Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...

Great news Plastikos, Even my oncologist is increasing duration between fusions by a week every 3 months or so after a year of infusions every 2 weeks. It started with once every 2 weeks. It is now at once a month. Great to hear that Henry. Looks like we are kind of in the same boat right now. If i...

@bitchslapped: Re stent. Sorry missed that. Yup we are also debating on what to do with the stent. I think everybody would feel better if its there so the endoscopist who put it in says we can leave it there as long as its patent.

stu wrote:Brilliant news and dilemmas of that nature are welcome . I am sure you are giving the surgeon much to smile about .
It has been fantastic following your story and seeing how far you have come .
Take care,
Stu

Thanks Stu.

You have come a long way plastikos. Immunotherapy a BIG DEAL...a real success story thus far & @ a young age. I hope you continue to update regarding dosing frequency (not clear on that) & decision re: stent. Sometimes I'm of the mind - If it ain't broke, don't fix it, however maybe you don...

Just bumping this same thread as an update rather than create a new one. Been on Keytruda as monotherapy for 18 months now (with SIRT somewhere in the middle of it). PET-CT last Saturday still read as NED. Stretching intervals in between doses now a week at a time. GI and I wondering what to do with...

Been following this. Hoping the results turn out to be favorable. By the way, have you been tested for MSI status?

Why is surgery not an option? Go to a major cancer center. Look for a team willing to do the surgery. Test her tumor for MSI status. If they can take everything out and if she is a candidate for immuno or even just aggressive chemo then I don’t see why “cure” is impossible.

I believe there are a lot if cured survivors. Congrats. You are in a good place now. Have your tumor (if possible) tested for MSI.

Amazing news. Hoping for your continued response to Keytruda.

If it’s available where she lives I would tell her to look into SIRT to shrink here liver tumors.

No growth is better than progression (growth) but not as good as shrinkage. I think continuing chemo is the right step but only if the goal is to get to a point where surgery is an option. Ask your doctors if they plan to do surgery. Of course the decision on how aggressive you want to be will depen...

Hi. Try to get into a major cancer center like MSK or MDA. Try looking into SIRT (Y90), immunothsrapy or even just a new chemo regimen. Lots of options. Good luck.

henry123 wrote:Hello
Have been declared NED with clear CT and normal CEA Levels of 1.5 .
To continue with Opdivo for now.
May stop after 6 months or a year.
Oncologist doesn't want to risk a relapse and taking conservative approach.
Will update in detail later.

Amazing! Big congrats.

Even my oncologist has asked me to be off any supplements. I only take aspirin on his advice and occasional curcumin tablets. These immunotherapy drugs are so new that doctors don't have data on drug interactions. If I understood the paper on Vit D and pdl1, it may be harmful at high doses. Please ...