Dr. Vogl wrote me that Jesper's crazy high CEA is probably because of the lung mets (he said high CEA often comes from lung mets, but I don't know if that's a true datum - seems like something he has often observed as being the case). I guess 70,000 makes sense if you have so many mets. I think the...

Well, the increase in CEA definitely means something. But the stable scan is very interesting. He wouldn't be the first patient with an increase in CEA due to the significant death of tumor cells. I'm not saying that's what's happening. But it's worth considering, especially with the stable scan. He...

So we're a little over 2 months from colon resection and HAI pump placement. It's the first time I've seen A cea count since before surgery and maybe they calculate different from our cancer center but it was over 1,000!? He hasn't been back in systemic yet, taking cues from his body to take the ma...

First of all, congratulations!!! I think you can safely say that cancer is in your rearview mirror! Second, thank you for your many contributions to this site. Your insightfulness, advice, and support has been invaluable to many, me included! Third, my biggest wish for you is a long and healthy life...

I am a fan of the Miralax and Gatorade combo too. My GI doc also throws in a couple of Dulcolax. I was never allowed to eat anything the day before (only clear liquids and non-red jello). I've learned it's smart to go low residue for a few days before though. Congrats on a clear scan! :D Now go eat ...

At Sloan now as Pete is having his Hai Pump and Port out. We asked Dr D’Angelica’s surgical assistant if we can have the pump! Hope so. This is a very exciting day for us as 2011 looked bleak. Our message to all is keep fighting, ask tons of questions and get more than one opinion. We are so gratef...

CRguy wrote:Recent Imaging and bloods ALL looking good, as in
" no further scans or follow ups required "

WOO-HOO!!!!! That's what I want to hear!!!

Here's to a lifetime of health and mind/body/spirit harmony.

xoxo,
JJ

The drain is out! And, like yours, my body just sort of pushed it right out when they went to remove it. I wore a tight dress to the office today for the first time in three months. Yippee! I hear you! Getting that damn drain out was one of the happiest days of my life! :D :D :D As the calendar sli...

I was so wired / worried last night I tossed and turned the entire night. Hoping that things sort of settle in today. Tomorrow I'll head to IR for either a drain pull or replacement. I'm almost afraid to hope they will pull it, it would be like all my cancer dreams coming true! Good scan, no adjuva...

I am noticing less all over soreness now - maybe because I really pulled something in my shoulder / back. It hurts to breathe! I’m sure it happened because I’ve been hobbling around trying to compensate for my various aches and pains. Plus carrying my laptop in my purse - I really feel it when I sl...

Mrned82 wrote:remember always
NO EXPIRATION DATE !!!!!!

I love this line!

You are right, Daniele. No one truly knows our expiration date. You keep traveling, dancing, and enjoying your life to the fullest!

Thanks for the wonderful post!
Juliej

No chemo right now, no. Tomorrow I’m going in for labs and an iron infusion. I’ll ask them to pull B12 - that’s one I haven’t been checking. And I know someone mentioned one other thing, was it D3 maybe? I know last labs, my magnesium and iron were below normal range. Potassium was super low side o...

You're not on chemo right now, correct? My first guess would be a magnesium/potassium deficiency. That played hell with my joints and muscles during treatment. The potassium infusions helped but not enough on a day-to-day basis. Finally, I started eating a banana (I hate bananas) every day and that ...

Second try and I was able to get my heartrate up to 135 on the second time out. I only did 3 miles at a moderate pace but I think that heartrate gains are doable. The thing is the balance. I got in 4 miles running today and 3 miles cycling and both felt great. I do want to increase speed and distan...

Hi Julie I just logged back on and noticed you are a competitive runner. What sort of running do you do? What do you focus on? What sort of training plans do you use? Do you have a running coach, or do it yourself? Garmin, Suunto? I have lots of questions. Run solo, groups? 2019 was not a good year...