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by radnyc
Thu Nov 21, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Why Cancer Patients Push Loved Ones Away
Replies: 2
Views: 698

Why Cancer Patients Push Loved Ones Away

I personally preferred to be left alone, people buzzing around me brought me down. Please let the person going through the disease deal with it the way they feel best.

https://www.roswellpark.org/cancertalk/ ... -ones-away
by radnyc
Mon Nov 18, 2019 8:41 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 4537

Re: 1st bad scanning... advice please!!

Hey radnyc- if you don't mind, can you share which oncologist you saw at MSK? No pressure, just wondering. Hi Rachel, I’ll send you a pm with my onc’s name. But, I’ll just say that he was always direct, not really beating around the bush. But, honest and was upbeat when things went well. I have no ...
by radnyc
Mon Nov 18, 2019 6:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 1st bad scanning... advice please!!
Replies: 52
Views: 4537

Re: 1st bad scanning... advice please!!

Please remember that although dr. Kemeny is the go to expert on the HAI protocol, the decision is not automatically hers alone. The whole team over there works on the selection and treatment of all the patients. As a matter of fact when I originally went there I had no idea what HAI was or who Kemen...
by radnyc
Mon Nov 18, 2019 12:07 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 4171

Re: Baseline CEA levels

Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgk...
by radnyc
Mon Nov 18, 2019 7:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Baseline CEA levels
Replies: 20
Views: 4171

Re: Baseline CEA levels

Your husband’s case is unusual. I found this case of someone with an extremely high CEA over 1500, who became disease-free and still had a CEA in the 300’s. Maybe he fits this pattern. https://watermark.silverchair.com/hyl110.pdf?token=AQECAHi208BE49Ooan9kkhW_Ercy7Dm3ZL_9Cf3qfKAc485ysgAAAlkwggJVBgkq...
by radnyc
Tue Nov 12, 2019 7:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Surgery here, and done.
Replies: 25
Views: 2105

Re: Surgery here, and done.

Great news! Sounds like everything went as planned, stay positive and strong!
by radnyc
Mon Nov 11, 2019 8:16 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: DNA editing tool Crispr - can this be the one?
Replies: 3
Views: 591

DNA editing tool Crispr - can this be the one?

Let’s keep an eye on this trial, Crispr is in my opinion the best possibility for a cure at the moment. Only three patients have been recruited, very advanced cancers, seem to be stable. There’s still much to do. https://www.nytimes.com/2019/11/06/health/crispr-cancer-leukemia.html?smid=nytcore-ios-...
by radnyc
Mon Nov 11, 2019 3:34 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 4444

Re: My recent significant CEA jump.

This discussion is worthy of its own topic, as it’s of interest to so many group members, mods? I found a very interesting article on pubmed: https://www.ncbi.nlm.nih.gov/m/pubmed/29579327/ The premise is that CEA by itself may not be such a useful metric for recurrence surveillance. The take away: ...
by radnyc
Fri Nov 08, 2019 2:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 4444

Re: My recent significant CEA jump.

The search is on for a superior testing method based on individual tumor DNA, which is the way to go. I found this quote from Dr. Axel Grothey, a well known oncologist at the Mayo Clinic: “ Dr. Grothey says he considers CEA to be a valuable surveillance test, but that research into better tests is o...
by radnyc
Wed Nov 06, 2019 5:21 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My recent significant CEA jump.
Replies: 27
Views: 4444

Re: My recent significant CEA jump.

Wow! Just reading your story stresses me out. My CEA has lived between 5 and 10, for 10 years, and no cancer has been found after numerous radiographic studies, CT, PET. Yes, if it’d jump to 60 it’d freak me out! It’s hard not to think about and I wish there were another simple blood test for those ...
by radnyc
Wed Nov 06, 2019 3:46 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Rising CEA - What would you do?
Replies: 28
Views: 2989

Re: Rising CEA - What would you do?

Sorry to hear this, but, if it is, then it’d be better if it’s at the original site, a colon resection is much more effective and less complex than a hepatectomy and it’d mean that it hasn’t spread. Recurrences at the original site mostly occur within the first three years. Stay strong.
by radnyc
Wed Nov 06, 2019 8:04 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: HAI on a personal level
Replies: 4
Views: 720

Re: HAI on a personal level

Hahaha! Not an issue at all, just given him enough time to heal.
by radnyc
Tue Nov 05, 2019 7:52 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Happy Birthday to me!!
Replies: 14
Views: 936

Re: Happy Birthday to me!!

Happy birthday fellow Scorpio, stay strong!
by radnyc
Mon Nov 04, 2019 9:22 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Need help metallic taste
Replies: 15
Views: 1347

Re: Need help metallic taste

It’s a horrible side effect of the oxaliplatin. What help was actually eating well seasoned foods. Once you’re done with the chemo things go back to normal. Hang in there.
by radnyc
Thu Oct 31, 2019 2:37 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: What, besides, tumor burden causes elevated CEA?
Replies: 7
Views: 963

Re: What, besides, tumor burden causes elevated CEA?

Hi, your situation looks perfect for the HAI pump protocol, liver only mets, shrinking, have you enquirer?

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