that she can get relief from the pain so she can enjoy and cherish the time she has left.

God Bless you all and be with you.

Terry
Last edited by Terry on Mon Oct 19, 2009 12:24 pm, edited 1 time in total.
DX 7/3/07
Chemo, radiation, 20 mo. chemo, IMRT, cyberknife, 6/11 lobectomy.
1/16 resection perm. colostomy intraop. rad.
PET 2/12 nose, thyroid, liver, lngs
Folfox 3/12
Lord I know You'll keep me here until
you know I cannot suffer any longer!

User avatar
live2jett
Posts: 762
Joined: Wed Mar 11, 2009 4:36 pm
Facebook Username: debbie jett
Location: San Diego, Ca. www.live2jett.com
Contact:

Re: Lifes2Short update

Postby live2jett » Sun Oct 18, 2009 9:21 pm

Dear Joe and Lynn,
I'm sorry that you are both going through this... I pray that Lynn stays pain free and you can share some precious time with your kids and each other. We are hear for you, Debbie
Age:51
DX 10-21-08 Advanced stage IIIC T3 N2 M0
10/20 nodes pos.
Colon resect surgery 11-03-08
chemo 12-03-08 Folfox4 3 rounds
Xeloda 5 rounds(due to leucovorin shortage/severe reaction with oxi)
Carpe Diem NED Update 2014

girlnextdoor
Posts: 204
Joined: Tue May 19, 2009 2:44 pm

Re: Lifes2Short update

Postby girlnextdoor » Sun Oct 18, 2009 9:27 pm

This makes me so sad. I wish there was something I can do.

I can pray. For you, Lynn, your children.

Lisa
Husband, age 52, DX RC 8/2007
Stage III
5FU,Rad
Surgery (APR) 12/2007
FOLFOX
2 lung nodules 5/2008
HNPCC postive (MSH2 mutation)
Mets to lung 5/2009,lymph nodes
FOLFIRI, Avastin 7/2009
Xeloda 1/2010
Four children (18,15,12,11)

Lisa, loving wife

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Lifes2Short update

Postby Lee » Sun Oct 18, 2009 10:02 pm

Joe, I am so very sorry to hear this latest news. Lynn is a fighter and I hope and pray that she will have good days ahead to enjoy time with you, the kids, her Mom and siblings. God be with you, Lynn, and all of your families during this time.

Lynn, I pray for you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
sallya
Posts: 167
Joined: Mon Jul 13, 2009 6:07 pm
Location: Seattle, WA
Contact:

Re: Lifes2Short update

Postby sallya » Sun Oct 18, 2009 10:14 pm

Hi Joe,

I'm so sorry. You and Lynn have gone through so much - you will both be in my thoughts. I'm wishing you love and strength.

Sally
Wife of "Dom;" dx 7/3/09
Stage IV with 4 mets to the liver and ~25 affected nodes
Colon resection 7/6/09
Ileo 7/6/09
Starting Folfox + Avastin 8/13
www.dominicsally.blogspot.com

User avatar
KellyBelle
Posts: 811
Joined: Sat Jul 19, 2008 9:25 am
Facebook Username: Kelly Davis Keeling

Re: Lifes2Short update

Postby KellyBelle » Sun Oct 18, 2009 10:16 pm

Lynn's attitude has been amazing through her struggles, and she's been a great influence on a lot of us I'm sure.

Blessings for peace to her entire family.

Kelly
Diagnosed March, 2008
Stage IIIC
Colo-Anal Reconstructive Surgery April, 2008
Finished Folfox treatment November, 2008
NED! December 2008
NED! December 2011

Life is what we make it, always has been, always will be.
~Grandma Moses

NWgirl
Posts: 6659
Joined: Sat Feb 02, 2008 3:24 am
Facebook Username: Belle Piazza
Location: Battle Ground, Washington

Re: Lifes2Short update

Postby NWgirl » Sun Oct 18, 2009 10:35 pm

I am so, so sorry. Sending love and prayers to all of you.
Belle - "Don't Retreat - Reload"DX 10/07 Stage III Rectal
Surgery 11/07; 27 of 38 nodes
Perm Colostomy 8/11
12/10 recurrence lungs & LN's
VATS Jan 2011
Radiation Oct 2013
Chemo for Life
2012 Colondar Model

User avatar
Kathleen808
Posts: 1761
Joined: Sun Feb 08, 2009 12:49 am
Location: Hawaii

Re: Lifes2Short update

Postby Kathleen808 » Mon Oct 19, 2009 3:08 am

Joe,
I am so sorry to hear the news about Lynn. In the time I have been on the board she has been a great help and inspiration. I will pray for you, Lynn and your kids. I hope you get some good days together. I pray they get Lynn's pain under control.

With aloha,
Kathleen
Kathleen
DH 1/09 3c 51yr rsct
Folfx 3/09
1 l nd 9/09 Flfri Avstn
PET clr 6/10
Folfri Avstn 7/10
ND 10/10
1/11 lng mets Flfri Avastn
ND 2/12
9/12 Flfri Avastn
10/12 grwth lng mts Erbtx Avstn Irintcn
1/13 stabl
9/13 grwth
8/16/14 passed into eternal peace

User avatar
Gaelen
Posts: 3833
Joined: Fri Jun 13, 2008 12:57 am
Location: CNY
Contact:

Re: Lifes2Short update

Postby Gaelen » Mon Oct 19, 2009 3:50 am

Joe - to both you and Lynn, my strongest thoughts.
Be in harmony with your expectations. - Life Out Loud
4/04: dx'd @48 StageIV RectalCA w/9 liver mets. 8 chemos, 4 surgeries, last remission 34 mos.
2/11 recurrence R lung, spinal bone mets - chemo, RFA lung mets
4/12 stopped treatment

User avatar
Joanne 814
Posts: 871
Joined: Tue Jun 24, 2008 4:56 pm
Facebook Username: Joanne Flynn Hoerrner
Location: Farmington, CT

Re: Lifes2Short update

Postby Joanne 814 » Mon Oct 19, 2009 5:53 am

My thoughts and prayers to you both. Wishing you some quality time and pain free days.

Take Care.

ONWARD!

Joanne
Age: 51
Dx: Nov 07 @ age 43
Stage IIIC, RCa
Colon Resection: Nov 07, 4 of 27 LN
Chemo/Radiation: 28 treatments w/constant 5FU (Jan-Feb 08)
Chemo: Folfox, 12 cycles (Mar-Aug 08) DONE 8-8-08
CT Scan 1-09 NED

jdepp
Posts: 488
Joined: Sun Sep 28, 2008 7:53 pm

Re: Lifes2Short update

Postby jdepp » Mon Oct 19, 2009 6:07 am

I wish you both strength, peace, and more good memories with your family.
Colon dx 08 @ 41 Poorly diff. 12+ liver mets, 19/28 LN
Colon rsx /14 x Folfox-Erbitux 08-09
PVE / Liver rsx 09
Lung & LN mets 10
Folfiri, Xeloda, Avastin 10-13
Xelox, Erbitux, UFUR, TS-1, Oxi, Lonsurf 14-16
Stivarga & TIL trial 16
Brain lesion, RO688 trial 18

Peteswife
Posts: 218
Joined: Sat Jun 27, 2009 2:45 pm

Re: Lifes2Short update

Postby Peteswife » Mon Oct 19, 2009 8:55 am

You are in my thoughts and in my prayers! I am so sorry for this! Please give her all the love and attention you can!
Ilse
After 8,5 years living with CRC, Pete passed away on 17/4/2012. We had lots of quality time, we said our goodbyes! I am at peace because he doesn't suffer anymore! He is now better off with the Lord! We will surely miss him very very much!!


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: hopeinGod2 and 152 guests