10 years ago today

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10 years ago today

Postby weisssoccermom » Thu Apr 20, 2017 9:49 pm

Ten years ago today, I had my last cancer treatment.....my excision. I know that the surgeon was preparing me for the pathology report that would likely show some residual cancerous cells but nothing showed up. It's hard to believe that almost 11 years ago, when I heard those words no one wants to hear (you have cancer), I figured I was doomed. We went on vacation right after my diagnosis and it was the WORST vacation we have ever had.

Sometimes it's hard to believe that ten years has gone by. Yesterday, our youngest celebrated his 26th birthday and my mind went back to ten years ago. On his 16th birthday, when he got his license....a birthday that should have been celebrated with his entire family, he celebrated with his two older brothers and dad because I was home prepping for surgery the next day.

Keep on reaching that goal of finding the day when cancer is no longer a part of your daily life. I admire all of you for the tenacity, strength and courage that you show each and every day. Don't let anyone tell you you can't....for me, those words made me want to PROVE THEM WRONG!

Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

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Re: 10 years ago today

Postby fumaros » Fri Apr 21, 2017 12:24 am

Congratulations. Certainly pray you stay cancer free.
Diagnosed 4/8/16, age 29
Colectomy 4/20/16
Stage III, T4bN1 Tumor 7x6.5x2. Muscinous Adenocarcinoma with SRC features
2/16 lymph nodes
CEA 4/14/16 - 16.8
CEA 6/2/16 - 1.9
CEA 6/17/16 - 0.87, 7/16 - 1.33, 12/16 - 1.14, 4/17 - 0.6
FOLFOX began 6/24/16 - 11/25/16
10 round FOLFOX, 2 round 5-FU & Leucovorin
MRI & CT 8/16 - NED, CT 12/16 - 4/17 - NED

[Ana & Alex]
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Re: 10 years ago today

Postby [Ana & Alex] » Fri Apr 21, 2017 12:54 am

Dear Jaynee!

I'm so very glad and thankful that after 10 years you're still often in the forum giving valuable information to people like me, who are beginning this journey. You are a true example of advocacy and hope for all of us.

The information you have passed on to me about dealing with some of the side effects of radiotherapy have been so helpful in making a change of course and the information you give to others about managing Chemo and going through a Local Excision is a life breeze of hope.

Thank you for your kindness and here's to NED FOREVER for you, and all of us who prove them everyday wrong :)

Keep strong,
29 yo. Mum (20 Mo) & Wife. Working & Studying.

12/2016: Dx Rectum AdenoCa G2 4 cm ab ano. CEA 4.3
01/2017: RAS Wildtyp. MSS. IIIB.
01 - 03/2017: 28 RTx und CHT 2500 mg/d Capecitabine CEA 1.1
05/2017: TME/TAMIS + permanent Colostomy CEA 0.5
05/2017: ypT2N2M0 (4/15), limited response to RTx
06 - 11/2017: 7 Rounds CapOx w/ 3500 mg/d Capecitabine, Vit D3, Curcuma, Cimetidine

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Re: 10 years ago today

Postby CRguy » Fri Apr 21, 2017 11:51 am

Very inspiring message Jaynee.
Congratulations on this milestone and for continuing to lend support to this forum over those many years !

Here's to another 10 years, and another and another and many more !

Cheers and Best wishes
Caregiver twice
Stage IV A rectal cancer/lung met
10 Year survivor
my life is an ongoing NONrandomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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Re: 10 years ago today

Postby Bob_Weiss » Fri Apr 21, 2017 12:27 pm

Congratulations. For me, it has been 7+ years. I still get occasional periods of constipation followed by diarrhea. But what the hell! Tis better to be alive with bowel problems than deceased free of problems.
Stage 3 R/C -1 node+ ( 7/09)
5 wks radiation, 2 wks chemo: 5FU (8-9/09)
Rectal surgery: tumor removal (11/09)
10 rounds Xeloda: 3000mg/daily 1 wk on/1 wk off (1/10-6/10)
Supplements: Aspirin, Calcium, Vit. D3
03/27/17: 7+ yrs. since surgery--still NED

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Re: 10 years ago today

Postby DarknessEmbraced » Fri Apr 21, 2017 6:11 pm

Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/2016
NED 11/10/16

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Re: 10 years ago today

Postby TXLiz » Fri Apr 21, 2017 6:20 pm

Thank you for your positivity!
Vomiting and blockage 9/19/16 46 y F
R hemi colectomy 9/20/16
Stage 3 B CRC, located in cecum
3 out of 16 lymph nodes positive
perineural invasion/lymphovascular invasion
infiltrating, mod differentiated adenocarcinoma with a mucinous component
separate tumor nodules present in pericolonic adipose tissue
Baseline PET scan clear 9/16 CEA 0.5
FOLFOX 10/16- 3/17
April 16th, CT scan clear. CEA 1.1
Lynch "inconclusive"

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Re: 10 years ago today

Postby LeonW » Fri Apr 21, 2017 6:27 pm

Sincere Congratulations.
Thanks for visiting here for so long, and your many wise comments. Very much appreciated.
take care L
Dec 2012 - Dx CC; MM 65yrs, 2 unresect liver mets, CEA 41.8
Jan 2013 - colectomy @ spleen (IVa T3N1bM1a) 2/26 nodes, MSI-low
Feb-Aug - 1x Xelox-7x Xelox/Avastin, mets shrink from #3
Sept - 2x failed Portal Vein embolization
Oct 2013 - R liver resect 28 hosp days (liver failure, delirium, emboli, encephalopathy) Pathology: no cancer cells pCR (ypT0N0M0)
2014/15 - recovery; benign polyp Apr '15
Apr 2016 new house/town/life
clean CTs and 1.3/1.4 CEAs: 4x2014, 4x2015/16, May2017; next Nov 2017

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Bev G
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Re: 10 years ago today

Postby Bev G » Fri Apr 21, 2017 6:51 pm

This is wonderful news, Jaynee. Thanks for sharing!
58 yo Type1 DM 48 years
12/09 Stage IV 2/22 nodes + liver met, colon resec
3 tx FOLFIRI, liver resec 4/10
9/10 6 mos off chemo, Neg PET&CTC CEA nl
2/11 finished total 10 rounds chemo

9/13 ^17th clean PET/CT NED for now

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Re: 10 years ago today

Postby Ron50 » Fri Apr 21, 2017 6:56 pm

Hi Jaynee,
Congratulations on the ten years from someone who understands how tough survival can be , Hugs Ron.
dx 1/98
st 3 c 6 nodes
48 sessions 5Fu/levamisole
no recurrence cea <.5
numerous l/t side effects of chemo

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Joined: Tue Aug 23, 2016 12:37 pm

Re: 10 years ago today

Postby Coloncancerqueen » Fri Apr 21, 2017 10:14 pm

Congratulations and thank you for sharing your positive news. It's an inspiration to all of us.
Dx 5-15
Right hemicolectomy 5-15
11 rounds of fol fox finished 11-15
6-16 elevated CEA 7.7
7-16 more elevation in CEA 13.1
Summer of 2016 2 ct scans, pet scan, MRI, ultrasound
8-12-16 Second opinion sought
8-16 biopsy revealed mets to ovary
9-16 both ovaries removed
10-16 CEA 2.6 clean scan NED
11-16 CEA 1.1, 1-16 CEA 1.5

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Re: 10 years ago today

Postby prs » Fri Apr 21, 2017 11:05 pm

Dear weissoccermon (or Jaynee :) ) I have found your posts to be sensible, factual, wise, thought provoking, and just downright common sense! You are one of the ladies I very much admire on this board. I think your contributions to this forum are beyond value. I congratulate you on your dedication to keep helping other victims of this dreadful disease, your determination to challenge existing protocol, and your continued NED. :D
Last edited by prs on Fri Apr 21, 2017 11:35 pm, edited 1 time in total.
Peter, age 65 at dx
DX 4 cm x 4 cm very low rectal adenocarcinoma into the sphincters 01/15
Stage III T3 N1 M0 with two suspicious lymph nodes
26 sessions IMRT radiation with 2,000 mg Xeloda each day 03/15 to 04/15
Complete clincal response to the chemoradiation...the tumor shrank completely away 06/15 :D
No surgery...Habr-Gama watch and wait protocol instead
Xelox chemotherapy 07/15-12/15
MRI and rectal exam every three months starting 10/15
NED but still early days.

Posts: 5717
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Re: 10 years ago today

Postby weisssoccermom » Fri Apr 21, 2017 11:22 pm

Thank you to all who have posted such nice comments. They are so touching and honestly, have made tears come to my eyes. No more words but more very sincere....
Thank you.

Hugs to all of you.
Dx 6/22/2006 IIA rectal cancer
6 wks rad/Xeloda -finished 9/06
1st attempt transanal excision 11/06
11/17/06 XELOX 1 cycle
5 months Xeloda only Dec '06 - April '07
10+ blood clots, 1 DVT 1/07
transanal excision 4/20/07 path-NO CANCER CELLS!
NED now and forever!
Perform random acts of kindness

Posts: 4827
Joined: Sun Apr 16, 2006 4:09 pm

Re: 10 years ago today

Postby Lee » Sat Apr 22, 2017 1:18 am

Congratulations on your major milestone. That is so awesome. Hope there is a celebration planned for this weekend and your awesome milestone.

rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 10 years and counting!

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Rob in PA
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Location: Pennsylvania

Re: 10 years ago today

Postby Rob in PA » Sat Apr 22, 2017 10:53 am

Amen to that !!!!!
dx 11/07 crc IIIb @ 39
Xelox/Rad/ temp colostomy
LAR/J-pouch/ temp ileo
Failed reversal
2/09 liver mets; liver resect/ileo reversal
Folfiri/Avastin - 12
2/11 5 lung mets
Folfiri/Avastin 2011
SBRT 3/12
Lung met 5/13/ said NO to more chemo
SBRT 8/13
2 lung mets 5/14, VATS 8/14, NED

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