This is really encouraging!

It's not exactly the same thing as a chemo break, but we stopped my keytruda after 18 mos because I had been NED for over a year and was experiencing very painful arthralgia. That was around June 2020. I'm still NED.

Consensus of opinion is that my tumor probably originated from a sessile polyp in the hepatic flexure..VERY hard to see. Last summer I had my first post-surgical, and second overall, colonoscopy, and the Dr found and removed two benign sessile polyps, IIRC one in the descending colon and the other i...

Pain of that type can be from a pinched nerve, in my experience. Also IME, acupuncture can be very effective.

Camicom, perhaps Ginabeewell will look in and comment on this for you. (I think that's the right way to draw it to her attention? If not, I suggest you look up her thread(s) if you haven't already. I don't know where you are located, but sometimes people are able to get the pump refilled more locall...

That's good news.

If I'm reading your sig correctly, congratulations on the great results with Opdivo! Fantastic!

have you talked about the possibility of the HAI pump?

I have orthostatic hypotension also. Only affects me when going from sitting to standing, not lying down, but it is apparently unusually bad. I sometimes have seizure-like episodes, and find myself clinging to poles, walls, furniture, you name it in order not to go down while my legs/arms twitch/jer...

I had an obstructive T3 or T4 tumor (difference of pathological opinion) in the hepatic flexure 8 years after a clear colonoscopy. It most likely arose from a sessile polyp. The surgical team intimated that they wondered about the accuracy of the colonoscopy.

Wishing you a less eventful year ahead. Medically, that is! Just nice, calm, painfree healing.

And good hair days galore!

Congratulations on keeping the beast at heel! I hope you have many more great years ahead.

Roadrunner, good to see that your sense of humor is fully intact! :wink: My husband, who is about 6 ft 2 and very fit and muscular--he's a gm rat--has always seemed to have a supercharged metabolism. He has to eat frequently or he's in danger of passing out. He had surgery about 10 years ago, and of...

I thought you said you couldn't get one because of surgical clips. Oops! Clearly not what you said.

I missed all of this while away, sorry for belated support. In the first place, I can't believe they were looking at someone else's scans! Leaving that aside, I agree with the idea of seizing the opportunity of the surgical window, and it is great that your team is doing so. Since you can't have an ...

I'm assuming that the MSI was a typo and you meant MSS, otherwise there is no way they'd be fooling around with chemo with a person with mets. He'd be going straight to immunotherapy.