Always glad to hear good news! Keep on Keepin on.

Hi All, I needed a little boost today as it was my 3rd round FOLFIRI + Avastin and will be scheduling a scan after the 4th round to see if it made a difference. I know it won't be NED, but maybe, just maybe, a first step in that direction. I asked my ONC before starting the current regiment about th...

Congrats! Time to heal and recover. Maybe start planning some fun things and celebrate.

Hi Robin, I've never really told my story so the quick version of surgery 06/17, discovered FOLFOX totally failed with 1st post treatment CT scan -12/17 mets to liver/lungs. After scheduling 2nd opinion, PET scan and a break all came back to starting FOLFIRI+Avastin 02/18. Two days after 1st FOLFIRI...

Mrs. Ziggy, my heart goes out to you. My prayers to you, family and friends.

Hi Mrs. Z, I haven't checked in on Mr. Z and you in a while, but have kept you both in my prayers. I start Folfiri+Avastin on Wednesday and hope Mr Z. and I both have good responses to the Irinotecan. I was fortunate that the Mrs. and I got in a couple quick trips since my chemo ended in Dec.. I hop...

Heal fast from surgery and make each day your own. Prayers out to you and yours.

Chemo is harsh and constipation can be brutal. My constipation relief started on day one of the cycle by using 1 gelcap stool softner twice a day (recommended dose up to 3 gelcap daily). My GOTO that worked for me was room temp. apple juice to finally get things moving. After that, I kept taking 1 s...

I know several people have stated having "shocks" in their legs and feet when bending the head forward. Those may be tied to Lhermitte's Sign. Mine happen every time I tilt my head forward somewhat fast and started around cycle 9. I don't know if it affects the stomach area. As always, kee...

Tom's in my prayers.

My heart dropped to the floor a few minutes ago when I read about Anne. Although I never made personal contact, I read her posts and admired her will and ability to stay positive. I can only hope all of us face our trials half as well as she did. Prayers to the kids and the rest of the family and fr...

Hi BeansMama,

Just a quick note to say we're thinking of you and hope things are going O.K. Continue to get better!

My best to you and Mr. Ziggy. Hoping you have great news next week!

I noticed the tingling/numbness around cycle 2, but it would ease off by the before the end of the cycle. By cycle 4 or so it was more persistent and I started gabapentin. Cycle 8 OXI stopped due to infusion reaction and the neuropathy. I finished cycle 12 and have been on gabapentin 300mg since cyc...

Thanks for the input. I already expect I will be changing my ONC just because of the available options locally. Yesterday I was in a funk, today I'm getting my battle spirit back. Still hoping on NEDville some day!