[Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

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stu
Posts: 1172
Joined: Sat Aug 17, 2013 5:46 pm

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby stu » Mon Aug 13, 2018 12:50 am

I think your oncologist made a very wise decision .
You remind me a lot of my mum . She has a very similar attitude. I really don’t know how she endured the first couple of years whilst the disease made it’s hiding places known. But like you she sought to find the routes through it . After that it settled right down and it’s nine years ago this week since diagnosis. My sister and I are just amazed at the life she has been able to live . She loves life and remains fully engaged in it . Not past putting her words of wisdom in either . Ha !!
Entering year ten as to be filled with fundraising to give back ,
Take special care and here’s to longevity.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Tarsal69
Posts: 50
Joined: Wed Oct 21, 2015 5:56 pm
Facebook Username: Howard Nelson

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Tarsal69 » Thu Sep 20, 2018 9:09 pm

Glad to hear your doing well I am having .9 mm nodule respected from upper left lung in 2 weeks am hoping for good results an not doing chemo again been 3 years Ned but thanks to those scans we take picked this little guy up early f cancer
Stage 111b t3n2m0 dx7/22/15
Cea pre 7.4 post resection 2.
Folfox 10/9/15 to 1/18/16 clinical trial 6 txs with Celebrex
Waiting for first post tx scan late March
Cat scan 7/24/15 pet scan7/27/15 clean for any metastasis
Dx resection 8/5/15

Tarsal69
Posts: 50
Joined: Wed Oct 21, 2015 5:56 pm
Facebook Username: Howard Nelson

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Tarsal69 » Thu Sep 20, 2018 9:11 pm

Mine is being done by robot procedure hopfully lives up to its reputation
Stage 111b t3n2m0 dx7/22/15
Cea pre 7.4 post resection 2.
Folfox 10/9/15 to 1/18/16 clinical trial 6 txs with Celebrex
Waiting for first post tx scan late March
Cat scan 7/24/15 pet scan7/27/15 clean for any metastasis
Dx resection 8/5/15

stu
Posts: 1172
Joined: Sat Aug 17, 2013 5:46 pm

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby stu » Fri Sep 21, 2018 3:13 am

All the best with that . Wishing you a wonderful outcome .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AppleTree
Posts: 267
Joined: Fri Mar 18, 2016 8:16 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby AppleTree » Fri Sep 21, 2018 9:54 pm

I had mine out at Mass General via VATS. Then I did 12 rounds of Folfox. PET in July was clear. I have another PET in October.

I wanted it out! Some Dr's like to keep it in, experiment with different chemos and do more scans. Not for me, I was adamant to have it taken out first. I am glad I did.
Diag Feb 5, 2016 Age 45
3 cm tumor 5 cm from verge
Radiation + Xeloda pills - 3000mg 5x week
3/14 - 4/16 - 25 sessions
Shrank just over 50% L nodes 0/13
Remove rectum with temp Ileo 6/17
Reversal 7/20 due to infection
Acute hepatitis August. Chemo cancelled
June to September 2016 - 58 days in hospital

2017
6/16, MRI shadow in lung
Pet - 6.6mm Met in Upper R lobe
7/30 VAT surgery Mass General/Boston
8/24 port
8/30 - 4/28 Folfox. 12 rounds
2018
June CT shows new lung Mets.
July/Oct PETs...CLEAR!

lovelife789
Posts: 140
Joined: Thu Aug 24, 2017 5:28 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Sat Sep 22, 2018 9:55 am

Tarsal69 wrote:Mine is being done by robot procedure hopfully lives up to its reputation


Mine was VATs, it was so easy compared to liver resection. Am now debating whether to go with adjuvant chemo again. I was all ok if I needed to do chemo, but when the topic of "better save chemo option as much as possible" came up, I got a bit chicken and wanted to back out....

Still thinking... What did your oncologist say?
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Mod. differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - 6/30 - NED
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
8/30 - VATs
8/30 - 4/30 - NED
5/28 - uptake seen in 1 x PALN, 1x common iliac, cloudy in Liver
FOLFIRI + Avastin

lovelife789
Posts: 140
Joined: Thu Aug 24, 2017 5:28 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby lovelife789 » Sat Sep 22, 2018 9:57 am

AppleTree wrote:I had mine out at Mass General via VATS. Then I did 12 rounds of Folfox. PET in July was clear. I have another PET in October.

I wanted it out! Some Dr's like to keep it in, experiment with different chemos and do more scans. Not for me, I was adamant to have it taken out first. I am glad I did.


I have to agree the thought was having that evil stuff inside you is not a good feeling. I wanted mine out soon too! But salute to you on that 12x folfox. I did 13x but I had a break in between due to surgeries ... You r strong!!!!
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild, G2=Mod. differentiated
3/17- 6/17 - 6 rounds of FOLFOX + Erbitux - CEA 2.5
7/17 - 1st Liver resect/Colon/Gall, all clear margin
8/17 - 2nd Liver resec
9-12/17' - completed 13 rounds of FOLFOX - CEA 1.0
1/18 - 6/30 - NED
6/30 - PET SCAN showed a lung nodule that grew from 5mm to 8mm - CEA 1.0
8/30 - VATs
8/30 - 4/30 - NED
5/28 - uptake seen in 1 x PALN, 1x common iliac, cloudy in Liver
FOLFIRI + Avastin

Tarsal69
Posts: 50
Joined: Wed Oct 21, 2015 5:56 pm
Facebook Username: Howard Nelson

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Tarsal69 » Sun Sep 23, 2018 10:44 am

lovelife789 wrote:
Tarsal69 wrote:Mine is being done by robot procedure hopfully lives up to its reputation


Mine was VATs, it was so easy compared to liver resection. Am now debating whether to go with adjuvant chemo again. I was all ok if I needed to do chemo, but when the topic of "better save chemo option as much as possible" came up, I got a bit chicken and wanted to back out....

Still thinking... What did your oncologist say?

My once said he doesn’t think chemo will be needed but I’m sure that will change if any nodes are positive
Stage 111b t3n2m0 dx7/22/15
Cea pre 7.4 post resection 2.
Folfox 10/9/15 to 1/18/16 clinical trial 6 txs with Celebrex
Waiting for first post tx scan late March
Cat scan 7/24/15 pet scan7/27/15 clean for any metastasis
Dx resection 8/5/15

mpbser
Posts: 912
Joined: Wed Apr 19, 2017 11:52 am

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby mpbser » Mon Sep 24, 2018 11:21 am

appletree, Can you please message me the name of your surgeon at Mass General? I just discovered my husband has lung nodules and he is a patient there.
Wife 4/17 Dx age 45
5/17 LAR
Adenocarcinoma
5 x 4 x 1 cm
low grade
T3 N2b M1a
Stage IV A
8/17 Sub-total colectomy
2nd tumor 5.5 cm T1 N0
lymph nodes: 9 of 96
CEA: 2.9 to 2.2
MSS/MSI-L
Lynch no; KRAS wild
Immunohistochemsistry Normal
Tumor: MTOR, APC, TP53
Fall 2017 FOLFOX shrank the 1 met in liver
1/18 Liver left hepatectomy seg 4
5/18 CT clear
12/18 MRI shows 1 liver met
3/7/19 Resection & HAI
4/1/19 Folfiri & FUDR
5/13/19 HAI pump catheter dislodge, nearly hemorrhaged to death
6/10/19 5FU

User avatar
betsydoglover
Posts: 972
Joined: Mon Aug 14, 2006 2:31 pm
Facebook Username: Betsy Lindh Williams
Location: Maryland - outside DC

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby betsydoglover » Mon Sep 24, 2018 2:46 pm

When I was in a similar situation, I decided that I could not live with myself if I had a recurrence and had not done chemo. We are all different when we consider the options. I elected for Xeloda/Avastin (my onc's recommendation and one I felt very comfortable with.) NED since 4/09. Who knows whether or not the additional chemo helped, but I certainly don't regret that I did it.
Take care,
Betsy
diag. Stage IV, 5/05, liver met
lap sigmoid colectomy, 6/05
6 cycles Xeloda/oxaliplatin/Avastin (NED after 2)
11/08 9x13mm right lower lobe lung nodule; removed via VATS 4/09
NED
6 cycles Xeloda + Avastin
Avastin only 10/09-5/11
Still NED 06/18

Tarsal69
Posts: 50
Joined: Wed Oct 21, 2015 5:56 pm
Facebook Username: Howard Nelson

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Tarsal69 » Tue Oct 02, 2018 7:01 am

Having my .8 cm lung met removed in 5 days just lookin to hear other members experience will be using robot tganks
Stage 111b t3n2m0 dx7/22/15
Cea pre 7.4 post resection 2.
Folfox 10/9/15 to 1/18/16 clinical trial 6 txs with Celebrex
Waiting for first post tx scan late March
Cat scan 7/24/15 pet scan7/27/15 clean for any metastasis
Dx resection 8/5/15

Cured
Posts: 523
Joined: Thu Nov 27, 2008 10:53 pm
Location: MO

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby Cured » Mon Feb 11, 2019 1:33 pm

I hope your surgery was successful.
I had saved your thread & now getting around to reading it all with a reply.

Instead of just trusting my Onc, I consult with a Pulmonologist.
Since my lungs are strong: he says for me to NOT let anyone cut on my lungs. (I see at the Club that many have had successfully had thingies removed.) At this time I am doing Folfori chemo and things have shrunk dramatically. ‘Am blessed. Still all of this is scary. In 8 weeks we will measure again by CT scan; which is still an educated guess what we are seeing.

It is hard to biopsy lungs without risk of puncture. Did a Broncoscopy; but the scope can’t reach the lower lobe where scans show cancer.
5-08:Stg 3 Rectal: 6/14 Nodes
Ace Surgeon Remvd 90%Rectum,lots of Colon-Full Incision
Ileo Rev'd 6 Mos.
Radiatn+5fu Pre-Surgery
FOLFOX 8 CyclDone 1-09
Clear Scope 8-17; CEA 2-18
Glory to God! Healed by prayers of many: for 10 years
7-18: tumor pressing against brain Removed
Metastatic to lung. CEA 6.9 Began Folfiri
CEA dropped to 4.5 after 1 chemo
After 8rds CEA 3
CEA 1.8, 2.3,1.7 now
Finished 12 rounds of Folfiri
Avastin every 3 weeks.
Had Seizure Anti-seizure meds working;no driving for 6 months

User avatar
LPL
Posts: 650
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: [Update: Lung met confirmed] PET scan not good :(. Anybody's surgeon was able to find a 8mm lung nodule via VATS?

Postby LPL » Mon Feb 11, 2019 3:23 pm

Cured wrote:I hope your surgery was successful.
I had saved your thread & now getting around to reading it all with a reply.

Instead of just trusting my Onc, I consult with a Pulmonologist.
Since my lungs are strong: he says for me to NOT let anyone cut on my lungs. (I see at the Club that many have had successfully had thingies removed.) At this time I am doing Folfori chemo and things have shrunk dramatically. ‘Am blessed. Still all of this is scary. In 8 weeks we will measure again by CT scan; which is still an educated guess what we are seeing.

It is hard to biopsy lungs without risk of puncture. Did a Broncoscopy; but the scope can’t reach the lower lobe where scans show cancer.

Me too - wishing Tarsal69 had a good outcome.
Tomorrow my husband will have a RFA on 2 lung’things’ that had moderate SUVmax optake on PET. These mets(?) are 11mm and 8mm. We have been told that there will be a biopsi at the same time as the RFA. I asked about risks of seeding. The doctor explained the procedure and as I understand it with that procedure the risk is very low!
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED->Jan-19 mets to lung
:!: Steroid induced hyperglycemia dx after 3chemo
Surgeries 2016: 3/18 Emergency colostomy
5/23 Primary+gallbl+stoma reversal+port 9/1 Liver mets
RFA 2019: Feb lung met


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