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by rockhound
Thu Dec 14, 2017 11:48 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

Are all these data for "normal" population or Lynch syndrome folks, like me? If Lynch, then the process of polyp formation and also polyp turning to cancer can be greatly accelerated (e.g., as in 1 yr or 2). That's why the genetic information, esp. if you are young, is really important.. ...
by rockhound
Thu Dec 14, 2017 11:40 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

... My GI doctor did say that I needed to tell my siblings to get screened for polyps and cancer. Should I consider genetic testing? Would my insurance cover it considering my history? ... Any thoughts on that? I'm sorry, but I don't have much information about genetic testing. I never had it done,...
by rockhound
Thu Dec 14, 2017 10:31 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

Polyps at 5mm and under don’t often end up cancerous and tubular is the best look for it to have. Only around 10% of all Adeomas becomes cancerous that 90% that don’t. They most often make the checkup scale 1, 3 or 5 years depends on the report. They know approximately how fast it takes for a polyp...
by rockhound
Wed Dec 13, 2017 2:53 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

Thanks to all of you for your feedback..... I'm wondering if I told my PCP that I wanted a colonoscopy at 3 years instead of 5 years, if my insurance would cover it? Do any of you know the answer to that? As for the genetic testing is that something my insurance would pay for based on my history? W...
by rockhound
Wed Dec 13, 2017 11:26 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

You might consider getting tested for Lynch Syndrome, given your age.. If Lynch positive, then you want to have colonoscopies every year - polyps form and turn into cancer much faster than the rest of the population (like in 1 year or so where normally it might take 5-10 years), also upper GI scope...
by rockhound
Wed Dec 13, 2017 10:07 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

You might consider getting tested for Lynch Syndrome, given your age.. If Lynch positive, then you want to have colonoscopies every year - polyps form and turn into cancer much faster than the rest of the population (like in 1 year or so where normally it might take 5-10 years), also upper GI scope...
by rockhound
Tue Dec 12, 2017 5:01 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Anxiety and questions about follow up and tubular adenoma
Replies: 20
Views: 4101

Re: Anxiety and questions about follow up and tubular adenoma

I have been lurking for several days and I am so impressed by the wealth of information and support given on this website. I am hoping that someone can offer some insight after my recent procedure. After suffering from severe stomach pain and a change in bowel movements (loose stool, several times ...
by rockhound
Fri Dec 08, 2017 4:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgical oncologist vs colorectal surgeon?
Replies: 17
Views: 6221

Re: Surgical oncologist vs colorectal surgeon?

With the prevalence of colorectal cancers, it is not difficult to find a colorectal surgeon that is also a surgical oncologist. It is generally easier to find such a surgeon at a major cancer center with a GI cancer specialty. Again, this shouldn't be difficult to find based on the number of cases ...
by rockhound
Fri Dec 08, 2017 4:05 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

Learning Curve: The Surgeon as a Prognostic Factor in Colorectal Cancer Surgery (2005) http://eknygos.lsmuni.lt/springer/404/86-104.pdf Thirteen consultants, none of whom had a special interest in colorectal surgery, operated on 645 patients with colorectal cancer. Outcome differed tremendously bet...
by rockhound
Thu Dec 07, 2017 3:29 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The belt was really great running, except mine would sometimes pop off the hooks; would have to stop and reattach under the compression wrap. So perhaps tighten the belt up well! I never used the Cavilon spray so can't comment vs. the wipes, but the wipes were pretty easy to use. Glad to hear that ...
by rockhound
Thu Dec 07, 2017 11:53 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

The visit to the Stoma Nurse went well this morning. The original appointment was for 10 days after discharge but it was moved out three weeks due to a conflict or something. I think that I would have been a lot better off if the original appointment date were kept. I think that the rationale would...
by rockhound
Wed Dec 06, 2017 5:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

You may want to look into crusting to help heal the areas of irritation you have. There are some good videos on YouTube about it. Basically, you layer stoma powder and barrier wipes to form a crust over the raw area that protects it so it can heal, but still allows the adhesive to stick. It has wor...
by rockhound
Tue Dec 05, 2017 2:27 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer stage IV
Replies: 205
Views: 102304

Re: New on the forum

Atoq wrote:They are going to operate me this evening, they want to make the loop ileostomy because my tumor is blocking the passage. Open chirurgy...

All the best

Claudia


Good luck!
by rockhound
Tue Dec 05, 2017 2:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I changed the bag this morning in a record 12 minutes (for me). There was no irritation (no sting when I applied the barrier wipes) so two days is a lot better than five. Next change will be in three days. If there's no stinging, then I'll stick with three days. I'm still looking into other product...
by rockhound
Mon Dec 04, 2017 3:43 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rectal cancer (Stage 3A) diagnosed late June 2017
Replies: 1760
Views: 503523

Re: Rectal cancer (Stage 3A) diagnosed late June 2017

I requested a sample. I requested them from other places too but didn't hear anything back. How does the sample request process work (as in the process and how long it takes)? Keep the product suggestions coming. With the samples, I went online and filled out info forms for Convatec, Hollister, and...

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