6 years NED after stage IV

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Beccaschocked
Posts: 30
Joined: Mon Oct 30, 2017 7:33 pm
Facebook Username: Becca Fender schock

Re: 6 years NED after stage IV

Postby Beccaschocked » Wed Jul 11, 2018 8:33 am

Congrats and thank you so much for sharing. It is always so encouraging to hear from long time survivors!
Dx @ 32, mom to 6 week old and 2 year old (now 3 & 5)
3/2015 stage IV colon cancer Mets to liver. CEA > 8,000.
4/2015- June 15; 3 infusions folfoxiri +avastin, 4 infusions folfox
7/2015 colon & liver resection followed by 6 infusions of folfiri
1/2016-5/2017 NED (5mm lung nodule stable)
10/2017- growing lung nodule 12mm from 5mm-Confirmed recurrence - CEA 2.5
11/2017- lobectomy- no chemo
1/2018- CT & PET back to NED. CEA 1.3; 1.4; 1.2; 1.2.
7/2018- Clear scan NED

dliu
Posts: 7
Joined: Sun Jun 03, 2018 7:16 am

Re: 6 years NED after stage IV

Postby dliu » Wed Jul 11, 2018 4:33 pm

That's fantastic news Dave, thanks so much for sharing and congratulations!
Caring for my mum, who had a sigmoid colectomy after CT scan (which also evidenced multiple liver mets)
09/05/2018 diagnosed Stage IV, 6/11 LN
28/05/2018 First round of FOLFOX + Avastin

JulesW
Posts: 7
Joined: Thu Jun 21, 2018 1:48 pm

Re: 6 years NED after stage IV

Postby JulesW » Wed Jul 11, 2018 7:52 pm

That's great news Ehut.
Dx at 46 rectal ca.12/16 after sudden bleed.
CAT scan 1/17 4 spots rul largest 8 mm, thought to be scarring from old pneumonia
LAR 1/17 six hour surgery removed to rectal tumor stage 2b, 0/30 nodes pos
Xeloda x 6 mos
repeat ct 4/17 stable spots rul
repeat ct 6/18 spots rul x 4 largest 14mm, new spots lll x 3 largest 19mm
6/18 port placed and on folfiri + Avastin
Surgeon: lets wait and see what chemo does
Rad Onc.: lets wait
Agree with medical team but also looking into 2nd opinion

Ehut
Posts: 180
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: 6 years NED after stage IV

Postby Ehut » Thu Jul 12, 2018 9:45 pm

LPL wrote:Ehut, Thank you so much for posting and Big Congratulation to you!! :D
It is wonderful to see members here coming back to share good News.
Can I ask if you know if your tumor(s) had any mutations and/or MSI/MSS status?


It's been so long I don't even remember the mutation status. I tried to access my old records online, but the provider's system was recently "upgraded" and apparently some of those reports weren't converted correctly. I'll reply to this if and when I get the answers.
Dx 12/11 rectal stage IV w/ 6 mets to liver
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 6+ years and counting!

User avatar
LPL
Posts: 405
Joined: Fri Apr 22, 2016 12:49 am
Location: Europe

Re: 6 years NED after stage IV

Postby LPL » Fri Jul 13, 2018 2:57 am

Ehut wrote:
LPL wrote:Ehut, Thank you so much for posting and Big Congratulation to you!! :D
It is wonderful to see members here coming back to share good News.
Can I ask if you know if your tumor(s) had any mutations and/or MSI/MSS status?


It's been so long I don't even remember the mutation status. I tried to access my old records online, but the provider's system was recently "upgraded" and apparently some of those reports weren't converted correctly. I'll reply to this if and when I get the answers.

Ehut, oh I didn’t mean to give you extra work.
My husband is KRAS mutant and I know there is a discussion titled:
”KRAS mutation - any one long term NED?”
viewtopic.php?f=1&t=59608&p=473429#p473429
I just wondered if you had that mutation.
DH @ 65 DX 4/11/16 CC recto-sigmoid junction
Adenocarcenoma pt 35x15x9mm G3(biopsi) G1(surgical)
Mets 3 Liver resectable
T4aN1bM1a Stage IVa 2/9 LN
MSS, KRAS-mut G13D
CEA & CA19-9: 5/18 2.5 78 8/17 1.4 48 2/14/17 1.8 29
4 Folfox 6/15-7/30 (b4 liver surgery) 8 after
CT: 8/8 no change 3/27/17 NED for now :D
:!: Steroid induced hyperglycemia dx after 3chemo .. hospitalized, insulin -> Metformin
Surgeries (open):
3/18 Emergency colostomy 5/23 Primary+gallbl+colostomy reversal (+port) 9/01 Liver mets

DarknessEmbraced
Posts: 3044
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 6 years NED after stage IV

Postby DarknessEmbraced » Mon Jul 16, 2018 10:11 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17

Caat55
Posts: 435
Joined: Sat Dec 23, 2017 6:01 pm

Re: 6 years NED after stage IV

Postby Caat55 » Mon Jul 16, 2018 10:17 am

Wonderful. Thank you for sharing your news.
55 y.o. Female
Dx 9/26/17 RC Stage 3
Completed 33 rad. tx, xeolda 12/8/17
MRI and PET 1/18 sign. regression
Surgery 1/31/18 Ileostomy, clean margins, no lymph node involved
Port 3/1/2018
Oxaliplatin and Xeloda start 3/22/18
Last Oxaliplatin 7/5/18, 5 rounds


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