The Colon Club - colon/rectal cancer education and support

Test Results

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Re: Test Results

Postby justsing » Wed Mar 10, 2010 12:44 am

SOOO pleased for you!!!
justsing, 46
Stage IV
colon resection 12/07
Liver resection 04/08
Phase I vaccine trial
liver, lung LN mets
tried Oxi, Iri and Avastin
now trying new chemo combos then sir spheres
College prof in theatre & voice
2 girls 18 & 14, one son 10
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Re: Test Results

Postby sallya » Wed Mar 10, 2010 1:17 am

That's awesome Jaynee! So happy for you. You can breathe a sigh of relief!!

And no guilt - everyone here wants the best for you!!!
Wife of "Dom;" dx 7/3/09
Stage IV with 4 mets to the liver and ~25 affected nodes
Colon resection 7/6/09
Ileo 7/6/09
Starting Folfox + Avastin 8/13
www.dominicsally.blogspot.com
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Re: Test Results

Postby jmarie » Wed Mar 10, 2010 1:26 am

Don't feel guilty. It makes me feel hopeful to see others with good results. Yes I am jealous sometimes but always happy to see that there is a chance to improve.

You need to do a happy dance, for us all :wink:
DX Stage IV 11/25/08 @30yrs
mets liver & lung, kras mutant
baby 1/11/09, now 18 mos old!!!
Folfox 17 tx, allergic reaction to Oxit
Folfiri w/ Avastin 12 txs, failed
Clinical trial-failed
Not sure what's next...
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Re: Test Results

Postby Kathleen808 » Wed Mar 10, 2010 2:01 am

Jaynee,
Good news is always welcome! It is so good to have hope and to know that people out there are NED!

Congrats!

Aloha,
Kathleen
Kathleen
Husband 1/12/09, Stage IIIc, 7/17 nodes age 51
1/27/09, 75% colon removed
Folfox 3/09 - 8/09
1 lymph node PET 9/09
Folfori + Avastin 10/09
same node lit 4/10
surgery node 5/10, nodes positive, rest clear
PET clear 6/10
Folfori + Avastin 7/10
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Re: Test Results

Postby Fanatik » Wed Mar 10, 2010 2:55 am

jaynee,
I am more pleased than you can know at your great update... I'm still the noob around here and I hope my comments are appropiate, but I felt compelled to speak out now for you. When I was going through the anxiety of the unknown in the past few months, your comments and phone calls really provided me with the support I needed to carry on. Even though I am the luckiest guy on the planet, there were periods when I didn't know that and you really helped to assuage my fears with real knowledge and helpful suggestions. I haven't posted a lot yet, but I read the forums daily and you guys are all the best. You know I'm rooting for you and have every confidence of things continuing in the right direction for you....
Warm Regards, Scott
DX Rectal Cancer T1N0M0 1-22-2010
TEM (transanal excision microscopically) 2-19-2010
Pathology shows clear margins, no vascular involvment 2-24-2010
No immediate need for Chemo/Radiation
Close watch for now
http://www.carepages.com/carepages/Geekfireman
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Re: Test Results

Postby KarMel » Wed Mar 10, 2010 8:05 am

As Far as I am concerned, good news is welcome any day! :D In fact, the more , the better for those of us still dealing with this .

I am truly happy for you!
Diagnosis 4-09, age 45
Stage IV CC, with LN, liver, lung mets
Folfox/Avastin May-Nov 2009. Maintenance chemo 'til May 2010.
Stereotactic radiation Aug 2010
"Because He lives, I can face tomorrow. Because He lives, all fear is gone." B.Gaither
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Re: Test Results

Postby jdepp » Wed Mar 10, 2010 8:43 am

I agree! I never tire of reading good news! Good for you & keep it coming!
Stage IV dx Aug 08 @ 41
Poorly diff 12+ bilobar liver mets 19/28 nodes
Colon surg Aug 08
Chemo Oct 08 - Aug 09 14 Folfox w. Erbitux & 20 Erb
Exploratory lap peritoneum & PVE Jan 09
Liver: right trisectionectomy Feb. 09
Clean CT scan July 10
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Re: Test Results

Postby PennyLane » Wed Mar 10, 2010 9:21 am

Jaynee,

That's wonderful news! Keep up the good work! :D
Penny

7/08 DX Rectal Cancer
6 wks Rad, Xeloda
11/08 Surgery, Tumor removed,
Perm Colostomy
Stg 3 RC, 3/20 lymph nodes +
7/09 6 mo adj chemo done
8 FOLFOX + 2 rounds Xeloda
5/18/10 Liver Met on PET/CT
6/18/10 PET/CT Gamma Probe Guided Liver Resection
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Re: Test Results

Postby weisssoccermom » Wed Mar 10, 2010 10:48 am

Thank you everyone. You have no idea how much I appreciate it. It's been tough on me - stress, anxiety, the whole kit and kaboodle. It's been made harder by the fact that my best friend hasn't even asked anything about me. I know we've had this 'conversation' before, but it truly does it hard that our friends and even family tend to forget that we're still 'battling' this disease - even when it appears that we're fine. Yes, I'm 3 years out from my surgery (next month) and almost 4 years out from my dx, but that still doesn't mean that cancer doesn't rear its ugly head in my life. Excuse the pun, but I'm really anal about having to poop - heck if I don't go once a day, I freak. Getting better at that but.....As I was telling someone (I could only talk about stuff like this with someone from places like this!) last night, I have a tendency to be weird...my fetish...about not going anywhere until I've had my daily BM. Problem is that could be anytime so I waste my day waiting and waiting sometimes. I really do have to get over that. I worry that my poops might be too little, not enough, the wrong color, too big...whatever - it enters my mindthought. When my CEA went up, that freaked me out. I get tired of my friend not even taking the time to realize that heck, I might need someone to just ASK..."hey, how are things going?" Ever notice how we can be there for them...for their smallest of concerns...but heck just talking about your health, the seriousness of it all and bam...they have to go, they just stare at you, they change the subject. It hurts, it really does.

Sorry for the rant. Thanks again everyone. I only wish that CRguy's news had been better. It's no fun having good news when others are having such yucky news delivered to them at the same time. Just seems so unfair. CRguy - we're ALL 100% behind you and like it or not, we're not going anywhere!! You can count on us!

Jaynee
6/22/06 I/IIA rectal cancer
6 wks rad/Xeloda
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 mths Xeloda only - blood clots 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
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Re: Test Results

Postby kimby » Wed Mar 10, 2010 11:50 am

Great news! I'm so happy to hear this today - I needed good news. Please don't "compared to what you're going through". Remember when friends didn't want to share their daily frustrations because it was nothing compared to cancer? I hate that. It just keeps you out of each others lives. We want to share in everything! My having a different or more difficult journey doesn't lessen the lows or HIGH's of yours. Let us REJOICE with you! Rock on!!

Kimby
Outwit. Outplay. Outlast.
DX colon canzer 8/07 age 43
Endometrial Cancer 3/03 age 39
FOLFOX 10/07,Folfiri w/Erbitux 9/08,Mitomycin/Avastin/Xeloda 1/09, external beam liver radiation 2/09-3/09,LN 8/09
mets: liver/celiac LN
Outwit. Outplay. Outlast!
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Re: Test Results

Postby Terry » Wed Mar 10, 2010 12:02 pm

Congratulations Jaynee! I know I already told you that on the phone.

I know you were worried now you can relax. It won't be long and they'll be releasing you (is it at the five year point). I know that will probably freak you out at first but it will be a good thing and I can't wait to get there, and will some day:)

Talk to you later!
Terry
God Bless you all!
Stg II 7/3/07
IV 3/13/09
5 L.N.+ R lung.
Xeloda, oxi,Avastin & irinotecan since 4/6/09
to present day.
PET 5/29 showed cancer growth
D3 qday
In the process of being Healed by God!
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Re: Test Results

Postby weisssoccermom » Wed Mar 10, 2010 1:19 pm

Actually Terry, because of the fact that I chose the excision over the LAR, it'll be 7 years but I'm ok with that. You're right - I'm sure I'll be nervous about being released someday but right now that someday still seems a long way off! I've even decided that I'll concede to my surgeon on the now every 6 month checkups...I was going to go for the every 5 months...I know I know what's a month right??? I'm getting to where I can let go a little about this. I'm really ok with the once a year scans...okay that is until two weeks or so before the big day...then I"m a mess wondering what things could have been 'growing' in my body in the past year...stuff like that.

Anyway, thanks again. Talk to you later. Hope you're feeling ok.

Jaynee
6/22/06 I/IIA rectal cancer
6 wks rad/Xeloda
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 mths Xeloda only - blood clots 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Commit random acts of kindness
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Re: Test Results

Postby Brendaindy » Wed Mar 10, 2010 2:05 pm

Jaynee,
Im so happy to hear your results were good. Dont feel guilty. As much as you participate around here and all the help you give to all of us, you should never feel guilty. You always do your part to make people feel welcomed and informed.

Celebrate!!!!!
Stage II Rectal dx 5/08
Kiddo's are 16, 10, 6

Radiation and Chemo
LAR w/Ileo & J Pouch 10/20/08
Finished Folfox 5/4/09
CT showed NED!
Illeo reversal 7/31/09
so far... so good....
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