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by mariane
Fri Jun 18, 2021 9:10 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Stage 4 Rectal Cancer 45yo Wonderful Woman
Replies: 31
Views: 8649

Re: Stage 4 Rectal Cancer 45yo Wonderful Woman

Hi! I also would encourage you to try the HAI pump path. I would also to FOLFOXIRI as first choice chemo. It's a strong coctail but strong first chemo matters on the way to NED. I was on similar situation 6 years ago. I received FOLFIRINOX/FOLFOXIRI as first chemo and 4 surgeries later I became NED....
by mariane
Sat Jun 12, 2021 4:57 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Recent HAI Pump?
Replies: 12
Views: 2851

Re: Recent HAI Pump?

Hi! I am one of long timers on this forum. This spring I had surgery to remove the pump after 5 years of NED. I started with 10+ tumors, the largest was 7.5cm. Nobody gave me a chance to live 5 years. I am NED. I have my ups and downs. Chemo and pump are not easy for the liver. My bilirubin is betwe...
by mariane
Wed Feb 17, 2021 6:13 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: MSK liver surgeon
Replies: 5
Views: 1683

Re: MSK liver surgeon

Dr. D'A was my surgeon in 2015 and 2016. NED since 2016, starting with 10+ liver mets. I really love him, highly knowledgeable, compassionate, great hands.
by mariane
Wed Feb 17, 2021 6:11 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 8627

Re: Cured it is then !

I thought exactly the same. All old gang. :) Good to see you. My kids are almost 12. I need to change my signature. Last year was busy with all the homeschooling pros and cons. My kids are in hybrid learning at this point. My next appointment is nearing. It has been almost 5 years since my past surg...
by mariane
Tue Feb 16, 2021 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Cured it is then !
Replies: 28
Views: 8627

Re: Cured it is then !

Congratulations! I am so happy!!!
by mariane
Sun Nov 22, 2020 10:56 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My fiance , 33, gets Stage 4 diagnosis...
Replies: 23
Views: 4111

Re: My fiance , 33, gets Stage 4 diagnosis...

FOLFIRINOX/FOLFOXIRI is the same chemo I had as first choice of chemo. It gave me complete pathological response and hope.
by mariane
Sun Nov 22, 2020 10:54 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: My fiance , 33, gets Stage 4 diagnosis...
Replies: 23
Views: 4111

Re: My fiance , 33, gets Stage 4 diagnosis...

Hi! I am one of Dr. Kemeny's patients. I got diagnosed in June 2015 with 10+ mets in my liver. I recommend second opinion at MSKCC, Dr. Kemeny truly saved my life. I have been NED since 05/2016, off chemo, living my normal life. There is many of us, pumpers, now. We have facebook group where you can...
by mariane
Fri Aug 21, 2020 10:47 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 4060

Re: another HAI pump question and a short rant...

Hi! When I got diagnosed in June 2015 almost without symptoms; I was living happy, active life in Europe. My husband, who worked in the States called Dr. Kemeny's office for me. ( I was reading forums to find a trace of hope since I was given zero chance to survive past 2 years on chemo, and 3 month...
by mariane
Thu Aug 13, 2020 9:21 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: another HAI pump question and a short rant...
Replies: 15
Views: 4060

Re: another HAI pump question and a short rant...

Hi! I had tumors all over the liver as well, badly located near important structures. The largest was 7.5cm. I was told by 3 oncologists that there is zero chance for me. I signed a consent form for palliative chemo. I found an info about Dr. Kemeny and HAI pump reading online forums. I ended up hav...
by mariane
Sun Jul 19, 2020 6:26 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: For those who have had HAI pump .. I have a question
Replies: 4
Views: 1245

Re: For those who have had HAI pump .. I have a question

Good Luck! It sounds like perfect candidate for HAI. I met Dr. Kemeny in August 2015 with 10+ liver mets, no further spread. I am doing well, NED off chemo since 05/2016.
by mariane
Mon Jun 01, 2020 10:59 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Dr. K patients-what’s the plan?
Replies: 4
Views: 1727

Re: Dr. K patients-what’s the plan?

I am so grateful for this thread, Kathleen! Greetings for Joe! My scans got rescheduled from April to June 21/22. I had last scans in November... So weird... Additionally, my husband got furloughed and only God knows, how long we will keep the insurance, and when he gets another job with decent bene...
by mariane
Thu Oct 24, 2019 7:23 pm
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: 7 1/2 years post Stage IV liver resection
Replies: 10
Views: 1740

Re: 7 1/2 years post Stage IV liver resection

Congratulations Diane! I am so very happy. Enjoy beautiful Southern fall.
by mariane
Wed Aug 28, 2019 8:56 am
Forum: Colon Talk - Colon cancer (colorectal cancer) support forum
Topic: Sad News About Arizona Mom
Replies: 3
Views: 2042

Re: Sad News About Arizona Mom

I am so sorry.
I remember Lara. She helped me during hard months between my surgeries in 2015.
RiP, Lara.

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